this Is just tough

[Adamj]

I’m tired of all these body sensations everyday tired of it feeling different every week. I get these feelings when I’m just sitting/laying there this weird feeling that runs through my body it freaks me out I can’t even explain it it’s not adrenaline it’s litterally like someone opens up a faucet and I get this weird sensations. Then I can fee the muscles in my arms tightening up. That buspar really messed with my thinking and such. I sit here feeling like I’m dying from these weird sensations then the brain fog and not feeling real starts all over again laying there being dizzy and lightheaded. I feel so lost feel like my world went from a big vast open landscape with everything to a little box of nothing. I do have some moments of calm and slightly feeling like my self. I’m trying to give myself credit of how far I’ve come even if it’s just little things like being able to drive without panicking. I think I may of found a good therapist seemed to of really felt like he knew how I was feeling. I go to the neurosurgeon on Thursday. I just don’t know all these sensations just frustrate me then I did research about Chiari malformation and like it really freaks me out because a lot of my weird symptoms go along with it but my symptoms are intermittent. One of the weirdest things I don’t really notice a fast or pounding heart anymore I get all these weird anxiety symptoms without the pounding/racing heart lol. I wish I didn’t have to try and figure things out. I may take a step back from HU because I feel like I’ve exhausted all of you.

[Dolphin14]

Adam

If you feel you need to step back for you I understand.

This is a very difficult time for you and our community is about support. We may not have the answers but listening with an open heart and letting you know we are routing for you is what we can offer.

I'm here to listen Adam.

🐬

[Adamj in reply to Dolphin14]

Thank you I’m just down and over fighting to stay afloat or we’ll even live

[Dolphin14 in reply to Adamj]

Of course you are. I can't imagine too many people getting a medical diagnosis and not worrying. We can read all we want about the positives of any condition we are diagnosed with but I think human nature is to focus on the scary parts. It's easy to say to someone that it will be Ok. No one has a crystal ball so I'm not sure saying that during a time of high anxiety does much good.

I work in the medical field. I just want you to know this is a fear that people go through and the team is supportive.

Listening is a huge part of making things a bit easier for someone

[Adamj in reply to Dolphin14]

Yes that does make sense. Thank you.

[Dolphin14 in reply to Adamj]

You are welcome. Don't go anywhere. Stay and unload all you want. Don't hold things in.

[Arymretep]

If you feel it helps you please stay with us, we are all here for you 👍

[Adamj in reply to Arymretep]

Thank you!

[Lizzo30]

Hi Adamj are your symptoms due to medication ?

[Adamj in reply to Lizzo30]

Sadly no I stopped everything but Zyrtec.

[Lizzo30 in reply to Adamj]

Did you taper off or stop suddenly?

[Adamj in reply to Lizzo30]

I like have tapered off the buspar though from what I’ve been told and read about it weird symptoms could linger I don’t know I’m just frustrated

[Lizzo30 in reply to Adamj]

That drug has been taken off the market so I am guessing you are having withdrawal symptoms which can be alarming but the main thing you need to get through this is patience because it can take a long time , I know I have been there, you will get through this you are young just have a sensible diet and lifestyle and patience

[Adamj in reply to Lizzo30]

I was only on it a month

[Lizzo30 in reply to Adamj]

Yes but if you are supersentive - as I am - you may still struggle

[Adamj in reply to Lizzo30]

Ugh I seem to be sensitive to everything

[Agora1 in reply to Adamj]

Adamj, we have an "oversensitized" nervous system.As Lizzo stated, give it time and stay positive my friend xx

[Adamj in reply to Agora1]

I’m trying hard to be positive but all this doom and such it’s frustrating and can’t stop thinking about the Chiari and how it can change so much of my life. Im tired of being in pain and depressed and anxious. Warm showers do nothing for the pain only seem to make it worse ugh

[Agora1 in reply to Adamj]

I understand Adam..I wish I could help you get around these thoughtsthat you are having. As I understand, It wasn't a full absolute diagnosis,

just a possibility. But know that possibilities can have flaws in them.

Only when you see that Neurosurgeon will you know the truth. Any date

on that yet?

Things in our body sometimes look like what they're not.

I truly hope you get a reprieve from this issue. xx

[Adamj in reply to Agora1]

I go Thursday morning to the neurosurgeon

[Agora1 in reply to Adamj]

Adam, I will be with you in thought that day.You are never alone my friend. Good Luck and

let us know when you are back. xx