great gastro info & support

[Barnclown]

Hello all

Following on from my current saga of investigations into the flare of my chronic lower GI symptoms which began last October....I've just finished the first week of putting into practice my new gastro/uro/gyn physio's instructions...which has been interesting...am doing ok, I think🤔. it's just such a relief to know there are 2 main causes of my nether-region prolapses & my lifelong upper + lower GI probs: EDH + immune dysfunction (infant onset lupus + early onset sjogrens) & I'm hoping to avoid referral to gastro this time (although I know I'll have to discuss the prolapses at my March urology clinic & my May gyn clinic...As well as inevitably discussing both my GI stuff + prolapses with rheumatology in March and immunology in April)

Meanwhile, now that we've done enough investigations to have a shrewd idea of what's been going on inside down there all these decades (haha), I've let myself seek out a good gastro website...and I think I've found a real 🌟 !

See what you think...the link is below. Most important: connective tissue disorders (inc SLE & SS) are mentioned several times in this website's sections on various gastro topics! because my chronic upper GI probs were all thoroughly investigated & diagnosed (with effective treatment plans set up) many years ago, i feel i can say this org's info on upper GI matters is pretty good...and the info it gives about lower GI matters seems just as sound to me

I'd love to know what you think of this website! So many of you are expert patients...your thoughts make all the diff to me

initially, i felt slightly irritated & skeptical at first re the 'FUNCTIONAL' part of this org's name, but, having read through their info, i think this term doesn't actually mean the org is discounting the serious implications of 'functional' gastro conditions: quite the opposite...

International Foundation for Functional Gastrointestinal Disorders Website:

iffgd.org

🍀😘 Coco

[Hidden]

Coco, had a brief look yesterday and it did look interesting to me. Anything that helps you is the main thing. Will take a further look later. So pleased you're doing well 'm'

[Barnclown in reply to Hidden]

Thanks v much...wishing you all the best, mabsie 👍🍀😉😘

[LoopyLou72]

Thank you for sharing the link as its really interesting. 😊 xx

[Barnclown in reply to LoopyLou72]

You're welcome loopy. By the way: I just replied to your prolapse post...have you seen what the Mayo clinc website has about

cystoceles (bladder prolapse)

mayoclinic.org/diseases-con...

rectoceles (posterior prolapse)

mayoclinic.org/diseases-con...

I think the info & diagrams etc there are really helpful!

🍀🍀 coco

[LoopyLou72 in reply to Barnclown]

Thank you as that's a really good article. I'm pretty sure the prolapse has probably been caused by over straining due to faecal impaction. I'm also having to strain to get pee out as the bladders in retention. I've got 4 bladder surgeries coming up but didn't realise prolapses are dealt with by Gynae. Hopefully I'll kill two birds with one stone as I was originally referred for a hysterectomy. I'm not sure why I have left side buttock pain though, like I'm sitting in a nerve, so I'm hoping that's nothing to do with it and will pass. Stabbing pains are on and off so I'll live with that. It's amazing what our bodies go through. I've got a follow up Gastro appointment soon as well and as I rocking they're the ones that started the last thing off and were ready to discharge me I'm glad I put my foot down. Xx

[Barnclown in reply to LoopyLou72]

Good going: keep this up...am so glad you like the IFFGD site's info: it seems really excellent to me, but your approval & enthusiasm is very encouraging! Take care..please to keep us posted 🍀 XO