still here

[CLB1125]

this migraine will not go away! I guess I’m going to have to call my doctor tomorrow. It’s 12:39 am here and I’m sitting in the dark trying to figure out what triggered this. I took my shot on the 5th that is supposed to stop them for a month. Maybe it’s the fear of the unknown. My doctor is moving so I’m scheduled to see a new doctor. But I don’t see him until February, because that’s how booked up he is. I hate starting over. My therapist says he will have my records, that’s true but he doesn’t know me! What if I wait until February and find out i don’t like him? What if i need a ew form filled out for my migraine medication and he doesn’t agree with the treatment? So many questions just keep circulating in my head!

[012703060610]

Having lost my psychiatrist to retirement rather suddenly, I found myself in a huge bind earlier this year. I had a month to figure it out until he could no longer refill anything for me. He had wanted to work one more year but his wife fell quite ill. This is all very triggering for me as I already have enough time getting all of my meds from several doctors and explaining my physical health history should literally just be a college course at med school. I immediately called and set up 5 appointments with new providers or provider practices. I met with 4 total. I thought I was being taken in by a NP who treats a lot of medically complicated patients, then she backed out last minute. however, she got me to the right doctor saying I needed the full MD to be able to work and understand my physical health. I miss my old provider desperately as we had known each other for 20+ years. He also did therapy while being a psychiatrist so I always felt like I had both covered. We would meet once a month for an hour. Now I see my psychiatrist every three months for 10 minutes and am in weekly therapy. I guess I'm trying to say don't spend the time on fretting for a new provider. I would call as many places to see if you can be seen earlier....you don't want to find yourself in a bind in February when you do have time on your side right now. It can rule in or out providers at the same time. I know this may not be possible if insurance issues, etc.....but I decided the day I found out, that I knew I needed to focus on a replacement fast. My PCP does not agree with my treatment plan from psychiatrist and rheumatologist. So I am blessed that my insurance at the moment isn't requiring referrals. Migraines are enormously painful and debilitating. I am so sorry for your struggles at the moment. I too am up but with GI distress.

[CLB1125 in reply to 012703060610]

That’s the problem with this, there aren’t any other neurologists near me. I live in the middle of nowhere! Literally, there are only a handful of neurologists within 200 miles of me and most of them won’t take new patients. And the ones in the next state I can’t see because of my insurance. I can’t go back to constant migraines again, I just can’t 😢

[012703060610 in reply to CLB1125]

Ah I get it. I fly across the country for my rheumatologist, which is just insane. He is the only competent person with all of my autoimmune diseases and how they interact. I know paying for an office visit out of pocket can be brutal, but I have done this when needed. I can't think of a better way to spend money than on health if needed. Hopefully you can get some help in the AM. I'm about to go onto a state based exchange and know I'll need to keep him and pay out of pocket. I've been able to work locally to get bloodwork though keeping my costs down. It's kind of like a back up rheumatologist in state and then will be in network. She does my labs and will write a script if I ever some how need it.

[Jennblank7734]

It makes me sad you still struggling with pain. I know well how it complicates other issues you are dealing with. I feel for you about seeing a new dr. My pcp left a couple months ago and I haven't been able to find a state of mind to get a new dr. I just fired my psych after a year and a half of building a history with him. I need these doctors. You said February? Oh I just realized that. Maybe talk to his staff about options. A call list for openings. A different doctor that can see you sooner. I'm in a panic trying to wait for the 1st to have my insurance fixed. It's so far away. I can't imagine til February.

[CLB1125]

the pa I am seeing now is an hour and a half away. on a good day. if it's a day we get hammered with snow and ice it can take even longer. then if I need to reschedule it will another long wait.