TSH 0.87 (range 0.35-4.94)
FT4 (range 9.0-19.0)
I was diagnosed 8 months ago hypo with TSH of 126.43 and had over 1000 auto antibodies.
Currently on 75mg one day and 100mg next day.
Went to see endo yesterday in Sheffield for a 2nd appt to get results of blood tests for cortisol, rhematoid arthritis etc, he said all was normal.
I am far from feeling normal!! I explained to him that I was in bed all Friday afternoon (which isn't unusual cause I'm constantly exhausted, last Sunday was really bad, felt like I had something stuck in my throat, my thyroid was enlarged and hard, shaking, teary, internal shaking, spent most of day in bed.
He didn't take any notice of what I said, just said my TSH was fine and results are fine.
I asked him if I had possibly adrenal fatigue and he said he did not recognise that word!!
I asked if I had Hashimoto's cause of autoantibodies that I have and he said it was postpartum thyroiditis, looked this up on google and you only have it for a year after having a baby, I had my last baby 7 years ago!
I said that I have terrible aches and pains in my fingers, wrists and hands and he said he would refer me to rheumatology which he said he would do at last appt 4 weeks ago.
I then asked him for copies for all my results and he looked really surprised, he went quiet and then after a while, said he would post them out. I asked him if I was possibly allergic to levothyroxin and perhaps that's why I wasn't responding and he just said in a really patronising voice, your not allergic to it.
I am totally fed up with fighting to get myself better, I noticed my ferritin was below range and he hasn't done anything about it, I just wish I had stood up for myself better and demanded for more help.
I asked him about having my T3 checked but they don't check for that in Sheffield! I'm wondering whether I'm not converting my T4 to T3 ????
Is it worth buying Amour thyroid and seeing if that helps????
Basically the Endo has washed his hands of me and referred me to Rheumatology, I'm so annoyed that after telling him I'm still not well, because it's not normal for a woman of 37 to have to go to bed 3 times a week to sleep for 4 hours in an afternoon??!!
I would be so grateful if anyone had any advice they could give me or what I should do next? So sorry for rambling on!