Private endo for elevated prolactin

[Jo_Joey]

Hello

I have been referred to an endo by my GP to investigate elevated prolactin levels. I discovered this by chance from a Medichecks result for menopause screening. I had two further tests on the NHS, and all three showed levels of around 700 (the upper level is around 500).

There are obviously big delays within the NHS, so I was wondering about seeing someone privately. I’ve had a terrible relationship with endos in the 15 or so years since I was diagnosed hypothyroid, so I’m anxious about a) spending lots of money for a pointless consultation or b) waiting for months and months for a pointless consultation! I haven’t seen an endo in years, nor has the NHS prescribed me anything in that time.

If I saw someone from the Thyroid UK list, which I have, would they be less likely to make a fuss about me taking NDT and having a suppressed TSH? Is there a chance I could get a prescription for NDT? I’ve sourced my own for years but we all know what the supply is like, so a prescription would do away with that concern.

I’m thinking of a “two birds, one stone” thing. If I do end up spending a lot of money to see someone regarding the prolactin, I’d like them to assess the thyroid meds.

What would you do? I’m really interested to know!

Thanks, Jo

Recent blood test results:

TSH <0.01

FT3 6.5 (3.1-6.8)

FT4 18 (12-22)

Ferritin 77(13-150)

Vit D 127 (50-200)

FSH 14.7 (3.5-12.5)

LH 19.3 (2.4-12.6)

Oestradiol 182 (98-571)

Testosterone 1.9 (0-1.8)

Free androgen index 1.4 (0.2-7.1)

Prolactin 661 (102-496)

[Hidden]

Although your prolactin is above the reference range, I'm not sure that an Endo wouldn't worry too much about it & probably would just monitor it. I'll message you regarding an Endo who may help with T3 as well.

[SlowDragon Administrator]

Looking at previous posts

You probably have Hashimoto’s, despite negative antibodies

You’re on NDT

High prolactin is common with Hashimoto’s

medscape.com/answers/120937...

pubmed.ncbi.nlm.nih.gov/915...

[Jo_Joey in reply to SlowDragon]

Thanks for these links. Are UK endos aware of this link, or is it considered in the same way they think of T3 or NDT? I have so little confidence in them!

[Jo_Joey]

No, why do you ask?

[Jo_Joey]

Ah, I see. Thanks for your reply.