Deflated after post surgery appointment

[judda]

Anyone else waited months for their post surgery appointment and feel let down by everyone? My Laparoscopy was in May and my apt in September so I can barely remember all the questions I had back then! Anyway, as sympathetic as the doctor was she basically said they don’t give endometriosis a stage and they don’t refer for a second lap, even though my pain has doubled since the surgery. She also told me I have it on my bladder, but didn’t elaborate on what this means. I have it on my POD, both sides of my pelvic walls, on my womb and the uterovesical fold. I also have adenomyosis. She basically told me I am the way I am because of it all...tell me something I don’t know! She has referred me to the pain management team and has prescribed me some tablets for the first few days of my period. Is this similar to anyone else’s experience?

[AllthatGlitters]

Sounds like you are having a nightmare, feel for you. I have Adenomyosis too.

I thought many people have two or even more laps?

I am yet to have one but it would seem it depends what doctor you are under as to what advice they give you x

[judda in reply to AllthatGlitters]

Reading up on here I thought I would need more than one lap for sure! Instead I feel like they’ve ticked a box and off I go to deal with a lifetime of excruciating pain 😖 shame we don’t get the answers or advice we need xx

[AllthatGlitters in reply to judda]

Just a thought but can you change your GP and explain how you feel. I have a wonderful lady doctor and without her I don’t know what I would have done x

[KimPV in reply to judda]

Ask for a second opinion

[judda]

My usual GP is on maternity. These were the doctors at the gynae at the hospital. I’ll defo delve a little further with this as I am a bit bothered about it being on my bladder x

[Char411]

Yep happened to me too. Fobbed off once again, we wait years for a diagnosis finally get one then get fobbed off with more pain killers or the Mirena Coil. So so frustrating

Xx

[judda in reply to Char411]

Same here. I’ll do anything not to have the coil, the word ‘coil’ fills me with dread as my body rejects everything!! Hope you are managing your pain ok though ❤️xx

[Char411 in reply to judda]

I refused the Mirena Coil too. I had my lap in May and up until a few weeks ago had been in more pain than pre surgery. I am taking my pill back to back at the moment and although it hasn’t stopped pain or symptoms it has stopped the bleeding and period cramps.

Some days I feel really bummed out knowing nothing can be done and I have to live in pain and other days I try to be optimistic that I can manage the disease. I am so thankful for this website though and having a place where you know others really understand.

How the pain management will help for you xx

[judda in reply to Char411]

Yeah I’m going to start taking my pill again too, after being off it for six years! I think it’s easy to get down about the pain but at least we can all talk to each other on here and it’s good to know people are going through the same thing too. Thanks for taking the time to reply to me xx

[Char411 in reply to judda]

Let’s keep each other updated whether it be rants or improvements xx

[judda in reply to Char411]

Defo! Xx