Just Another Day In Paradise??

[KenKit55]

Hi ,I'm from Louisiana. Our oldest daughter,her husband and my grandson moved to Maine in October 2021.

I was up there from Dec thru Jan. 1st time ever up north for Xmas, New Years and experience Winter...and Actually Snow falling ....nothing like here in Louisiana!! I miss them so much. I can't really afford to.do much. I'm in debt from going up there. I'm on SSDI since May of 2022. I'm a wreck. My husband is more like a roommate. I can't leave him, he needs me financially 😪

So anyway. I had Fibular Free Flap Jaw Reconstruction in.Aug of 2020. Now I think something is really wrong in my mouth. I pray it's not serious. Not sure if I'm supposed to smoke after this type of surgery. I've read where the Flap can fail. The tissue in my mouth from my fibulsr is what I'm talking about.

[Marysblue]

Hope you get an answer soon to your medical problem and aren't in a lot of pain from that.

[012703060610]

Hey there, I can relate SO much. While this group is focused on mental/emotional issues, many of us have physical issues driving some of the mental anguish. I have two debilitating autoimmune disorders along with a stomach that doesn't work (it is paralyzed). Last summer I had to get a huge oral surgery and it didn't work. They will be taking out many of my teeth this summer including those two big front ones. My bones are decaying so I may actually be looking at dentures at age 43. OYE. I am in appeal with SSDI and my husband sleeps in a different room. I am up and down all night and all hours of the day. I am hoping you will see your surgeon ASAP. Getting something on the calendar may help calm the fear, but I know too well when it comes to these delicate areas of the body....it can be scary as ever. In the end, I always want to know so I can get a grip on what is actually happening with my body. For years, I didn't go to the doctor and I continue to beat myself up for it. While my husband doesn't need me financially, the ex one does for child support. Who knew disability money could be used for that too! Does anything relieve the pain? Warm compress? I so wish I could help and lend a hand!

[KenKit55 in reply to 012703060610]

I hope you get approved for SSDI. I had to get an attorney.My jaw doesn't hurt that much. My mouth has felt funny from Aug of 2020. I would tell them my mouth feels swollen. They just more or less blow me off. I'm on medicaid, I used to work for Walgreens before finding out about this radiolucent lesion in my jaw on Feb 4th 2020. I hadn't been to the dentist in 3 yrs or so. My lower mandible had no roots only my canines hanging there...lol. Not to mention 8 days after my surgery I had a heart attack and they found 2 saddle Pulmonary Embolism in my lungs. It must have started with a blood clot in my leg.🙃 I was in the hospital a total of 25 days. Till Aug 19th in the hospital. Till the 28th at the rehabilitation hospital. Had to learn to walk, talk and eat again. Right now I'm reading The Diary Of Anne Frank. She write in her diary to Kitty in her letters and they all have dates. I know the outcome...my nickname is Kitty. I spend a lot of my time in a recliner. Need to lose weight. I will get up and do something about it. Just so depressing. I'm sure reading this book isn't helping my situation. I'll be okay. It can't get any worse I pray. I see an oral surgeon on Monday. The surgeon who did my surgery in 2020 is no longer a oral surgeon. I'm being at LSU Faculty Practice. Can't afford it if I can't use Medicaid. I have partials since November of 2021. I went without those teeth 15 months. Sometimes I'd rather them out than in, 😆

[012703060610]

That is one heck of journey! You need to know one thing for sure....you are a survivor! I am praying for SSDI to come through. Will hire attorney if I need to appeal twice. My ex has me in court due to disability and trying to get more time with kids. Funny....when I lived back East, I saw the Uconn Faculty practice. I'll fly back this summer for the horrific surgery and time to heal. I am now in a State with terrible medical care. OYE. To learn to do all of those things over again is not just commendable.....it is heroic. So many others would have given up. Please keep me posted!

[KenKit55 in reply to 012703060610]

Hi, I will. I have other sorrows than August 2020. July 2023 will be 40 yrs since I had to place my 1st born up for adoption. Joey's autistic, so my parents making do this I guess was meant for a reason. I was dating my now husband back then. Then in April of 83 or so, my mom brings me to her Dr. He was her Dr since she was a teenager...well I was 4 or 5 months along. I was put in an maternity home. I would go home on the weekends...so funny...not. I've been married since Nov of 84. We have 3 children. Sarah is 37. Royce is going on 36 and Carole ann is going to be 33 in December. Sarah and Royce are 15 months and 2 wks apart. Anyway, I should be a spokesperson. I'm just so screwed up in the head to think straight now. 🙃 Don't know if you've ever been to New Orleans? Mardi Gras is going on right now. I don't even do that anymore. We don't go anywhere really. I told my husband I want to see Santana at the Jazz Fest on May 4th. I've never been there either. Born and Raised down here. We live in Metairie. I couldn't possibly live in New Orleans. It's so sad how crime has taken over. I think their really trying to stop it now. 🛑 How many more people have to die because of all this stuff ??? YOU TAKE CARE!! I think of my grandson Kennison everyday.

Kennison my grandson

[012703060610 in reply to KenKit55]

PS-precious pic of precious moments Grandma!

[012703060610]

That is a lot to carry around. I am also on the PTSD forum which is a little less active, but has some other ways to manage mental health. I find both forums useful. I can imagine in the early 80s what that would have been like. I am so sorry. It is like they hid you away like Anne Frank...like you are reading! I have three kiddos. They are 11, 10 and 5. The first two are girls 13 months apart so I understand the closeness in age! I have been to New Orleans a few times for work conferences. Never for Mardi Gras though. Those years have passed for me too! I am on heavy immunosuppression meds so big crowds are a no no. AND May 4th is my birthday, so if you can party for me, please do! I really appreciate you sharing your story and journey. Thank you for making me feel not "alone" today.

[KenKit55 in reply to 012703060610]

Hi. My BD is May 1st. I was born the day the communists celebrated Arms Day. Hopefully I get to JazzFest. The crowds can get really thick. I've really kept myself isolated since March of 2020. I was like that before Covid. Monday I see another oral surgeon. I had my teeth cleaned Monday. I have tissue in my mouth from my fibular bone. It's been kinda swollen and it's white. We smoke Mary Jane, I really hope doing that isn't messing up my mouth. I don't know if this is repairable. That surgery was no fun. One of these days I'll get a tattoo to cover that scar on my left calf.