Currently on 100mcg daily of Levo (brand accord). For the last month the pharmacy switched the brand to Teva and I reacted really badly to it, so I’m back on accord.
Recent blood test results below, tested at 8am, no meds/supplements that day and only water consumed before hand. No B vits for 1 week prior.
TSH 2.51 (ulU/ml 0.27 – 4.20)
FT4 19.1 (pmol/L 11.1 – 22.6)
FT3 4.0 (pmol/L 3.1 – 6.8)
Anti-TPO 280.0 (0 – 34)
Vit D (D2 & D3) 99.3 Target levels: (>75 nmol/L), insufficient: (50 - 75 nmol/L), deficient (<50 nmol/L)
Folate 9.6 (ng/ml 3.89 – 26.8)
B12 581 (pg/ml 197 – 771)
IRON STUDIES
Iron 24.2 (umol/L 5.8 – 34.5)
Transferrin 1.62 (g/L 2.00 – 3.60)
Total iron binding 37.7 (umol/L 44.0 – 80.0)
Saturation 64 (% 14- 56)
Ferritin 24 (ng/ml 13 – 150)
I was recently seen by the Gastroenterologist who requested most of these tests, and I also have results for Bone Profile, Liver Function Test, Electrolytes, autoantibody screen, Full Blood count with comment I have Mild neutropenia. Some of these results are below range and I will discuss with my Gastro at my next appointment in June 22, I wasn’t sure if it was appropriate to post any of those here.
Current symptoms: extremely hard dry skins on hands, feet, dry patches on face, constantly dehydrated regardless of drinking water 1.5 litres per day. Intermittent anxiety and rare heart palpitations.
Supplements I’m taking as recommended by my naturopath (if anyone can recommend cheaper/better brands):
B Complex Plus (Brand: Pure Encapsulations)
Vit D (Brand: Natural products corp.)
K2 as MK-7 (Brand: Just Vitamins)
Thyroid Support Complex (Brand: Pure Encapsulations)
Iron (Brand:BioMedica Nutraceuticals) I always forget to take them
My doctors don’t seem to know what to do with my thyroid results, they were below range in august last year (TSH 4.79 ulU/ml 0.27 – 4.20) and 2 separate doctors just said to wait a few months and see what happens, so here we are. around the same time I was also experiencing very sensitive neck, delicate to touch, with neck pain, constant sore throats for months- they refused to do a scan without any physical lump, etc, and just said we will wait and see what happens. I do have access to Private Healthcare if that would be better or anyone can recommend a good Endocrinologist in the UK?
Thank you for your support
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Bluemoon22
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If you were to consider iodine supplements you should always test iodine levels first
Iodine test
If you want to do an iodine test then the best is a non-loading urine test which can be done with Genova Diagnostics. Details of test in the pdf linked to on ThyroidUK's page here, along with details of how to order and receive your results :
In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency
Look at increasing iron rich foods in diet
Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption
This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.
Thyroid disease is as much about optimising vitamins as thyroid hormones
Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing. It’s possible to have low ferritin but high iron
Oh I forgot I also take a solvable drink called Basica- ingredients attached.
Thank you SlowDragon. Yes 100% gluten free. Oh I will stop the Thyroid Support Complex, might explain why it made me so ill to begin with.
No not vegetarian, vegan or heavy periods, although I don’t eat a lot of meat. I will look to change my diet as suggested. I can’t stomach orange juice due to it giving me reflux but I will find an alternative.
So did I provide the results for the full iron panel? I couldn’t see a list of tests on that link. If not could you please advise what it includes?
Also do you have any links to explain why I should also be prescribed FT3 if it remains low so I can put this forward to my doctor in the Isle of Man before I attempt other doctors in the UK via Healthcare Insurance.
I just thought I would post an update to say Thank you to Slow Dragon who identified I had Haemochromatosis before the doctors did! I am very grateful for your advice. I had to fight for them to provide me with the gene test, but the results came back in July 2022:
Carrier of Haemochromatosis HFE gene mutation- no treatment required currently but they will continue to monitor Iron levels every 6 months.
Recent blood test results below, tested at 8am, no meds/supplements that day and only water consumed before hand. No B vits for 1 week prior.
TSH 5.99 (ulU/ml 0.27 – 4.20)
FT4 19.1 (pmol/L 11.1 – 22.6)
FT3 - Dr wouldn’t test
Anti-TPO - Dr wouldn’t test
My TSH hasn’t been within range since 2020- screenshot below (except on one occasion) and the doctors don’t seem interested in doing anything about it other than ‘continue to monitor with blood tests’.
I’ve almost lost faith recently, stopping taking all supplements and stopped following up on here to try do something to improve my health, however I know I need to work on this myself so will start re-introducing supplements again.
My current symptoms are: Increased weight, Exhaustion, Dry skin, Struggle with mental clarity and Need much more sleep.
I’ve got the list of doctors that prescribe T3 so I will go from there, however any other advice is welcome. Thank you
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