Hi I am a member of another group on here, but I am wondering if I have aEDS. I saw a woman on the nhs quizzes who had something like this and I thought that sounds like me. I have IBS and have been told by GP after many years of fatigue and aches and pains I have fibromyalgia. The IBS has got worse and worse and I now have diverticulitis too. I have been reading about EDS and can either now do or could do most of the diagnosis movements p, my daughter can too. As a child I could put both my legs up above my head when sitting then wrap my feet around my neck. Non of my friends seemed to be able to do this. My friends nearly fainted when I could pull my wrists out and make them pop, like people do their knuckles. My hips and knees have always clunked/crunched. My knee on the right side and ankle often just give way and both my wrists and ankles click and get stuck sometimes. My elbow cracks badly, GP says it’s tennis elbow one side and golfers, the other, it looks at times and I have to get someone to pull my arm to unlock. My thumb can bend back and get locked to and has to be pulled to crack and go back in. I can’t do sit ups and a teacher once said in PE and a yoga instructor that I have a small curve to my spine. I noticed on some of the posts childbirths can be quick and easy, my second child was born extremely quickly and unexpectedly in about half an hour. My first pregnancy I was very big, only being 5ft 3 I looked like a ball on legs, but I had to buy pregnancy girdles as the pain in my pelvis was unbearable and that was all the GP suggested. So much so I could barely walk when I became overdue, and would soon feel very faint.
My daughter has Hypermobility more than me and could do the splits at age 4 without any practise. Her elbow is at a very strange angle when she puts her arm straight and so is mine but to a lesser degree but we can both rotate the arm further than anyone else we know.
I am clumsy and often trip on nothing,was terrible at sports, never seemed to have the habpnd eye coordination.
Lastly I have really bad pains in my hip and groin area and can’t go to the gym and use the equipment as my knees, hips and arm joints become very painful. I’m sorry for long post but I’m desperate to find out what is wrong. I understand like everything else I have there is no cure and not much help from GP and consultants. Thank you Jackie xxx