Back again guys ! With an update on my most recent bloods -
See copy of my last post below ⬇️ for full story…
UPDATE -
So I’ve had my latest bloods back whilst still being on the 25mg reduced dose for about 8 weeks now. From my latest results my levels look to have raised and dropped slightly in all the right places…
blood test results are
09/02/2025
T3 - 5.1 pmol/L (normal range 3.1 - 6.8 pmol/L)
THYROXINE 16 pmol/L (normal range 12 - 22 pmol/L)
THYROID STIMULATING HORMONE
1.81 mu/L
TSH levels normal (normal range 0.27 - 4.2 mU/L)
I’m still experiencing the jitters in the morning, restless sleep, really itchy skin and also heat intolerance.
I also had a panic attack the other day (first one in a long time)
So my question is do I come off the meds??
and if so could it of been dequervains?
————————————————————-
PREvious POST RECAP
I was diagnosed with underactive thyroid October 23, original levels were
tsh 22 (0.27-4.2)
t3 4.8 (3.1-6.8)
t4 9 (12-22)
tpo- 9.3 (0-34)
tgab - 456 (0-115)
I was put onto 75mg of Levo. as you can see I didn't have raised levels of TPO but my thyroglobulin antibodies were raised.
previous to be underactive I had a nasty period of symptoms that were catastrophic....
symptoms included panic attacks, hives, anxiety, insomnia, palpitations, heat tolerance... it was an incredibly frightening time of my life where I felt completely out of control of my body. after lots of research I now believe I was in a HYPERthyroid state before going under active.
ive cut out gluten, dairy and mostly processed foods. . . ive also been supplementing with 3000iu vitamin D as my blood tests came back low, this has also improved my b12 and ferritin levels. I also have managed to lose 2 stone in weight.
over the course of the last year ive had bouts of anxiety and feelings of being overactive again (albeit much less frightening)... so the doctors have been reducing my levo.
ive gone from being on 75mg to now just 25mg.
I had my bloods privately taken again in when I was reduced to 50mg July 24 ... results where
tsh - 3.11 (0.27-4.20)
t3- 5 (3.1-6.8) t4- 15.7 (12-22)
tpo - 16.7 (0-34)
tgab - 253 (0-115)
then I had my bloods done again recently (privately ) January 25 whilst being on just 25mg
results as follows
tsh- 2.27 (0.27-4.20)
t4- 13.9 (12-22)
t3- 4.8 (3.1-6.8)
tpo- 13.2 (0-34)
tgab- 36.5 (0-115)
as you can see im not optimal but im still in range and my tgab antibodies have gone down significantly. I feel like going up in dose brings on insomnia, jitters, heat intolerance and anxiety.
I feel like im going through phases of feeling tired and achy but then feeling great but then having periods of also feeling anxious, jittery and intolerant to heat...
I don't know if I need my meds upped or lowered im completely confused and I hate feeling like this, my sister mentioned something called dequirveins thyroiditis? a type of thyroid issue that is brought on my a virus or similar which can cause a period of being overactive, then moving into underactive and then eventual euthyroid (back to normal) this can take up to 4 years.
could I be going through this ? I could really use some expert advise on this as to wether I should be trialling no medication at all? my Gp's are useless as they don't know much about it and only care about what my tsh looks like.
is it unusual for antibodies to go back to normal levels ?
is it unusual not to have high tpo?
has anyone experienced dequirveins?
any help would be a appreciated xx
lara
Written by
thepanicpigeon
To view profiles and participate in discussions please or .
Well, I wouldn't come off them if I were you! You're FT4 is very low, and your FT3 is not much better. If you stopped the levo they would drop even further.
You have Hashi's, even if your TPOab aren't high. Just having high TgAB is a sign of Hashi's. I'm the same. I don't know how usualy it is, but it's not unheard of. And antibodies fluctuate all the time so not unusual for them to go back into range. It doesn't matter what the actual number is, if you've had just one positive result you have Hashi's, and that doesn't go away.
De Quervain's is not considered to be an autoimmune disease, so no antibodies.
That's explained by having Hashi's. Do you know how Hashi's works? You have hyper - or near hyper - phases, and hypo phases, and levels tend to jump around independant of your dose, as the thyroid is slowly destroyed, and stocks of thyroid hormone are haphazardly dumped into the blood.
the only way to know if stopping levo ( for the moment ) improves how you feel is to try it .
however , if autoimmune hypo was the cause of you going hypo , then at some point you can expect to need to take levo again ~ and the raised TGab do point to autoimmune disease being the cause, even though they have now gone down again, (there are some other causes of TGab , i can't remember what they are off the top of my head , but that is why NHS mainly use TPOab to confirm autoimmune hypo, not TGab ),
so perhaps just stop it for couple of days and see how it feels ,,, if it feels better , then consider staying off it for about 6-8wks and then retest privately so you can see what TSH / fT4 / fT3 are doing . then re-asses.
personally if i was trying this , i would just do it by myself ,,, if you involve GP at this point , they will stop the repeat prescription and you may have difficulty getting them to prescribe it again until you are very hypo ,,, whereas if you just do it for yourself , and keep prescription going , then you can restart levo as soon as possible if you start to feel hypo again.
if you do stop levo , you should keep a very close eye on thyroid bloods every 3-6mths , either privately, or via GP as it is likely that you will go hypo again at some point.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Could this be Hashimotos?
is this hasimotos 
Help interpreting abnormal thyroid results please!
Tgab elevation low t4 
