Thyroid test results - what do I do now? - Thyroid UK

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Thyroid test results - what do I do now?

Gina112 profile image
6 Replies

Thyroid tests 2024

TSH 1.883. uIU/ml. normal range. 0.55 - 4.78

FT3. 5.22 pmol/L normal range 3.1 - 6.8.

T4. 12.9.pmol/L. normal range 12 - 22.

TPO is 626 normal range 0-60 iu/m

vit D. 89.6. -250H total nmol/l

folate 24.00 ng 24.00ng/lo. Normal above 4.12 ug/l ferritin 233.7.ng/l. Range 10-291ug/l

B12. 501.0ng/L. Range 211.0 -911.0ng/L

I take a zinc tablet and omega 3 tablet daily

For years I have suffered from chronic fatigue and have all the symptoms of mild hypothyroidism but my doctor says there is nothing wrong with me according to all the blood tests and cannot prescribe me any levothyroxine as I am within the normal range . Where do I go with this as I don't know how to get better , do I have to live with this?

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Gina112
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SlowDragon profile image
SlowDragonAdministrator

TPO is 626 normal range 0-60 iu/m

Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.

Most common by far is gluten.

Dairy is second most common.

A trial of strictly gluten free diet is always worth doing

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines

nice.org.uk/guidance/ng20/c...

Or buy a test online, about £20

Assuming test is negative you can immediately go on strictly gluten free diet 

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially) 

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial

With loads of vegan dairy alternatives these days it’s not as difficult as in the past

Post discussing gluten

healthunlocked.com/thyroidu...

Recent research in China into food intolerances with Hashimoto’s

healthunlocked.com/thyroidu...

More interesting Chinese research on Hashimoto’s and leaky gut

nature.com/articles/s41598-...

Why gluten intolerance can upset cortisol levels

kalishinstitute.com/blog/gl...

hypothyroidmom.com/how-to-l...

Eliminate Gluten. Even if you don’t have Hashimoto’s. Even if you have “no adverse reactions”. Eliminate gluten. There are no universal rules except this one.

SlowDragon profile image
SlowDragonAdministrator

vit D. 89.6. -250H total nmol/l

folate 24.00 ng 24.00ng/lo. Normal above 4.12 ug/l

ferritin 233.7.ng/l. Range 10-291ug/l

B12. 501.0ng/L. Range 211.0 -911.0ng/L

Vitamin levels all excellent

Do you supplement to maintain or is this “natural” level?

Gina112 profile image
Gina112 in reply toSlowDragon

Yes I have always. taken a lot of supplements as I thought I was deficient in something but clearly I am nt. My doctor still will NOT medicate me. on the basis that my antibodies are high, I understand that a gluten free diet will help but why can I not be prescribed a low does of thyroxine to see if my. chronic fatigue improves???? could I find a health clinic abroad that would allow me to buy thyroxine from them? I know this is not safe to do as there are bogus companies out there but I am desperate to get better and am will ing to take the risk

SlowDragon profile image
SlowDragonAdministrator in reply toGina112

Suggest you try private thyroid specialist endocrinologist

Looking at some degree of central hypothyroidism as TSH not responding to low Ft4

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations so that might eventually transfer to NHS

thyroiduk.org/contact-us/ge...

Gina112 profile image
Gina112 in reply toSlowDragon

Thankyou so much your advice, it gives me so hope that one day I will feel better. I wish I had found this site years ago.

SlowDragon profile image
SlowDragonAdministrator

Free T4 (fT4) 12.9 pmol/L (12 - 22) 9.0%

Free T3 (fT3) 5.22 pmol/L (3.1 - 6.8) 57.3%

Ft4 very low

Ft3 good

Retest again in another 2-3 months

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