What Do You Think Of My Results? (Instructed to speak to the doctor)

[Ellie-Louise]

Checked my results on System Online, so these were taken on 22/6/22.

The blood test was necessary because the doctor reduced my Levo to 75mcg from 100mcg. a while ago. Although I had asked them to include free T3 too, it appears that it wasn’t done.

There is a message on them telling me ‘need to speak to the doctor’.

TSH - 0.11 mu/L [0.35 - 4.94]

Free T4 - 14.9 pmol/L [9.0 - 19.0]

Ferritin - 119 ug/L [15.0 - 200]

Folate - 11.2 ug/L [3.0 - 20.0]

B12 - 755 ng/L [80.0 - 640.0]

Vit D - 124.1 nmol/L [50.0 - 350.0] (note ref change from 14/9/21)

Do you think he wants to talk about the B12 result. I just wanted to find out what you thought before I rang the surgery.

Thank you.

[Lalatoot]

Ellie I think he wants to speak about the low TSH result which is under range. You need to point out that with ft4 sitting well within range at 14.9 you are not overmedicated and that the ft4 is well within the boundaries of 'normal'. Under the normal distribution of results within a range you would expect the majority of folks to fall around the 50% level. 50% of that ft4 range is 14 so you are average!

[nellie237]

I think he wants to reduce your thyroid meds.🤦‍♀️

[Ellie-Louise in reply to nellie237]

I really hope not, because since it was reduced I have been a lot more tired, my hair is thinner and my wretched eczema came back between my fingers. It’s the very devil of a job dealing with it, everything that worked before isn’t working now. I have that many different pots of stuff on the table, and I’m using silver soap. Antihistamine for the itch, you name it and I bet I tried it.

[SlowDragon Administrator]

Was test done early morning, ideally before 9am and last dose levothyroxine 24 hours before test

Obviously you need to test TSH, Ft4 and Ft3 together

FT4: 14.9 pmol/l (Range 9 - 19)

Ft4 is only 59.00%

You need to see how good or bad Ft3 is

Vitamin levels are good

Which brand of levothyroxine are you currently taking

Northstar is just the box - different brand depending on dose

If on Northstar 25mcg this is Teva brand

Whereas Northstar 50mcg and 100mcg are Accord brand

Looking at previous posts

Couldn’t see any thyroid antibodies test results

Have you ever had thyroid antibodies tested for autoimmune thyroid disease also called Hashimoto’s

Previous post shows you have poor conversion of Ft4 to Ft3

healthunlocked.com/thyroidu....

Likely to need addition of T3 prescribed alongside levothyroxine

Email Thyroid U.K. for list of recommended thyroid specialist endocrinologist and doctors who will prescribe T3

[e-mail]

Roughly where in U.K. are you?

[Ellie-Louise in reply to SlowDragon]

Hi, test was done at 08:25 on the Wednesday. I didn’t take the night before’s tablet but it was early Tuesday at 01:40 ish that the last one was taken just before bed. (I wait up for my cats to come in). So there were more than 24 hrs. I did message Seaside Susie about the times mistake because I had fully intended to make sure of the hours this time, unfortunately I just forgot. But I have never worked the times out before, so as the hours all sort of match up would it make much difference in the long run?

I would have cancelled and tried harder to get it right this time but it had taken so long to get the appointment booked in that I decided to go ahead with it.

I take 50’s of North Star and split one so that I keep the same manufacture. I live on the coast between Worthing and Littlehampton.

[SlowDragon Administrator in reply to Ellie-Louise]

If you can afford private consultation there’s at least 2 or 3 recommended thyroid specialists on Thyroid U.K. list not too far away from you

[Ellie-Louise in reply to SlowDragon]

Out of the question I’m afraid, but thank you for that.

[SlowDragon Administrator]

If GP says " I have to reduce your dose because the guidelines say i can't let you have a below range TSH" .....

The first paragraph in the NICE (NHS) Thyroid Disease, Assessment and Management guidelines says :

nice.org.uk/guidance/ng145

"Your responsibility

The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, professionals and practitioners are expected to take this guideline fully into account, alongside the individual needs, preferences and values of their patients or the people using their service. It is not mandatory to apply the recommendations, and the guideline does not override the responsibility to make decisions appropriate to the circumstances of the individual, in consultation with them and their families and carers or guardian. "

[Ellie-Louise]

I have just had a call from the doctor after I got in touch with the surgery.He told me that it looked as if I was over medicated. I told him my tiredness had returned after my Levo had been reduced from 100 down to 75 so I really didn’t want any more taken off. He has agreed to keep it at 75mcg.

(I always used to be able stay up gaming with a friend until around 2am. After my reduction I began to feel very tired around 9pm. I had never been tired like that before).

I have an appointment soon about something else, so I shall enquire as to whether I have ever had antibodies tested because I have no idea.

[pennyannie in reply to Ellie-Louise]

Good news there - thanks for feedback :

In a week or so you'll be able to stay awake and hopefully win back some money you can put towards going private if needs must :

Just be sure you go to one who is recommended as otherwise you might as well play it up, and enjoy yourself.

[Ellie-Louise in reply to pennyannie]

What do you mean, in a week or so? I have been the same ever since it was reduced a few months ago. Originally I had asked for it to be raised from 75 to 100 because I had started to feel cold and tired again.I’d been feeling fine on 100 for a year or so, until another wretched doctor told me I was taking too much.

No chance of winning any money, we don’t do the lottery. Lol

[pennyannie in reply to Ellie-Louise]

Sorry - I thought your dose had been reinstated -

just reread thoroughly and see you need go back up to 100 mcg - my mistake :

You could buy some yourself, many forum members have had to resort to self medicating to be well - i know it's a crazy situation.

[Ellie-Louise]

I am adding details of how I am feeling now just to keep a record. Seeing the doctor in 2 days (so that will be 18/7/22).

(I think I need more Levo not less, but am really hoping doc suggests another blood test).

Symptoms since Levo was reduced down from 100 to 75:

Tired and yawning early evening, even though I sleep well and go to bed around midnight, much earlier than I used to.

Putting weight back on.

Hair getting thinner.

Itching around lower front neck.

Extremely bad, itchy, and spreading eczema/dermatitis? between and up fingers down to palms. Fingers dried up, weepy and swollen, too stiff to bend. Feels as if something is crawling in my skin.

Left leg feels tight sometimes, but ankle swells during the day…worrying!

Have been taking antihistamine for itching but it dries my tongue out so don’t take it every day.