Being blind sided by levothyroxine : I was on... - Thyroid UK

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Being blind sided by levothyroxine

Dryski profile image
65 Replies

I was on levothyroxine for 15 years and now have high a1c. I'm currently coming off the levo cold turkey in hopes this new tragedy can be reversed or stopped. Just putting this out there for people on high doses to make sure they are having their blood sugars monitored as well as thyroid. I recently learned levothyroxine can raise blood sugar and I was never informed of this or my doctors just chose to skip watching that for me. I don't know if I can stay off of thyroid but have an endo appointment to find out in a few months. I know some people have to deal with both illnesses and meds for both but keep an eye on your levels.

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HealthStarDust profile image
HealthStarDust

Do you have any sources that reference the high blood sugar connection with levothyroxine?

Forestgarden profile image
Forestgarden

I'm sorry this has happened to you, but its not levothyroxine that causes diabetes, its poorly controlled hypo or hyperthyroidism

Forestgarden profile image
Forestgarden in reply toForestgarden

scholar.google.com/scholar?...

jimh111 profile image
jimh111

I've no detailed knowledge on this, the impression I get is too much or too little thyroid hormone (liothyronine and NDT as well as levothyroxine) can lead to higher blood sugar levels. So, any thyroid patients with diabetes should keep an eye on their levels.

Dryski profile image
Dryski in reply tojimh111

I've never had diabetes and not even in my family. The patient leaflet from my pharmacy for levoxyl states it does and can. I just learned this but my levels have always been monitored and were only slightly raised at my last check up. Wasn't till the a1c was checked that I knew to look for reasons. I've been switched through three different brands since last October and was rechecked after each one but my somehow I was slightly overdosed in the process. Not a pleasant experience and the it caused severe dizziness and balance issue. Been off 10 days today and slowly pulling out of it. In three more weeks I should be back to none in my system for the endo to start over. I honestly believe different brands are not equal and doses are not always even in my experience.

Lindy59 profile image
Lindy59 in reply toDryski

Hi. I am on a high dose of liothyronine and experiencing dizzy issues also. I have just been told that my glucose levels are also elevated to pre diabetic. I was shocked as I eat a low sugar healthy diet and bmi etc all healthy. I thought it had to be related to meds. Waiting to see an endo and hope that I can reverse this. Good luck with your health.

Angie33 profile image
Angie33 in reply toLindy59

This is very interesting. I have recently been informed I am pre diabetic too and like you, I have always eaten a very healthy diet. There is no diabetes in my family either.

I wish I mentioned this to my endo last week. I will email her! Good luck with you health everyone too. This is a wonderful site, so informative and supportive.

Lindy59 profile image
Lindy59 in reply toAngie33

Angie, are you on high dose of liothyronine or Levo? I have mentioned to my GP that my thyroid meds being the likely cause of being pre diabetic. This was dismissed ! Does anyone do joined up thinking? I’m so frustrated and now in the process of paying to see an endocrinologist.

Angie33 profile image
Angie33 in reply toLindy59

Hi Lindy, I've just increased my meds to 50 mcg of liothyronine as well as 40 mcg of metavive. The past 2-3 months I was on 40 mcg of lio and 25mcg of thyroxine, which my body doesn't respond well to. I agree, I really wish someone would do joined up thinking too! We are left having to suss everything out ourselves.

Dryski profile image
Dryski in reply tojimh111

I've never had diabetes so that's the concerning part. Could happen to anyone.

SlowDragon profile image
SlowDragonAdministrator

what were your most recent Ft4 and Ft3 results

Low Ft3 and/or low Ft4 could be responsible for higher HBa1c

drkrupka.com/blog/are-you-d...

Dryski profile image
Dryski in reply toSlowDragon

Sorry I don't have last numbers before I was removed from medication.

Minimol profile image
Minimol in reply toDryski

Strongly suggest you need to know what your bloods were before you stopped meds.

Dryski profile image
Dryski in reply toMinimol

My doctor knows what they were.

Angie33 profile image
Angie33 in reply toSlowDragon

What's HBa1c? is this diabetes? I have recently been informed I am prediabetic too. My T4 is below the normal range.

Dryski profile image
Dryski in reply toAngie33

That's a blood test that estimates your average blood sugar for the last three months. I personally don't put much trust in it since it's just a quess.

Angie33 profile image
Angie33 in reply toDryski

Ah, thanks!

1piglet profile image
1piglet in reply toSlowDragon

Great video, explains a lot!

HealthStarDust profile image
HealthStarDust

A quick google search suggests both thyroid disease itself and levothyroxine can affect blood sugar levels.

Dryski profile image
Dryski in reply toHealthStarDust

Process of elimination before endo appointment. Worse that could happen is starting doses all over again but at my age they don't really want people over 60 on it anyway here in the states anyway. I just want to know or try to find out if it's the levo or the hypo itself.

HealthStarDust profile image
HealthStarDust in reply toDryski

Understand stable and I wish you the best on it an hope you keep us poted.

Dryski profile image
Dryski in reply toHealthStarDust

Thankyou.

FallingInReverse profile image
FallingInReverse

To anyone who jumps in on this thread, I will just say that when Dryski posted earlier about this, I did a deep dive on it, and indeed - Levo can lead to increased blood sugar. It's counterintuitive. And it's never a one-to-one conclusion when it comes to our hormones. But it is supported.

It surprised me - as one would think that the impact of increased metabolism would do the opposite. But that's not entirely the whole story.

From the patient insert:

5.5 Worsening of Diabetic Control

Addition of SYNTHROID therapy in patients with diabetes mellitus may worsen glycemic

control and result in increased antidiabetic agent or insulin requirements. Carefully monitor

glycemic control, especially when thyroid therapy is started, changed, or discontinued.

What I read about this - here are the paradoxes I found:

More glucose produced: There's a process called gluconeogenesis that happens in the liver as a response to increased metabolism (ie, from the Levo). This can raise blood sugar.

Thyroid hormones apparently also increase glucose absorption in the intestines, hence increasing the glucose that cells use, and if insulin isn't matched, blood sugar can rise.

More insulin demand - sometimes not met: As a response to increased metabolism, cells need more glucose. I think this is the one we all would think - great! Increased metabolism, less glucose! But what can also happen is that when the pancreas produces more insulin to address the increased glucose, sometimes it is not able to make enough, and blood sugar rises.

This concept has something to do with something called "insulin resistance" - which I don't know much about but I think is important here. (?) Somehow in the process of increasing thyroid hormones, insulin sensitivity is reduced and insulin can't do its job effectively.

My other opinions here are that the thyroid disorder reveals a predisposition or an onset to diabetes (in the same way it does with other autoimmune diseases which Diabetes can be.) I also don't see anything in what I've read that says the changes are drastic. Also, I don't think the Levo "causes" diabetes, and if it was me, I'd optimize thryoid first and then adjust the rest.

BUT, I do LOVE a good a/b test. Although my own Hashi/hypo self would never imagine that my own thyroid could function without my Levo, from memory I know Dryski had some good reasons for giving it a try... and regardless of the degree of the impact, it's clear that Levo does in fact increase blood sugar somewhere along the complicated chain reaction that is our body with wacky hormones.

Dryski - I'm looking forward to seeing how it goes and what you learn. I hope you hang in there, and I hope it works.

disclaimer - I'm out of my depth, and just did a bunch of reading... I love seeing everyone's input. I did have gestational diabetes, and tons of family history of diabetes, so am always on the lookout for understanding this.

redhead41 profile image
redhead41

After 15 years, this just sounds crazy. How do you think you are going to manage without a thyroid? Would it not be better to look at your diet to reduce the blood sugars?

Dryski profile image
Dryski in reply toredhead41

I still have a thyroid but not sure what's left of it after all this time. I have a pretty good diet but thanks for remark.

annnsandell profile image
annnsandell

I was interested to read your comment that in USA they don't like prescribing Levothyroxine over 60 especially as I am 72.

On the diabetes front, I assume you are pre-diabetic. Have they looked at other causes?

I guess it will depend how much Levo you were taking as to whether you can cope without it.

It would be interesting to learn of the results of your experiment.

Good luck

Dryski profile image
Dryski in reply toannnsandell

I was on 125 and feeling horrible. A different doctor ran the a1c which came back at 6.5 which I have never been elevated in the past. They then agreed to an increase to 137 which made me really off balance after one week. I'm thinking that when I thought I was low I was really having high free t4 and the increase made it even worse so its been stopped. They only checked sugar and not thyroid before the increase. I don't have the thyroid numbers from the day it was stopped. This is the first time in fifteen years it's gone roug because I'm very careful and rarely ever miss. Wasn't sure why I felt so dizzy and off balance. Whole new experience for me.

annnsandell profile image
annnsandell in reply toDryski

Look up diabetes symptoms, dizzy and off balance is not usual. If you mean 6.5% this is slightly above normal (can actually be normal for some people) and you need a starvation diabetes test and a full range of thyroid tests, adding other hormones and vitamins would be useful. If the sugar is still high, then look for causes. I feel that stopping Levothyroxine will make you unwell.

JumpJiving profile image
JumpJiving in reply toannnsandell

I saw an NHS endo in the UK recently for adrenal insufficiency. I'm just coming up to 60 and he recommended to my GP to stop my levothyroxine, when my hypothyroid symptoms over the last year (whilst getting very ill with adrenal insufficiency) were getting worse and my bloods were getting a little worse. He came out with some spiel about how levothyroxine affects the body after the age of 70, so wanted to get me off it. Whilst he may be correct, now is really not the time to be stopping my levo as my symptoms are still getting worse during the early stages of managing the newly diagnosed adrenal insufficiency. As a result (and because I'm dissatisfied with him in other ways too), I've now got a referral to another endo, who I hope will tell my GP to re-start the levothyroxine for the time being at least.

I have found videos by Ninja Nerd very useful, including the excellent adrenal insufficiency one, but also the hypothyroidism one which is at youtu.be/4WigUZMM-yA?featur... - they are aimed at trainee doctors, so full of clinical language, but useful for being pre-armed when going to appointments (unfortunately, I wasn't pre-armed, just very ill, when I went to see that last NHS endo)

Hectorsmum2 profile image
Hectorsmum2

I stopped taking thyroid hormones and became very ill, had twelve falls in a week and broke my ankle and have been left permanetly disabled. Now need to walk with two sticks two years on. I was prediabetic as well recently but gentle fasting twice a week seems to have resolved this. iT would be hard to know if the high blood sugars are caused by the levo or the predisposition to diabetes that comes with being thyroidy but I for one would never risk stopping my hormones again.

Litatamon profile image
Litatamon in reply toHectorsmum2

Can you tell us about the protocol that makes it gentle fasting, thank you.

(So very sorry about your falls & change in mobility.)

Hectorsmum2 profile image
Hectorsmum2 in reply toLitatamon

I fast from dawn till dusk, so have small breakfast and a smallish late evening meal. I only do so twice a week. I have lost loads of weight. I dont eat any refined sugar.

Litatamon profile image
Litatamon in reply toHectorsmum2

Thank you & congratulations on the weight loss, Hectorsmum.----------

I am not diabetic but my blood sugars have increased substantially since my thyroidectomy - without any change in eating.

I assumed it was because I need to take steroids periodically.

Maybe I was wrong.

I am on a very high level of levothyroxine (Synthroid).

Litatamon profile image
Litatamon in reply toHectorsmum2

So you are most likely under 500 calories for those two days? Is that fair to say?

Hectorsmum2 profile image
Hectorsmum2 in reply toLitatamon

No more like a thousand.

Dryski profile image
Dryski in reply toHectorsmum2

Sorry about your falls. I have an ankle with hardware from twenty years ago and also had extra bone removed from it. I had to stop because being a fall risk isn't an option.

Henry1066 profile image
Henry1066

I personally believe that the meds also cause cancer . I know many people that take it and had cancer. I too was showing all symptoms of eosophageal cancer. I am currently trying to come off meds and having a low carb diet / keto/ carnivore seems to be helping . After only 3 weeks of changing my diet was told I was being overdosed on the meds (150mcg) GP reduced to 100mcg. I am now down to 75mcg of my own doing. Hoping that I can get off altogether with carnivore diet. Also I know definately that levothyroxine can affect the heart . This is in the list of side effects. I have had some kind of cardiac event and was diagnosed with angina...was having pain every day..since dropping the amount of levothyroxine....no more chest pain or palpitations!! I've also had a mini stroke a while ago and I believe this may have a connection to the medication. I am feeling much better after meds reduction and change in diet.

Katherine1234 profile image
Katherine1234 in reply toHenry1066

Henry I am with you on this journey, we are on the same page. I too am going carnivore and taking all the necessary supplements that make thyroid hormone. 8 years ago I came off cold turkey and felt brilliant for 3 weeks and then went downhill big time. But this time I am not doing cold turkey, I will slowly cut it down and it may take 6 to 8 months. I also have very low stomach acid which I have read most hypo patients have that are being treated with levo. I have started to take HCL, digestive enzymes, probiotics and ox bile. Otherwise I am going to have big trouble of carnivore. I did it once before, felt great, 3 weeks in the nausea and feeling ill was huge, so I gave up. I will also take electrolytes.

I put my journey in the post below.

Henry1066 profile image
Henry1066 in reply toKatherine1234

Katherine1234 Thank you for your encouraging message. Really hope that all goes well for you this time. I too tried to go cold turkey before and it didnt work out but things seem to be going ok this time with diet change, some supplements and gradual reduction of medication. I have been taking levothyroxine for appx 28 years !! 🥰

Katherine1234 profile image
Katherine1234 in reply toHenry1066

It gives me hope Henry1066. I am getting ready to go for it again.

Stillrambling profile image
Stillrambling

New to posting here and as I saw this post and replies, I felt like it was time to open my gob and join in. I am long term, 30+ years being diabetic type 2 but I have always been treated as type 1 because I am VERY insulin resistant. Insulin resistance causes my body to be in 'storage mode' with energy rather than readily release it into body's use...which then sends signals that there is low energy levels in the immediate availability from easy sources like liver/blood etc. ...that means emergency signals for 'hunger state' goes around, you feel need to replenish the lack of energy..need more insulin to compensate and so on it is vicious circle that is not always easy to break out of. Thyroid has its role to play in it and if that role is not fully functioning, one's 'engine' is not firing in all cylinders. Just like with thyroid issues, diabetes is not always just single/simple issue path to develop it and causes to be diabetic can be multiple kind of 'reactional' thing. There is tendency with doctors to treat it as simple, 'take this'...'keep your numbers bellow x-level and all is good'. Nope...it ain't that easy and little things like a just simple cold can throw all the best efforts of being 'good' out of window and blood sugars are out of control for quite some time. Threating diabetes is often kind of 'plaster on the big wound situation' approach but in the long run they are not dealing with the real cause(s) that admitedly can be mystery to solve. It is only relatively resent years that establishment have begun to acknowledge that there is different types of diabetes than just 1 or 2...and then there is those 'grey areas'. That is often where other organ functions or lack of them, nutrient deficiencies etc etc play a big role...never mind having appropriate diet that would help each individual for their individual needs...standard 'healthy eating' or 'five a day' approach just don't cut it. Now I'm not trying to say having 'levo' would not cause elevated bloodsugars...anything that is not suitable for one's body can..even just being stressed can cause it..some people's system can be very sensitive that way. But it is often more than just 'situation A leads to situation B'. There is so many paths/hormones/trickers/sensitivities that send messages around body when something is not right and that can have effect to one's blood sugar levels...minute as measured as a 'snap shot' but accumulating over longer period of time. Unfortunately solving these things is often trial and error situation and we have to make these decisions if it is worth it or not. I could write 100+ page essay of examples from my own health situation 'causes for blood sugar rises and trials to find them out'...and I'm still in the process of finding more new situations out and fighting to get help from the 'those who write the prescriptions'. But what ever form of issue one has with 'thyroid function' and related things...they WILL have to be functioning well enough or there is no chance of getting diabetes or developing situation under control! If there is other form of method then 'levo' to get the thyroid 'pathworks' functioning correctly then that is great...but personally I would correct this issue first before being worried becoming becoming diabetic. Well, that would be my preference in the order of things...having 'thyroidy' symptoms to me is far more debilitating than living with diabetes.

flosslechops profile image
flosslechops in reply toStillrambling

does this mean you don't make enough insulin if its like type 1?I am heterozygous for the INSR gene which causes type A insulin resistance syndrome = too much insulin but I am also heterozygous for a couple of the DIO genes and MTHFR which I believe causes low thyroid hormones so as you say there are a lot of different things going on(I have type 2 diabetes ,very high blood sugar with no symptoms but just about every hypo sympton going)very interesting,thank you for posting

Stillrambling profile image
Stillrambling in reply toflosslechops

It is not quite so clear cut situation....In early on set, often there is not enough insulin production to start with, but type 1's can have loooong 'honeymoon period' when their pancreas are still producing sufficiently and that's when doctors can mistake it to type 2. Type 2's in the early years, when their pancreas are still functioning adequately, their response can be overcompensation with too much insulin. Over time that will cause pancreas to wear out and cells that produce it to diminish....that's when 'you don't make enough' steps in. Some might not go through that and don't make enough to start with. I have to admit I don't understand half of the terms you have written down so cannot comment to your case. 😅 I'm only just learning around thyroid/diabetes 'combo' issues as it seems now to become relative with my own health....throw into mix some possible autoimmune things. Insulin has more roles than just simple 'bringing glucose levels down'..one of its bigger roles is as a 'storage hormone'..like a 'traffic cop'. But if it doesn't play its role correctly and direct all the glucose being stored into one single 'freezer' without allowing stores out of it...that's where the trouble starts. This can be issue without even being yet classified 'officially' as diabetic, though some say it is pre-cursor to become one. Insulin has a 'side effect' to cause us put weight on...if not in general but even when given injections...the injection site can become 'fatty'..that's how powerful hormone it is. All these years being diabetic, I've never had my hba1c levels as 'normal' and I was put on insulin within first year being diagnosed one...it is only now, years later that I'm being investigated that maybe I am after all type 1! 🙄 (that revealing phone call should happen tomorrow). But yes....thyroid and diabetes have many linkages and if you have one, often there is reason to suggest investigation that there is issue with other as well...that's if you are lucky to get doctor on board with it.

flosslechops profile image
flosslechops in reply toStillrambling

I tried insulin a couple of years ago for 14 months but it gave me severe side effects as did the other diabetic meds-and unfortunately docs that I have seen are just not interested-I hope your phone call goes well tommorrow

Stillrambling profile image
Stillrambling in reply toflosslechops

Hmm...I've just been thinking over your question and my long reply doesn't quite answer it. Regardless what type one is....what is important that one has sufficient supply of insulin, that is the very basics of it...then it comes to 'does that insulin do what is supposed to?'...and then it comes to investigation what are the causes of the lack of or misfunction of the insulin before the 'type stamp' can be put onto somebody. Some are clear cut to start with and there is smaller number of people that may develop their 'type/condition' over the time = honeymoon period before the true nature of issues reveal themselves. Cause for these issues can be 'natural' (with type 1 often autoimmune issue) but external influences like viruses, injuries etc. can be fault as well...but essentially the effect and the treatment is still pretty much similar and limited. I'm still struggling to find right words but it just shows how complicated these things can be.

flosslechops profile image
flosslechops in reply toStillrambling

this is what an endo said to me when I asked why I had diabetes-doesn't matter what the cause the treatments the same-and yes I think treatment is very limited and doctors don't know much about either thyroid or diabetes in my experience😪

Stillrambling profile image
Stillrambling in reply toflosslechops

The usual 'treatments' with type 2 is various medications that try to dampen down the effects of diabetes, they are not the cure and addition to them, helping the patient to make some healthier life style choices, which many health care providers around the world don't have good track record with. Providing those lifestyle changes are correct for the individual and/or they are started early enough and patient is sticking to them...it is indeed possible to put diabetes remission and keep it so...not sure if it can be ever totally cured. With type 1 without getting insulin or enough of it...it will fatal. Newspapers and other media outlets tends to over simplify and make it sound like type 2 patients have caused their condition themselves...which often is NOT the case....but the stigma of fat, lardy lump of a diabetic who have caused it for themself is hard to fight. You get to read such a attitudes between the lines even from the so called health professionals. If you are type 1 or other types...they feel sorry and give their sympathies for you because there is nothing you can do to avoid it 🙄I better stop now or I turn into right moaning and ranting 'Myrtle' 😁

flosslechops profile image
flosslechops in reply toStillrambling

nothing better than a good rant😁 I agree,and having never fit the type 2 profile doctors just seem to be horrified by me and back off because they can't patient blame.

Dryski profile image
Dryski in reply toStillrambling

How true about health professionals being rude to patients even suspecting to have high blood sugars. They even checked my a1c before even considering my thyroid labs could be off. My experience is they circle like ravens trying to pin diabetes on someone without even looking at other possibilities. This is why I demanded an endo appointment for clarity.

FallingInReverse profile image
FallingInReverse in reply toStillrambling

Very glad you opened your gob! Appreciate the nnuanced pov on diabetes, totally makes sense and it’s expanded my understanding. Thank you!

Katherine1234 profile image
Katherine1234

Hi there, I am going to say be careful. I came of of levothyroxine cold turkey 8 years ago. Not because of blood sugar just because I never felt well whilst taking it (I since found out my doctor had left me so undermedicated), I had high cholesterol. I felt wonderful for 3 weeks and got a lot of my energy back. I could stand without having to find a seat to sit down.

3 weeks later, I was in big trouble awful pains in the bottom of my feet and knees. I could hardly walk. Started to get an awful health anxiety. Headaches, just felt awful. I would not go back on levothyroxine, so I went on NDT. Not knowing that years of undermedication had taken down my adrenal glands. NDT made me so sick. I had to go back on levo and could never find a sweet spot again. I developed bad low blood pressure and POTS at this time.

I then found out I had pernicious anemia and had it for the past 15 years, enlarged red blood cells, the whole 9 yards. I inly found this out by requesting my medical records. I was very ill before and they never told me my B12 was so low. My doctor had just put on my medical records due to drinking. I don't drink! Even if they thought it was due to drinking she should have put me on B12 injections. MY MCH's, MCH's and MCV's were sky high over range.

Fast forward I challenged her and got her to put my levo up to 75mcg and then to 100mcg. She had left me on 24mcg for years and then when I had asked before should it go up, she put it up to 50mcg. I stayed on that does for 15 years! My cholesterol went back to normal once I was on 100mcg. Still did not feel well though, no energy and hair kept falling out. She would not entertain B12 injections because I showed now at 600, which was B12 pooling in blood and not getting to cells.

The late Dr Chandy helped me out with the B12 injections and told me I was woefully underdosed on levo. He wanted me to take low dose steroids for my adrenals as they had flatlined. I could not buy it privately anywhere. So I just crawled along. I have bad ataxia and severe nerve damage.

Finely after all those years I got to see an Endo, it was me keep insisting. After only TSH testing, he did free T4, free T3 and TSH. I showed high T4 and low T3. I am now on T3, not doing so great, a tiny bit more energy. A lot of my pain symptoms went away, even my bad gallbladder pain. I have 2 gallstones and lots of sludge. Sadly now taking the T3 I have gone pre-diabetic. I had not changed my eating habits. There must be a coincidence although my endo said T3 does not out up blood sugars. I have also put on quite a bit of weight, still slim, but was super skinny before. I believe thyroid medication does put up blood sugars.

I am like you, I still do want to come off of levothyroxine and the T3. And I will do, but this time I will go carnivore with a little veg, and cut down my dose of levo, and go, so, so slowly. I also know the supplements I need to take to accompany this, i.e. selenium, L-Tyrosine, copper, zinc, the B vits, magnesium, C, iodine, retinol vitamin A in cod liver oil and desiccated dried liver capsules. I am on all this at the moment. So this will be the next leg of my journey. Just thought I would let you know how bad I felt going cold turkey off of levo after 20 years. And this time I will cut down very slowly. Hope this helps.

Judithdalston profile image
Judithdalston in reply toKatherine1234

As a very long term hypothyroid, diabetic (initially type 2, but now a decade of type 3c due to acute pancreatitis/ septic shock following routine procedure to unblock bile duct) with fibromyalgia etc etc… I don’t believe my blood sugars rose with levo. but definitely did trying Dr Lowe’s ‘cure’ for fibromyalgia of taking high T3 only dosing. Because I was monitoring the tiny additions of adding T3, plus symptoms, it was clear it was the high T3 driving my blood sugars much higher. Someone on this forum indicated this link, and I eventually found research confirming it. I now take 100levo/ 15+ T3, and this year got a Libre 2 continuous blood glucose monitor from the NHS and as Stillrambling has indicated find my blood glucose levels are far more complicated than just ‘carbs in’, or exercise etc!

Stillrambling profile image
Stillrambling in reply toKatherine1234

Sounds like we both share the same supplement stash! 😂I think that without them I would not be crawling around anymore but I would be source of bone meal for the garden...

Katherine1234 profile image
Katherine1234 in reply toStillrambling

We are what we eat. Or we are what we can digest. I have had to work long and hard on building up my low stomach acid and bile. And putting in the supplements I need. Well we both know we rattle! :)

SleepyKitty profile image
SleepyKitty

I haven't had a chance to read all the replies yet (I'm at work atm) but have you had your B12 and ferritin checked? I found out over the past year I'm B12 deficient (not absorbing it anymore) and also have low ferritin as a consequence. These can both cause a false high with the Hba1c reading, I saw mine climb 3 points in 6 months and it went hand in hand with a decline in my B12/ferritin readings (no lifestyle/diet changes in that period).

Just a thought. I do hope you find a solution, wishing you all the best.

Goldengirl69 profile image
Goldengirl69

Thanks for this. I hope u get well. X

Ziburu profile image
Ziburu

Thanks for the heads up

I read up…

A normal A1C level is below 5.7%, a level of 5.7% to 6.4% indicates prediabetes, and a level of 6.5% or more indicates diabetes. Within the 5.7% to 6.4% prediabetes range, the higher your A1C, the greater your risk is for developing type 2 diabetes.

I take T3 will check if it affects in the same way. I’m always asked if I have palpitations though. Good luck with your health Dryski

josephinius1 profile image
josephinius1

My HbA1c is creeping up, too. Last fasting blood sugar check showed it was highish as well (up to this point it's been lower than 85.) I don't know how it all works, only last year I think did I learn I was at higher risk for developing diabetes, though. Just one more thing no one ever told me...but, since no one told me anything about the long-term outlook with Hashimotos, this is not surprising.

Am thinking about getting a continuous glucose monitor but I'm not really sure what else I can do to fend this off. Maybe full-on low carb, but...well, I guess that's why you get the monitor, to see what causes it to rise? I just don't understand diabetes very well. My dad had type 2, but he was overweight, didn't exercise, etc., ate whatever he felt like eating. I've been active, saying no to all kinds of things all my life.

Now, my weight is okay and I'm pretty fit, but I have very severe osteoporosis which limits my ability to due a lot of things because I've already had fractures, am possibly already percolating kidney disease (more testing needed,) apparently am at risk for kidney stones, have dealt with massive PVCs (started taking taurine about a month ago, though, and so far, they are gone!) and all of these can be connected to Hashimotos, either because of inflammation, poor management, or...? I just turned 63...I know people deal with worse at my age, (although very few deal with the degree of osteoporosis I have at any age,) but I thought I was doing what I needed to do to at least get to 70 before I developed relationships with multiple specialists. 😞

josephinius1 profile image
josephinius1

Don't have time to read all the comments, but I also have high ferritin (apparently more commonly associated with hyperthyroidism,) highish cysteine levels (something to do with B vitamins,) too. I guess I can donate blood to help with the ferritin...as long as my PVCs stay away. Ironically, last time I tried to donate they deferred me because I had too many. Of all the $%@×÷= ....!

Henry1066 profile image
Henry1066

Also only 3 weeks into carnivore, as well as cancer symptoms subsiding , borderline diabetes for years. and low vitamin D..now corrected according to GP, so normal blood test other than the being overdosed on levothyroxine.. Was told my cholesterol is high but that is another subject for discussion...Not a worry to me as we need good cholesterol. I have not felt as good as I do for a long time ..

ICE187 profile image
ICE187

I would be more afraid of stopping my levothyroxine than getting diabetes. My aunt stopped her levo cold turkey and was dead 6 months later. Her blood pressure became out of control which lead to kidney failure. Her cause of death was listed as heart failure. IF I were to quit my levo, I would do it very slowly while under a doctors care. I take Berberine and watch my diet. My a1c is great for now.

Dryski profile image
Dryski in reply toICE187

I am under doctors care and will be seeing an endo in two months.

ICE187 profile image
ICE187 in reply toDryski

Great. Keep us posted.

Lulla profile image
Lulla

I need to read the replies in more detail. Interesting post. My A1c is now also at 6.1.

Could this just be all part of the metabolic syndrome? I also have very high liver numbers. And psoriasis - and recently psoriatic arthritis.oh and also high cholesterol. (I’m running out of things that I don’t actually have a problem with) I’m not sure exactly but I think they are all connected. Liver/thyroid/pre diabetes.

Does anyone else get their liver panel tested?

Sinkingfast profile image
Sinkingfast

Just throwing this in the mixing bowl .... I've been on levo for nearly 30yrs. Historically always had low blood sugar.

Am overweight . t3 is never optimal. Has taken me 5yrs to drop a dress size...

At the start of the C19 pandemic I caught c0vid. I became pre-diabetic.

Anecdotally heard numerous reports of ppl becoming diabetic after being ill with c0vid!! Googled it and it seems to be a thing.....

Asked if I could control it via diet as very drug intolerant. Was given zero advice. I was eating "healthy". Then got advice not just about sugar, rather carbs & to keep daily carbs to below 130g. (I now Google everything that isnt fat or protein fo the carb content) Went into diabetic range & got sent to dietitian who opened door to me, said, best thing you can do is lose weight, before he'd got back to his seat ' to which I laughed & said, good luck with that! & mentioned my thyroid. He looked at my food diary and said he couldn't help me further as I was already doing it. He then admitted he knew very little about the thyroid, so spent the rest of the appointment educating him!!

Since then I had the most awful period of stress which sent my blood sugar into the - we need to medicate you now - range. I asked for a 3mth reprieve, kept my carbs as low as I could & am now out of the danger zone.

I new to this journey & know I need to do more research, but know there is a lot more to it than just diet.

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