Test results please advice.: Hello, Just got my... - Thyroid UK

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Test results please advice.

Nath27 profile image
27 Replies

Hello,

Just got my test results, done this morning . I’ m on 125 levo since November and I don’t feel well. I have a lot of ups and downs. I get a lot of dizziness and I'm so tired, the last two weeks have been awful. When I’m like this, I feel really anxious. I would like some advice on my results please… Do I need to increase my dosage? My T3 has gone down since October. Thank you.

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Nath27
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27 Replies
SlowDragon profile image
SlowDragonAdministrator

was test done early morning and last dose Levothyroxine 24 hours before test

Do you always get same brand Levothyroxine at each prescription

What vitamin supplements are you currently taking

Vitamin D and folate are low

Nath27 profile image
Nath27 in reply toSlowDragon

Thanks for your reply. Last dose was 24 h before test. I have the same brand , Euthyrox..

I normally take Thorne B complex plus iron and vitamin D but I’ve been travelling for work and a couple of funerals and I had a lot of misses the last couple of months. I know it’s s not the right thing to do.

SlowDragon profile image
SlowDragonAdministrator in reply toNath27

improving vitamin levels should help improve conversion rate of Ft4 to FT3

Ft4 shows plenty of room for dose increase in Levothyroxine

Perhaps try adding extra 12.5mcg daily

Are you on gluten free and/or dairy free diet

Nath27 profile image
Nath27 in reply toSlowDragon

I’ m gluten free but not dairy. There is one thing I don’ t understand, my T3 has gone down despite taking a higher dose … my B12 has gone down too.( I was higher than the top of the range). I will try to improve my vitamins. Thank you for your reply.

SlowDragon profile image
SlowDragonAdministrator in reply toNath27

To some extent conversion rate is controlled by TSH

So lower TSH is likely reducing conversion rate

This is why many people then need to add in small doses of T3 (and reduce Levothyroxine a little)

Nath27 profile image
Nath27 in reply toSlowDragon

Thank you, I didn’t know that.I’ m self- medicated so getting some T3 will be difficult. I can’t find an endo who is going to listen. So far, no luck. They just want to reduce my dose based on the Tsh. I’m in France. How do I get some T3? Thanks

SlowDragon profile image
SlowDragonAdministrator in reply toNath27

it’s generally easier to get hold of T3 (liothyronine) without prescription than it is levothyroxine

Nath27 profile image
Nath27 in reply toSlowDragon

I did search but could’ t find any. Do I write another post and ask which site or where to buy it ,? By private message of course.

SlowDragon profile image
SlowDragonAdministrator in reply toNath27

yes

Nath27 profile image
Nath27 in reply toSlowDragon

Thank you so much for your help.

Brightness14 profile image
Brightness14 in reply toNath27

I get T3 here in France prescribed by my GP. It's Cynomel made here by Sanofi. If your GP won't prescribe it go to an Endo that may help. Years ago I could always get T3 from my Pharmacy without a prescription but now everything is on computer that's stopped.

Nath27 profile image
Nath27 in reply toBrightness14

Thank you for your reply. My endo doesn’t even want to give me the right dosage of levo so asking some T3 will be a challenge. 😀

Brightness14 profile image
Brightness14 in reply toNath27

Oh sorry I hope you find some T3 in your answers. I haven't got my thyroid so I suppose it's easier for me when asking for medications.

Nath27 profile image
Nath27 in reply toBrightness14

Hopefully I will if I need T3 in the future. But for now, I’m going to increase a bit my levo and my vitamins. After that, I will see if T3 is an option. Have a nice we.

Brightness14 profile image
Brightness14 in reply toNath27

Sounds like a good plan for now, Bon Weekend.

what was the reason for prescribing such a high dose of levo? Did you have your thyroid removed?

Nath27 profile image
Nath27 in reply toThyroidLadyLondon

My dose of levo is not high or low… and I probably will need to increase it a bit. I’m not sure what to say. I still have a lot of symptoms on this dose. I didn’t have my thyroid removed.

ThyroidLadyLondon profile image
ThyroidLadyLondon in reply toNath27

do you test your t4 and t3 before changing your dose? Or do you only look at TSH?

Nath27 profile image
Nath27 in reply toThyroidLadyLondon

T3 and t4 of course.

ThyroidLadyLondon profile image
ThyroidLadyLondon in reply toNath27

and what do your readings for t4 and t3 say? What were your readings when your TSH was over 40 in 2021?

RedApple profile image
RedAppleAdministrator in reply toThyroidLadyLondon

ThyroidLadyLondon, Nath27 has posted a photo of her thyroid test readings in her opening post. Her readings in 2021 are not relevant to her current situation.

ThyroidLadyLondon profile image
ThyroidLadyLondon in reply toRedApple

I see the test results now. They are all in range. There’s no problem =) she should carry on as before and deffinitely not question why she was put on levo in 2021. Totally not relevant =)

Best of luck with it Nath27!

SlowDragon profile image
SlowDragonAdministrator in reply toThyroidLadyLondon

ThyroidLadyLondon

For someone on Levothyroxine her Ft4 is possibly too low in range

Many people on Levothyroxine only need Ft4 at least 60-70% through range and FT3 at least 50-60% through range

ThyroidLadyLondon profile image
ThyroidLadyLondon in reply toSlowDragon

and what do you base that advice on?

RedApple profile image
RedAppleAdministrator in reply toThyroidLadyLondon

ThyroidLadyLondon, Before questioning the help offered by long term experienced admins of this forum, you should read through all the papers posted on our forum by member diogenes healthunlocked.com/user/dio..., who is the Thyroid UK medical advisor Dr John Midgley, along with his colleague Dr. Johannes W. Dietrich. You can read about their credentials here healthunlocked.com/thyroidu...

helvella profile image
helvellaAdministrator in reply toRedApple

A selection of their papers is listed (with links) on one of my blog pages to make it easier to find them. I did this because they are so interesting and solid.

Papers by diogenes, et al.

helvella.blogspot.com/p/pap...

I am referencing specifically this piece of advice: Many people on Levothyroxine only need Ft4 at least 60-70% through range and FT3 at least 50-60% through range

What is this advice based on? Is this based on a study of some sort, or anecdotal evidence (which is fine, this is a forum, not a medical establishment after all). And is this relevant to people only on total hormone replacement, or does it apply to those on small doses of levo?

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