I am after some advise regarding my symptoms and my private blood test results. My symptoms over the last almost 10-20 years include: excessive hair loss - it does grow fast, but snaps easily; voice has become a little hoarse; constant tinnitus; fatigue, constipation , brain fog, (pains down my right wrist although this has stopped); weight gain, puffy eyes which appeared over night when I was 42 (not sure if significant and sometimes will leak for up to 3 weeks then stop). , an anxiousness in my chest which almost feels as though my breathing and heart rate aren't in sink; I also went through patch of heart palpitations and times when my heart felt as though it was missing a beat.
Approx 5 years ago I had a lump which turned out to be a thyroid nodule, of which I have a number of small ones, but apparently this one had had a bleed into it which was discovered during an ultrasound. I've had 2 yearly checks, then because the large one had reduced in size, Dr said I didn't need to go back. I went to DRs about 3 years ago to further query my symptoms, blood was taken to rule out thyroid, but they said TSH was within range (in 2023 results ranged from 1.12 mu/l to 1.58) ; subsequently I moved onto HRT, but there has been no improvements in my symptoms. I have been so convinced that I have a thyroid issue I have had a blood test with the following results, which I did on Monday morning at 6.10 in the morning and only drinking water when I got up. Results are as follows (I think I have done the range correctly):
1. CRP - 1.04 mg/L (in range)
2. Ferritin 62 mg/L (in range 30-264)
3. Vitamins - serum folate 16.2 nmol/L (in range 7 - 35)
- vit B12 45.8 pmol/L (in range 37.5 to 187.5)
- vit D 36 nmol/L (out of range of 50-200)
4. Thyroid hormones - TSH 3.27mu/L (in range 0.27 - 4.2)
- Free T3 pmol/L 3.8 (in range 3.1 to 6.8)
- Free thyroxine 12.1 pmol/L (in range 12 to 22)
5. Thyroglobulin antibodies - 13.8 kiu/L (in range 0 - 115)
6. Thyroid peroxidase antibodies - <9 kiU/L (in range 0 -34)
I understand that my vit B12 and vit D are very low, but not sure if there is any significance of my free thyroxine as that is only 0.1 in range?
Any help would be massively appreciated! Thank you
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Tunderthyroid
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if after testing for Pernicious Anaemia, if result is negative and GP doesn’t prescribe B12 injections or daily B12 supplements, then you will need to start self supplementing
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement
A week later add a separate vitamin B Complex
Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.
If Vegetarian or vegan likely to need ongoing separate B12 few times a week
Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose and may need 2 per day and/or may need separate methyl folate couple times a week
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 if last test result serum B12 was below 500 or active B12 (private test) under 70
When they found the nodules did you have a needle biopsy on any of them? Do you have the report on all their sizes and/or composition?
I had a thyroidectomy due to size of two of the five of my modules & their position. I was having breathing and choking issues due to two of them being up against my trachea and esophagus.
But here is the thing, my thyroid numbers wee always 'normal'.
So you would think a relatively healthy thyroid would come out, besides the nodules.
Nope. It was twice the normal size, a different colour than it should be and 'completely diseased' according to the surgeon. And the pathology listed lymphocytic thyroiditis. Chronic lymphocytic thyroiditis is another name for Hashimoto's, as far as I can see in research.
Also, when I first got the thyroid hormones needed after a thyroidectomy I felt like WHAT IS THIS? like it was Christmas morning. Making me think I was lacking something.
Thank you for your reply. When I went for the 1st ultrasound they were going to do a biopsy but the Dr said even though it was large, because he could "see" there had been a bleed into it, he didn't. The following year, it had shrunk, so they didn't. After that I was then discharged, but I do know that I have a number of small nodules.
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