No Ferritin or antibodies were done among a huge array of tests (that had not been requested by my haematologist), so I'm not sure my GP is interested in all of that. I hope this is readable because trying to copy from the online results is a nightmare!😊
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MaggieSylvie
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How are you feeling? These results aren’t too bad at all. If you’re feeling ok, it might be ok to stay on your current dosage of levo. If you aren’t, there’s potentially wriggle room from a slight dose increase (of course your GP, particularly if they’re the “TSH tells me everything!” kind may not agree…)
B12 and Vit D are good—have you been supplementing? Not sure about the folate because there isn’t a range—did that appear with your result?
Edited to add—just realised from reading your last post that you might not be on levothyroxine at all. Are you taking any?
I told her that my GP had prescribed Levothyroxine last year because, as she said, I had an underactive thyroid, based on my TSH being 0.02. Only T4 was also tested and it was 15.9. I did not continue with levothyroxine.
I have taken a few tests since then, and the latest, by MMH showed
FT4 13.30 (12-22);
TSH 0.33 (0.27 - 4.2);
FT3 4.80 (3.1 - 6.8). I
already provided these results to you and it was the opinion of some of you that I probably had central hypothyroidism. She asked me if I had any symptoms and I said No.
No one can explain why a GP would prescribe Levothyroxine with extremely low TSH
EXACTLY What vitamin supplements are you taking ?
Next step is to get FULL Thyroid and vitamin testing done via Medichecks or Blue horizon
Personally I would pay extra for Blue Horizon as it includes cortisol….might reveal something extra
all thyroid blood tests early morning, ideally just before 9am
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
Hi SlowDragon, Thank you for replying when you should be enjoying your evening. In answer to your question, My present list of supplements contains few actual vitamins; it consists of Rosehips, Resveratrol, Cinnamon, Odourless garlic, Macca Root, Ashwagandha, Cloves, D-Mannose, containing magnesium stearate, Vital Care, which does, in fact, contain B12 - 2.5 g, vitamins D3, E and C, B3, B6 and folic acid, zinc, copper, thiamin and niacin. Drugs from the surgery: Pregabalin, Paracetamol, Tramadol, Aspirin, EvacalD3 800 iU. I also have a weekly injection of Erythropoietin for the blood cancer.
I just had my test at 08.35 yesterday morning, fasting and well hydrated with water, and the results were not much different from the ones from last time. T3 is up to 5.7 but TSH is down to 0.07. You might consider that a big difference. I was shattered yesterday, either because a lot of blood was taken or because I had to be up early, so not in a hurry to repeat that. Doing a finger prick would be easier if I can actually get blood out, and I've learned from last time only prick my little finger, which is more generous with blood than the others. Will make a note of the extras (Cortisol) that Blue Horizon tests and go for that at some time, but, according to Nursie, my surgery will not accept the results of a private test. No-one would be able to take the time, never mind to translate the results, so I will have to rely on your opinion, and then go and insist on what I need (or don't need). I do think Cortisol might have shown up rising platelets, suggesting inflammation from my recent compression fracture. At this point, I wouldn't think it would show stress to any great degree.
Thanks, SlowDragon, I haven't been taking Resveratrol for very long, certainly not when my GP diagnosed/misdiagnosed me a year ago. I'll have to look at what it does, though. Presumably you are looking at it from the point of view of low TSH.
I will have to test for antibodies and cortisol (which I have often suspected) and ferritin at 577 last May - I don't know whether that is good or bad, and no reference range.
Oh, I didn't have that information, but I guess that since my platelets have generally been high, it is, as you say, likely to be because of inflammation and I have inflammation because I am usually in pain from either compression fractures or fibromyalgia. Another reason could be the blood cancer, where I have immature haemoglobin cells that don't take sufficient oxygen around the body but do store iron - so perhaps that is a link and could be unremarkable to the people studying my results, because ferritin would have been tested by the Haematology department and not by anyone looking at my thyroid.
Thank you, Jazzw for getting back to me. I take EvacalD3, so yes, a bit of a supplement, but no supplement for B vitamins.
I was diagnosed a year ago on the basis of TSH alone and shunned the Levo after one dose, so I am basically now not diagnosed and not taking Levo or anything else. My results have been haphazard with NHS and private tests. This last was taken early after fasting but I was well hydrated; so were the other tests but I feel better clued-up now particularly with drinking lots of water. In May, my Ferritin was 577 ug/L.
So, bearing in mind that I'm not taking Levo, what is it about my results that makes you think I should be taking some? It has been suggested here that I may be central hypothyroid. I don't know what the doctors will say. I get so much help here on this site.
Sorry to confuse you. When I edited my post after realising you weren’t taking levothyroxine I probably should have added a bit more. There’s nothing about your results that makes me think you should be on levothyroxine—your thyroid blood tests are mostly normal—except… your TSH is very low. And I’m not sure this is central hypothyroidism because if it was, your FT4 and FT3–particularly your FT3–wouldn’t be where they are. Your FT3’would be much lower.
I wonder if something is interfering with the test. You aren’t taking biotin, are you?
Hi Jazz, I got a reply from SlowDragon but it refers mostly to a previous post. She asks me what supplements I'm taking and I don't think any of them contain Biotin but was thinking it might help to regrow my eyebrows and eyelashes (or am I thinking of something else?) My present list contains few actual vitamins; it consists of Rosehips, Resveratrol, Cinnamon, Odourless garlic, Macca Root, Ashwaganda, Cloves, D-Mannose, containing magnesium stearate, Vital Care, which does, in fact, contain B12 - 2.5 g, vitamins D3, E and C, B3, B6 and folic acid, zinc, copper, thiamin and niacin. Drugs from the surgery: Pregabalin, Paracetamol, Tramadol, Aspirin, EvacalD3 800 iU.
OK. I asked about biotin because it can interfere with laboratory measurement of TSH—so wondered if it was possible that was causing your very low TSH. It doesn’t sound like it.
I’m honestly at a loss to know what’s going on with your thyroid function. I don’t think levothyroxine is going to help (and it didn’t before did it?). I guess it is possible that you’ve always “run” on having a low TSH and your thyroid responds to teeny tiny changes in the level of TSH!
I think you may be right that I have always run on low. It has been suggested here that it is probably a pituitary problem rather than thyroid.
In hindsight, rather than thinking my GP was trying to poison me, I should have given Levo a try for a while but at the time people were alarmed that she would prescribe it with a TSH of 0.02. I think possibly these things go up and down all the time, just like platelet levels do, so a test on any one day only shows results for that day. Am I wrong?
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Not sure about the folate because there isn’t a range—did that appear with your result?
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