is this hasimotos : I would be grateful for some... - Thyroid UK

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is this hasimotos

Millienoddles profile image
17 Replies

I would be grateful for some advice please these are the labs back

TSH 1.090 mIU/L (Range: 0.27 - 4.2)

Free T3 4.3 pmol/L (Range: 3.1 - 6.8)

Free Thyroxine 13.6 pmol/L (Range: 12 - 22)

Thyroglobulin Antibodies 302.00 kIU/L (Range: 0 - 115)

Thyroid Peroxidase Antibodies 101.0 kIU/L (Range: 0 - 34)

they implied they were normal. Is this not Hashimoto though and what’s the best way to manage this thank you

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Millienoddles
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17 Replies
SlowDragon profile image
SlowDragonAdministrator

yes high thyroid antibodies confirms autoimmune thyroid disease also called Hashimoto’s

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Your GP should do coeliac blood test BEFORE you consider trialing strictly gluten free diet

Free T4 (fT4) 13.6 pmol/L (12 - 22) 16.0%

Free T3 (fT3) 4.3 pmol/L (3.1 - 6.8) 32.4%

TSH is not reacting to low Ft4 and Ft3

Presumably you are not currently self souring or taking any prescribed any replacement thyroid hormones? ……or thyroid glandulars?

ESSENTIAL to test vitamin D, folate, B12 and ferritin

Low vitamin levels tend to lower TSH

Millienoddles profile image
Millienoddles in reply toSlowDragon

thank you so much. I’m very grateful for your reply. I don’t think conventional medicine will help me but perhaps I should think about some thyroid glandulars x

SlowDragon profile image
SlowDragonAdministrator in reply toMillienoddles

This is really helpful. I’m not on any thyroid medication but I’m thinking maybe some thyroid glandulars might help x

Always best to start on levothyroxine

Standard STARTER dose is 50mcg

Retest 6-8 weeks after each dose increase

And maintain GOOD vitamin levels

Rapunzel profile image
Rapunzel

Hi Millienoddles.

Well, it certainly looks like it, based on your antibodies. But your TSH is reasonable. What medications are you taking, if any? It's not clear from your earlier post (albeit four years ago!).

You have the additional catastrophe of CFS/ME and diagnosing that as quite separate from thyroid conditions can be a struggle for a typical first-line medic, certainly in the UK.

What meds are you taking? Both T4 and T3 are low and near abnormal; you should be taking something.

Just FYI I found out that I had Hashimoto's after a self-funded MRI. I can't remember if I had antibody tests; but Mary Shomon, a thyroid patient advocate in the US, lets us know that

The presence of these antibodies indicates that you may have Hashimoto's disease, but it doesn't necessarily indicate that you have hypothyroidism.7 You may have TPO antibodies present with normal TSH and free T4 levels, which suggests that your thyroid is functioning as it should.

If thyroid tests are normal, treatment with thyroid hormone is unnecessary, but there are things that may potentially improve the underlying thyroid autoimmune condition.

These include:

Avoiding nicotine, including second-hand exposure

Consuming 100-200 mcg of selenium per day

Boosting omega-3 fatty acids intake

Keeping vitamin D level in the normal range -

verywellhealth.com/hashimot...

Have a cuddle from an internet stranger. It has taken me a long time to feel remotely well, just with hypo/Hashi's. I can only imagine what you're going through. Wellness wished for you x

Millienoddles profile image
Millienoddles in reply toRapunzel

thank you for replying. This is really helpful. I’m not on any thyroid medication but I’m thinking maybe some thyroid glandulars might help x

radd profile image
radd in reply toMillienoddles

Millienoddles,

The trouble with taking thyroid glandulars before diagnosis is they can make you feel initially better but lab-wise risk muddying-the-waters so to speak, so could make any later diagnosis difficult.

Redditch profile image
Redditch in reply toMillienoddles

Hey you.

Important to remember. Hashimoto's is an autoimmune disease.

Your immune system is attacking you

At the moment it's not attacking your thyroid

But it could be giving you sinus issues, gut issues, hair issues, skin issues.

Thyroid glandulars will not help with this

If you want to do something to calm your immune system down before it gets to your thyroid you can

Give up Gluten

Give up Dairy

Use flouride free toothpaste

Drink filtered water

Avoid nicotine

Take vitamin C and Selenium

Get your vitamin D, folate and ferritin tested

(Medichecks) And supplement those until you're within range

These things should calm your immune system down and maybe stop you needing thyroid support for a year or so

Millienoddles profile image
Millienoddles in reply toRedditch

this is amazing thank you. Would a lack of nutrients i.e. someone malnourished with this have an impact on the thyroid antibodies? X

Redditch profile image
Redditch in reply toMillienoddles

Don't forget there are loads of other antibodies, you might have a load more.

Yes, a lack of nutrients could compromise the immune system. Selenium and vitamin C are in vegetables so if you're not well nourished you would struggle to support a healthy immunity.

Depending on your financial situation, 100ml of pomegranate juice in the morning is a wonderful shot of antioxidants!

If you don't have the cash get 1g vitamin C from the supermarket and take one a day

radd profile image
radd in reply toMillienoddles

Millienoddles

Depending on how advanced the autoimmune state is, sometimes you can manage it.

It’s about calming your immune response and reducing underlying inflammation through various means such as adopting a g/f diet and supplementing selenium, etc.

A great read for better understanding is ‘The Root Cause’ by Isabella Wentz.

Millienoddles profile image
Millienoddles in reply toradd

thank you grateful for your reply

Tina_Maria profile image
Tina_Maria

The antibodies and low T4 / low T3 could point to Hashimoto's/hypothyroidism. However, as others have noted and as your thyroid hormones are so low, your TSH should be a lot higher with your hormones that low.

A low or normal T4 result with a low TSH could be indicative of central hypothyroidism, which means that your pituitary feedback might not be working well. I have attached a publication for you

sciencedirect.com/science/a...

In any case, this should really be investigated further.

Do you have symptoms or how do you feel?

Millienoddles profile image
Millienoddles in reply toTina_Maria

Thank you x

Sleepman profile image
Sleepman

How do you feel? Any symptoms?

High dose of biotin (vit B7) can change thyroid blood results too. Many find benefit from stopping gluten and some lactose. You can be gluten intolerant even if your celiac blood test is clear. Not always gut issues can just make you tired and brain foggy.

Good luck

Millienoddles profile image
Millienoddles in reply toSleepman

Thank you x

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