Following on from my current saga of investigations into the flare of my chronic lower GI symptoms which began last October....I've just finished the first week of putting into practice my new gastro/uro/gyn physio's instructions...which has been interesting...am doing ok, I think🤔. it's just such a relief to know there are 2 main causes of my nether-region prolapses & my lifelong upper + lower GI probs: EDH + immune dysfunction (infant onset lupus + early onset sjogrens) & I'm hoping to avoid referral to gastro this time (although I know I'll have to discuss the prolapses at my March urology clinic & my May gyn clinic...As well as inevitably discussing both my GI stuff + prolapses with rheumatology in March and immunology in April)
Meanwhile, now that we've done enough investigations to have a shrewd idea of what's been going on inside down there all these decades (haha), I've let myself seek out a good gastro website...and I think I've found a real 🌟 !
See what you think...the link is below. Most important: connective tissue disorders (inc SLE & SS) are mentioned several times in this website's sections on various gastro topics! because my chronic upper GI probs were all thoroughly investigated & diagnosed (with effective treatment plans set up) many years ago, i feel i can say this org's info on upper GI matters is pretty good...and the info it gives about lower GI matters seems just as sound to me
I'd love to know what you think of this website! So many of you are expert patients...your thoughts make all the diff to me
initially, i felt slightly irritated & skeptical at first re the 'FUNCTIONAL' part of this org's name, but, having read through their info, i think this term doesn't actually mean the org is discounting the serious implications of 'functional' gastro conditions: quite the opposite...
International Foundation for Functional Gastrointestinal Disorders Website: