Another emotional roller coaster ride with my Endo visit yesterday as it started out great he was 45 minutes late for my appointment and then he was in a mad dash to throw my concerns away so he could move on to next appointment. Not so fast mister.
Anyway he is pleased to announce Im cancer free and my thyroid levels are now “perfect” and that my dose is absolutely fine and my “issues” are not thyroid related at all. Im tired of hearing this and I asked him point blank then WTH is all these issues Im experiencing if its not my lack of thyroid causing them ? He said well probably your psoriatic arthritis and I said oh really that’s funny my Rheumatologist says it my thyroid and my neurologist says its my hormones but you say it not …. Well it’s something and Im sick of dealing with this so he agreed to change and up my medication I will be starting soon Tirosint 112mcg and still take the 10mcg Cytomel and nope can’t up it. This is such a small increase Im not feeling this will be helpful and my 100 pound weight gain in 5 years according to him doesn’t warrant a much higher dose… I disagree.
I asked him about Armour thyroid and he looked at me and said thats hard to regulate and “it comes from a pig” with this eww look on his face I said nothing wrong with AT its been around longer then Levo and he immediately changed the subject.
I will retest in 3 months at this point I will pay out of pocket for the FT3 test because he said its not a needed test “lord help me”and I will ask my primary doctor to order a complete vitamin and iron panel and see if this stuff looks good.
Has anyone tried Dr. Westin supplements for thyroid? If so did they help. I keep seeing these supplements advertised and Im just curious.
Rant over!
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Batty1
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Hi Batty he must be the twin brother of the one I saw or do they all go to the same endocrinologist school, why aren’t any of them interested and why are a good majority of them men
I have a theory that, in the medical pecking order, brain surgeons come at the top, followed by cancer specialists more generally ... and down at the bottom are endos and liver specialists - because liver docs deal with drunks and endos deal with people who can't be "cured" - at best we can be "kept stable" - so you just don't get the brightest, most able or ambitious of the intake volunteering for the role ...
Sorry to hear that, not that unusual unfortunately! As an endocrinologist you would have thought he would also know that for many years all that kept diabetics alive was insulin synthesised from pigs too!
He knows he just doesn’t want to deal with adjustments of meds Im mean hell he begrudgingly gave me and extra 84mcg per week increase yup you read that right 84mcg increase …. What a mighty mighty good man!
I actually really don’t know how to proceed. I’ve been under this endo for the past 10 months and he sucks. He gaslights me all the time and now his secretary is doing the same.
My little, little labs … horrible as usual Im 5 years post thyroidectomy (cancer) and my TSH has risen to almost 2 and my FT4 and T3 are in the low normal range as always and I have and Endo that believes Im doing good …. Sure I am I have gained so much weight because I have been unable to move like a human for almost 5 years because I developed psoriatic arthritis shortly after my thyroidectomy (home bound due to crippling arthritis for 3 years)….. I could go on and on and on but at last that really doesn’t gets me no place fast with Endo… my issues are dismissed and my weight is as you know ME always ME never thyroid induced nope just something Im doing to myself …. I was a fitness instructor and half marathoner before thyroidectomy now Im and overweight crippled lady and doesn’t look like its going to get better any time soon.
Not much I can do really I have had 7 Endo’s in 5 years chasing this dream of getting back what I lost and really its pretty much gone and I need to move forward with who Iam now “let go of the past”.
If at any point I start to feel really bad I will definitely put my foot down and light my current endo up since opening my mouth isn’t really an issue for me and the only real issue I seem to be having lately is muscle fatigue no matter what I'm doing , for example stirring a pot for can leave me with fatigue in my arms and this isn’t a constant issue it’s random but severe when it happens.
What is your end goal when it comes to thyroid health?
I would like to feel like life is worth living again. It's 9 years now since I could dance and ride my bike and go on stage and have fun. 9 years since doing the housework just came without thinking about it.
My feet and legs are terribly painful and my feet are a size bigger than they used to be. I literally don't know how to carry on. I am totally sedentary and have no strength to work. I never feel joy. I am on both Levo and T3. Each time I raise the T3 I feel good for a day, in fact this last time I survived a week before I felt as awful again. But then it just reverts back to awful.
“Why do you need me to up your dose for you? You have Synthroid at home, cut themUp and increase. U want to increase T4? Cut up your Synthroid and increase by 25, you want to increase your T3? Do it!”
It’s a woman, and she said I have so many doses of Synthroid to not waste them. Start cutting them up and using them. She said watch out for hyper symptoms, cut back if I feel hyper. But if I don’t feel well on 112 no reason to stay on it. She said tsh isn’t low and frees aren’t high, undermedicated obvi
Slowly increase. Drop back if hyper symptoms occur, etc.
Too funny me to. Its sad when you lose your thyroid and somehow a pill or two is supposed to make everything better for you…. I regret my thyroidectomy almost everyday!!
She said I can cut up my levo and increase my T4 by 25mcg or I can chew on a 5mcg cytomel all day in 1.25 increments til I feel hyper then drop back. The choice is mine.
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