Thyroid symptoms or Parkinsons, an update to my... - Thyroid UK

Thyroid UK

141,243 members166,489 posts

Thyroid symptoms or Parkinsons, an update to my previous post

Joat_the_cat profile image
6 Replies

A huge thank you to all the people who gave me such good advice!

My FT3 is slightly up and my FT4 is slighty down, result! Going in the right direction.

My Vitamin D is improving, I will continue to use BetterYou sublingual sprays (D3+K2) for this, and magnesium.

My Vitamin B12 hasn't moved much, I use a B12 complex daily (Liposomal Vitamin B Complex Softgels suggested here) and have recently added a BetterYou B12 spray in hopes it will help.

I still have muscle weakness and pain, and I am struggling with this, I'm shaky sometimes. But mentally I am much improved, with less anxiety.

September and November results below.

All tests done fasted and bloods taken 9am.

Medichecks November 23

TSH 0.839 mIU/L (0.27 - 4.2) 14.5%

Free T4 (fT4) 23.6 pmol/L (12 - 22) 116.0%

Free T3 (fT3) 5 pmol/L (3.1 - 6.8) 51.4%

T4:T3 Ratio 4.720 

Thyroglobulin Antbodies (TgAb) 13.9 IU/mL (≤ 115)

Thyroid Peroxidase Antibodies (TPO) 17.3 IU/mL (≤ 34)

C-Reactive Protein (CRP) 4.46 mg/L (0 - 3) 148.7%

Folate - Serum 17.6 ug/L (8.83 - 60.8) 16.9%

Vitamin B12 78.6 nmol/L (37.5 - 188) 27.3%

Vitamin D 117 nmol/L (50 - 250) 33.5%

Ferritin 169 ug/L (30 - 650) 22.4%

Medichecks September 23

TSH 0.325 mIU/L (0.27 - 4.2) 1.4%

Free T4 (fT4) 25.3 pmol/L (12 - 22) 133.0%

Free T3 (fT3) 4.5 pmol/L (3.1 - 6.8) 37.8%

T4:T3 Ratio 5.622 

Thyroglobulin Antbodies (TgAb) 13.4 IU/mL (≤ 115)

Thyroid Peroxidase Antibodies (TPO) 11.2 IU/mL (≤ 34)

C-Reactive Protein (CRP) 3.59 mg/L (0 - 3) 119.7%

Folate - Serum 32.6 ug/L (8.83 - 60.8) 45.7%

Vitamin B12 77 nmol/L (37.5 - 188) 26.2%

Vitamin D 83.9 nmol/L (50 - 250) 17.0%

Ferritin 176 ug/L (30 - 650) 23.5%

Written by
Joat_the_cat profile image
Joat_the_cat
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Joat_the_cat profile image
Joat_the_cat

A copy of my results over the last few years, hoping its big enough to be read OK.

results spreadsheet
SlowDragon profile image
SlowDragonAdministrator

Your folate remains low

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

if folate is still low after this ….consider adding a separate folate 2-3 times a week as well as daily vitamin B complex

Like many thousands of thyroid patients you are likely to benefit from slight reduction in Levo and addition of small dose of T3 prescribed alongside

Joat_the_cat profile image
Joat_the_cat in reply toSlowDragon

Thank you! I did wonder about T3 despite the difficulty in getting it prescribed. I will broach this with my doctor when I manage to get an appointment. I have the list of sympathetic endocrinologists, will check for a north west area one.

SlowDragon profile image
SlowDragonAdministrator in reply toJoat_the_cat

GP will no doubt deny anyone gets Liothyronine on NHS

Here’s evidence that they do

Over 64,000 prescriptions in England in last year

Typically 6 prescriptions per person per year

openprescribing.net/analyse...

Initially has to be prescribed via endo

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

Wait on NHS is at least a year

thyroiduk.org/contact-us/ge...

Joat_the_cat profile image
Joat_the_cat in reply toSlowDragon

I will check out those links. I believe I have to stop taking B12 complex, with biotin, after 4 months in case of toxicity, so I’ll do as suggested in your previous reply for a couple of months before restarting complex.

SlowDragon profile image
SlowDragonAdministrator in reply toJoat_the_cat

You only need to stop vitamin B complex a week before any blood tests because biotin in B complex may affect lab test equipment (many tests use biotin in test equipment)

In that week you stop vitamin B complex take a separate Methyl folate instead

Many thyroid patients find they need to supplement vitamin D, magnesium and vitamin B complex daily to maintain good levels

Not what you're looking for?

You may also like...

Latest results

I’m currently on 125mcg of levothyroxine. Overall I’m feeling much better with most bothersome...

recent blood test

Hello everyone I would appreciate your thoughts on my recent blood tests. I had been advised by...

improved blood work, am I a good converter or do I need support?

I’m still not out of the woods yet, but I’m happy to see some improvement. Here’s my latest...
Jgoodwin977 profile image

Hypo and cholesterol advice please

Hello I’m looking for some advice please prior to a GP appt. I’ve had a phone call with the GP and...
Loubylou17 profile image

cytomel labs update

I did the calculation TSH 0.14 mIU/L (0.45 - 4.5) -7.7% Free T4...
MarteeAnn profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
Jaydee1507 profile image
Jaydee1507Administrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.