Endo pain triggered by ovulation?

[Sarahfres]

Hi just wanting to know if anyone here experiences really bad mid cycle pain ? All i keep hearing about is bad period pains but i got diagnosed with laparoscopy in may and I’m completely fine during my periods. Its the ovulation time and the days after leading to my period is what’s painful for me. Even after surgery I’m still in a lot of pain, i was told by the dr that it was not too severe and that all had been cut out mostly from back of my uterus & rectum area and a bit near the left top side of my uterus near left ovary. I’m trying to get pregnant but this pain i feel like is just not allowing the embryo to stick. Anyone out there with any similar endo issues or positive stories of conceiving with my symptoms?

[Moon_maiden]

I think ovulation has effected things, last December when I saw GP pain was horrendous, gave prescription for Oramorph. Suggested going to A&E, but I didn’t. This was two weeks after period. Since then harder to tell as more constant.

[Sarahfres in reply to Moon_maiden]

It may be that you are in the early stages of endo i was like that too constantly going to gps and emergency only to be given no answers about my pain. Then it become more & more constant every month. Then finally after 4 years I found a decent gyno who finally took my concerns seriously and advised i do a laparoscopy to diagnose potential endo. Find a endo specialist & voice your concerns. Better to target this problem early on. Extreme pain no matter at what stage of your cycle is not normal.

[Moon_maiden in reply to Sarahfres]

I went private in December and lap in Feb. Then passed to endo specialist as more severe than first thought. I’d had over a year of back and forth to GPs though. I’ve probably had it many years, but never dealt with it, just decided to rebel 🤣

I spoke to endo consultant a few weeks back, but have another session today to go over queries. That’ll be fun!🙄

Have you had an MRI?

[Sarahfres in reply to Moon_maiden]

Haha i get you even i did too, it seemed better to ignore the pain and carry on with life then. My pains started during my year 12 final exams so i was way to heavily focused on that and ignored my health. 🙈

Aww all the best i pray it goes well for you & you & your dr come up with some sort of plan to get you out of this mess as quick as possible. This whole journey of drs & hospitals gives me so much anxiety now so i can understand how nerve wrecking it must be for you too. No i haven’t had a MRI just that excision laparoscopy in May & after that went to a top endo specialist here in my city for further investigation into my fertility to get me pregnant as soon as possible.

[Moon_maiden in reply to Sarahfres]

Hopefully it won’t take you long to get the investigation completed 🤞

Let us know how you go

[Starley]

Hi there, I’m very similar, I get horrendous period pains but what’s worse than that is ovulation. The amount of times I’ve been buckled over with it and contacted doctors they all immediately think it’s appendicitis but now as they’ve ruled all of that out they believe it’s endometriosis so I’m waiting for a lap. The pain is like a really dull ache, it feels like something is trapped and the whole of my lower right abdomen feels immense pressure, just twisting or slight movements can kill. It’s surprising because I never thought ovulation could be that painful but my goodness, it is. I have to take really strong painkillers and I often find ovulation worse than my period because it’s a completely different sensation. Also, for a woman it can be daunting because I wish to have children one day but my reproductive system scares me as it seems so abnormal. My mum had similar problems but conceived naturally and had two healthy babies, that gives me hope. Plus there’s a lot of women out there with Endo who can and have conceived, I suggest seeing your doctor and making them aware that you’re trying for a baby, they may be able to advise you and help you with the process. My mum says she tried for years but as soon as she got a good Gynae and stopped stressing about it, started thinking more positively she found out she was pregnant when she least expected it!

[Sarahfres in reply to Starley]

This sucks doesn’t it ? so unfair honestly, I understand your struggle its so tough holding on to hope especially when it feels like your body is going against you. Even with my mother she never had any problems like i did & conceived naturally & has five healthy kids. I think I’m the first in the family with this problem yayy eugh!!!

Yes I’ve discussed with my dr about pregnancy he also thinks its the best thing for me at this moment, his told me to try taking naproxen as soon as i feel my pains coming on so i can block the inflammatory cells before they spread so by blocking the pain he wants to see if ill be able to conceive that way As it will give the embryo more opportunity to implant given theres no inflammation going on. So i will be trying that in my next cycle he did say if that doesn’t work then he can prescribe something stronger. Also ordered blood work for my hormones, thyroid, ovarian reserve & sperm analysis for the hubby just in case his swimmers aren’t okay. Will keep u updated on how it all goes.

[Tuxedo34 in reply to Starley]

Your symptoms are exactly the same as mine, I also experience the worst of the pain during ovulation and for about 10 days after with intense pain and pressure in my right hand side. I've managed to have three children, so I hope that helps.

[Sarahfres in reply to Tuxedo34]

Thankyou for replying 😊 it feels good to be given some hope & positivity.

[Sarahfres in reply to Tuxedo34]

If you don’t mind me asking was it hard to conceive at all, how long did it take for you to have baby #1 ?

[Tuxedo34 in reply to Sarahfres]

I was very lucky, it took me 4 months to conceive my first child, 4 months to conceive my second child and 12 months for my third child.

[Sarahfres in reply to Tuxedo34]

Means alot thankyou, were you ever diagnosed with endo because of your pain during ovulation ?

[Tuxedo34 in reply to Sarahfres]

Ultimately yes. After being investigated for everything else under the sun lol. My pain also lasts for a good ten days after ovulation so it took a while for anyone to make the connection, I basically had to make the connection myself and ask about endometriosis and for investigation.

[Sarahfres in reply to Tuxedo34]

Yes it can be so frustrating right lol

How severe was your endo ? & do you still suffer from the pain in your day to day life now ? Or has it become easier to cope with after having the babies?

[Tuxedo34 in reply to Sarahfres]

I do still suffer from pain at the moment unfortunately although I've gone long periods of time without any symptoms in the past and also had horrible flare ups, it's completely unpredictable. My third child is 4 and recently I've had an awful flare up which I had to go too hospital for 4 days. I've just started taking cerezette to try and manage the symptoms while waiting for another appointment with my specialist. Because of covid accessing medical care for my endo has been really hard and all the waiting lists are jammed. I've been told I'm now at stage 3.

[Sarahfres in reply to Tuxedo34]

Aww no I’m so sorry to hear that i wish nothing but the best for you in regards to your pain. I can imagine how tough it must be now especially with kids & having to put up with this pain. Us as women have to deal with so much its really not fair. I pray that you get better answers & good treatment very very soon so you can truly recover. Thankyou so much for giving me hope & answering all my questions. Feels so great to speak to a fellow endo sister with similar symptoms. Really makes me believe that i am not alone. ❤️

[Tuxedo34 in reply to Sarahfres]

No problem at all. Your the first person that's had such similar symptoms to me which actually really helped me and made me feel less alone. I hope you are able to manage your endo, get pregnant and have a smooth sailing pregnancy xo It is possible, keep positive : )

[Giraffe92]

Absolutely, my worst and longest lasting pains are during ovulation. My periods are bad but I only have them for 2 days so I've learned the manage the short but painful time of the month. Ovulation though is something I am still struggling with because the flare ups and types of pain seems to change so I can't really get to grips with it!

[Sarahfres]

So sorry that you have to deal with this too, i know right it can be so frustrating. This whole illness has a mind of it’s own it seems like. Lately I’ve tried changing my diet to be more anti-inflammatory its been helping with the frequency of the pain and the intensity of it, just need to be more consistent I suppose to see more change.

Try a change in diet, really focus on what you think is triggering it more. Also I’ve heard massages help too I’ve been reading about Psoas muscle stretches because sometimes when this muscle tightens it can minimise blood flow to the ovaries causing pain & discomfort so keeping this muscle flexible can provide some relief.

[hallc1999]

Not officially diagnosed yet but I get terrible ovulation pain and cramps that has sometimes brought me to the emergency room and the pain will last from ovulation until after my period so a solid 2 1/2 weeks

[Sarahfres in reply to hallc1999]

Oh no thats horrible I'm so sorry that you have to go through that. I reckon the most important thing for you to do would be to find a endo specialist in your area & try to get a diagnosis so you can better treat your condition knowing what it is that’s exactly going on in your body. All the best

[hallc1999]

Not officially diagnosed yet but I get terrible ovulation pain and cramps that has sometimes brought me to the emergency room and the pain will last from ovulation until after my period so a solid 2 1/2 weeks

[BoilerMissle]

Ovulation was always worse for me!

[Sarahfres]

Any success stories ? Definitely in need of some hope right now. Any tips to handle conceiving during endo flare ups ?