Hi ladies, apologies for the long post, but I really need some insight here.
As a young girl, my periods were always hellishly painful, but hey - that's what you expect, right? (!)
As I got older, they got no better (although I think having a copper coil didn't help - nearly passing out at uni on a frequent basis wasn't great), so got rid of the coil and went on the pill (microgynon) for the best part of a decade.
I saw a specialist about painful boobs, but I got that sorted by cutting out caffiene (it lowers your pain threshold) & was told how to handle it if it happens again by using GLA to help balance my hormones.
Things were fine on the pill, periods getting a bit more painful as I was getting older, but thought that was just the way things were working out for me.
so, in 2014 I had some dodgy cells on my cervix that needed removing in Nov 2014, with advice that "your next period will be more painful than normal after treatment, then return to normal", which was sort of true... the next one was hellishly painful, then the next one was ok, but the next got worse, then worse, etc... by April it was a case of taking as many painkillers as my liver could safely process (ibuprofen, cocodamol), a day or two off work here and there. I started to get painful boobs again and some mid cycle pains, but figured that was from running a couple of pill packs together (no period, no period pains).
My hubby and I decided to try for a baby, but wanted to wait until I got the 6 month all clear after the cervix treatment first.
So at the end of summer 2015, I came off the pill... started to get horrendous pains mid cycle (suspected it was because after a decade on the pill, the body will take a while to adjust to being off it), but by comparison, the periods weren't as painful as the mid cycle pain, but still pretty terrible.
So the next few months were the same, fainting from the pain at work, doubled over in agony, taking all the painkillers I could. I tracked the days of the worst pain, did ovulation tests and there is an unmistakable relationship between levels of estrogen and the peak of the pain. So obviously, got a referral to a gynae, explained it all to him. Got the ultrasound all clear, no infections or the like.
Things got so bad, I went back on the pill at the end of November just so that I could try to function a bit better, and stayed on until the lap (which was fine for the first four weeks, but then the pain was creeping back in, almost as though being off the pill had fed the beast inside me and was becoming resistant to the dulling effects of the pill).
So then, after yesterday's lap... no signs of endo either.
They found a cyst but say that's not what causing the pain... they suggested the pain is perhaps bowel related - did I get constipated or loose movements? Well, no - I know what's normal toilet wise (I'm also coeliac, so know my guts very well!).
I asked about the mid cycle pain and was told that sometimes women get mid-ovulation pain, it's called mittlesmertz (or however you spell it!). Yes, I'd heard of that, but this is hellish doubled-over in agony pain...
They said I should ask my GP for a scan of my gallbladder in case it was that...
I asked about adenomyosis but was told that was inside the uterus, not outside, so the lap wouldn't have seen it... yet there was no willingness to do an internal examination to explore that route.
I felt so disappointed, so confused.... there is such an undoubted correlation between my hormones and the pain, and yet they are so eager to dismiss it as something else.
I'm at such a loss as what to do... The last natural cycle I had was 34 days, of which only five days were pain free. I so desperately want to start a family, but how can I if I'm in agony (I want to be capable of looking after a young baby, would be irresponsible of me to try for one without getting myself better first). The pain is impacting my life so much, my husband has been very patient and understanding but it's not fair on him either. It's affecting my work too, having to rely on my colleagues to do the physical parts of it for me. It's so draining being in pain, being tired... I just wanted some proper answers yesterday or at least a way forward, but can't help but feel fobbed off.
Sorry for such a long post, I just really can't see how it isn't hormone related.