Good Morning lovely ladies firstly I would like to apologise for this log explanation of findings that was discussed with me yesterday
I am so angry...emotional and fed up what a day...just got back from my post op appointment at hospital to get the results of my diagnostic Lap/Hysteroscopy and low and behold I was not able to see my actual gynie consultant but one of his other consultant registrars a horrible abrupt( I think she was German) after waiting for over an hour due to her running behind it was the most awful and upsetting experience...right here goes findings
1.) severe 4/5 severe endo found in pelvis, POD back of womb the cyst was attached to the Bowel and Back of Womb so that's why he couldn't remove it and had to drain it due to severity of endo.
2.) chocolate cyst/endometrioma found significantly grown since ultrasounds from 5cm to just under 9cm which he drained.
3.) Here we go recommends a Hysterectomy and removal of both ovaries and then she said "How Does that sound my reply was "Unfortunately that won't get rid of endo her response was "Oh Yes it will removing the ovaries stops you making 6 cycles so that is the definitive treatment for endo....my reply was "it doesn't get rid of the endo that is already there does it" her response "it doesn't get rid of the scaring but the Hysterectomy with definitely get rid of the endo.
4.) Next she said hang on I'm having difficulty reading his scribbled notes god what a mess..Ovarian cysts in POD something something and behind the womb I think it reads something like bilateral cysts and there are a number of other cysts not sure what they are as they are all attached together in a large mass in the POD
5.) Both Ovaries have got Cysts in what these are not a clue did not say
6.) Right Pelvic area a cyst was present which had also grown since ultrasound findings this has been drained as to your question these cysts that were found can all fill up again yes and as to the time span of these filling up again dunno but that really doesn't matter as these will be taken out when he does a pelvic clean or with hysterectomy.
7.) Both Ovaries are severely plastered and fused to pelvic side wall
8.) POD obliterated partially so in amongst the Bowel, POD and Ovaries all matted together so he couldn't see or look down into the pocket of the womb could not perform all of hysteroscopy due to not being able to see certain things due to severe endo but full laproscopy was done.
9.) Right Fallopian tube is blocked something something and left Tube is is torted I think it says torted still can't read his atrocious writing and filled up with fluid and filled up like a balloon.
10.) The Womb itself is the size of a 16week pregnancy with Fibroids don't know what fibroids and these were left alone. He thinks they are intramural fibroid tumors. I did ask about Ademyosis and she said unless we took out your womb sent it to a lab and they cut it into sections we cannot tell... anyway this is completely irrelevant Sarah as it will be coming out with the hysterectomy and it will be tested.
11.) He has suggested a pelvic clearance to remove all cysts etc and this will stop you having periods and with you not having ovarian cycles this will keep the endo down (I'm not sure if I heard this quite right seems a bit confusing) she also said it will not remove all the stickiness I presume from the endo.
12.) He will do as little to the Bowel as it is stuck to the Pelvis and it's restrictive so we can't do anything to the ovaries so may have to leave them (confused) the more we have to operate due to the complexity of the endo the higher the risk
13.) He mentioned that he will have to do a Bowel Prep prior to hysterectomy, she told me that I will not enjoy this it's horrendous you have to take two satchets of this stuff with water etc and you will feel like your whole guts and insides will be coming out and you will be on the toilet all day OMG what the hell the advantages to this is it will reduce the risk of perforating the bowel and if this happened it would be squeaky clean and a Bowel surgeon could come and repair it & you would be alright If your Bowel was not squeaky clean the proverbial pooh would seep out into your pelvis and you would need a coloscopy bag on the outside while it was healing OMG
14.) I asked if Endo was found actually on the Bowel she said we found the Bowel was so severely stuck to the Ovaries if we remove the ovaries these will have to be peeled off the Bowel, any how Sarah at the end of the day it's not important on what we find and the in's and out's it ultimately how you feel with the severe pain you are having. This is going to be an extremely difficult and complex op which means a higher risk of complications.
15.) I asked about alternatives (didn't mention about specialist treatment I just wanted to get out) and she said I can give you some medication that will stop you having your cycles they are injections called GNRH Analogue Injections that will turn you into the menopause and will over ride the ovaries you don't have to suffer all the nasty side effects from it as I can give you a form of HRT called Tibolone which is a form of synthetic hormone this is the most effective and recommended for women with severe endo even before menopause and surgery which in turn will help alleviate the hot flushes, nights sweats and other problems.she asked when my last period was and said as I was 2 thirds through cycle she wants to start the injections with my period in about 2 weeks time so have to make appointment.
That's it basically she was very shirty was getting abrupt and lent forward and said Sarah it really doesn't matter it is really in material at this moment in time what we found treating the xray's, Ultrasounds or whatever it is the Sarah we treat...god she was so patronizing when I left I went to the toilets to have a pee and I actually threw up in the loo and got in the car and sat there in tears my poor husband was so angry and also when he came in with me
Well ladies that says it all really...next step is getting to see GP for referral to see a specialist and find out about these GNRH Analogue Injections as I haven't a clue what they do side effects or nothing same as this Tibolone..