Test results and advice for appointment - Thyroid UK

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Test results and advice for appointment

Laundry profile image
6 Replies

Hello, can anyone help me prepare for my endocrinologist appt later? i've summarised results attached and my symptoms are below. fatigue and brain fog are making this difficult for me. What do you make of these results? what should i ask the end for?

in addition to the above I have DHEA/cortisol disfunction and 2x thyroid antibodies were neg.

I am currently not diagnosed as i haven't seen an endocrinologist yet.

Thanks

.....symptons below....

High cortisol

low T4 in blood tests (normal THS)

Crushing Fatigue - often spending entire weekends in bed. after work get in bed 3pm. never feel rested even after a lot of sleep

i sleep for 12-15h and still have to be woken up and still exhausted

often cannot sleep at night even though exhausted all day

serious memory issues - my brain is not working its scary i feel like i have dementia

I cannot do normal things such as food shopping or housework or getting my kids ready for school because of fatigue and pain

- Carpel tunnel pain

- tennis elbow pain

- pins and needles

upper arm, stomach and leg swelling/weight - unpinchable skin, gel like (physio and osteopath are both concerned about this.)

Look visibly exhausted pale, tired, older

- covered in bruises

Put on 20kg over a few months, could not lose the weight, dress size 10 to 14.

Then When I excluded gluten, dairy, soy, sugar, alcohol and caffeine over 1 stone dropped off in less than 5 days. now the thinest i’ve ever been. 65kg and losing weight all the time

- face changed shape, rounder, puffy, tired looking, double chin, permanent lines. (Now gaunt, pale, tired since exclusion diet.)

freezing cold all the time - get in bed or hot bath are the only ways to keep warm

- IBS bloating, pain and malabsorption. Lots of intolerances suddenly

neck pain - tightness, MRI showed disk degeneration, herniated disk possibly explaining pain on left but not everything.

nerve pains down both arms and into hands

back pain and stiffness in lower back and hips

muscle stiffness, tightness and aches - back, shoulders, arms, legs, jaw, neck etc

joins aches and pains - shoulders, elbows, hands, back, knees, ankles, everywhere

weak arm and leg muscles, cannot grip my hand e.g. petrol pump without a lot of effort/pain and using both hands

low muscle tone since weight loss - bum/arms/ thighs etc disappeared suddenly

tinitus

down/low/sad

pressure in head, headache

dizzy particularly when i stand up

heart palpitations

jittery

short of breath even walking, can no longer exercise

itchy tight dry skin

dry hair

Vison issues - need glasses for the first time, struggle to focus.

digestive issues - wind, bloating, diarrhoea. definite triggers are things like dominoes or chinese food or wine/beer. These foods cause pain in joints, muscles and nerves.

malabsorption - low iron, zinc, vitamin d, b12, magnesium, iodine, folate…

always struggled with low iron

periods became very heavy and painful -recently had coil to try and help. now spotting/irregular

PMT/PMDD/Perimenopause - serious struggles with moods, hormones, etc

low libido

pain in my stomach near c-section scar on right hand side

CRP in blood tests

inflammation in spine (MRI)

ill a lot, even a normal cold totally wipes me out and i’m in bed for days

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Laundry profile image
Laundry
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6 Replies
Laundry profile image
Laundry

here's my t3 and antibody results

results
SlowDragon profile image
SlowDragonAdministrator in reply toLaundry

What about vitamin D, folate, B12 levels

Request ultrasound scan of thyroid

You have had glandular fever

Links to developing Hashimoto’s

20% of Hashimoto's patients never have raised antibodies

healthunlocked.com/thyroidu...

Paul Robson on atrophied thyroid - especially if no TPO antibodies

paulrobinsonthyroid.com/cou...

Laundry profile image
Laundry in reply toSlowDragon

Thanks slow dragon, here are my recent results i have been having iv vitamins and injections as they were low

r
SlowDragon profile image
SlowDragonAdministrator in reply toLaundry

No vitamin D result

B12 and folate

Going forward are you now supplementing daily?

Low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and a week later add a separate vitamin B Complex 

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Other options

healthunlocked.com/thyroidu....

Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 until over 500

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

Brightness14 profile image
Brightness14

In a nutshell your FT3 is much too low. I always get strange pains when low too, which all go when I am properly medicated.

Laundry profile image
Laundry in reply toBrightness14

The endocrinologist listened to me and had ordered blood tests.

What would a good T3 range be?

I’m currently undiagnosed but feel like death so I want all the advice I can get for my follow up

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