Well just back from my first endo appointment in 14 months!!! They've cancelled 1 and I cancelled 1 because they didn't send me the blood forms. Had problems getting them again this time too - my own Dr couldn't get the forms either, so he did the blood tests and I printed them out to take to endo today.
So when I said you won't have any blood test results because I have them here, he said oh, why's that then. So told him that his secretary is rubbish and that she never responds to messages. Sorry about that he said.
I tell him I'm self medicating with NDT. He says why's that? I say because I had eye problems in February when on levo and my Dr is clueless about thyroid issues and I haven't had an appointment with you since October 2015. Oh, sorry about that he says.
Then tells me that NDT isn't licensed and that T3 isn't licensed either (I never mentioned T3). Tells me that NDT is dangerous and that they have no way of monitoring it and kept pushing levothyroxine which he can measure!!! I disagreed with him about NDT and he really didn't like it. Also told him the T3 issue is all about money and he disagreed with that, he said there was no evidence that T3 works. I told him if he had a thyroid problem, he'd be begging for T3.
I have Hashi's - and he tells me that I have antibodies for both under and over active thyroid - he said it's rare. He said he didn't have any other blood results on file and I told him that it was because I've not been seen by them for 14 months!!!!
I gave him the BH and Genova blood test results that I've had done myself this year - 3 lots.
I've got hypopituitarism too as pituitary isn't producing TSH. I asked him why the letter that his colleague sent to me said that this was the only hormone that was an issue, when they never even measured the others. He couldn't answer that and agreed to test all pituitary hormones including ACTH, with the exception of sex hormones as I'm menopausal.
I mentioned possible adrenal problems and gave him some symptoms and he said possibly adrenal insufficiency and said he will do a cortisol test (I know a saliva test is best), but I wasn't going to refuse - I had 5 phials of blood taken today.
I mentioned that the reason that I stopped levo was because of awful problems with my eyes (which are much improved on Omega 7 supplementation). He's referring me to the eye hospital for a check up. I mentioned that I was checked in July at another hospital, but he said he would prefer to check again as he could see the problems with my eyes. By the way, I went to the appointment wearing no makeup so that he could see how exhausted I was.
I did this when I was diagnosed, had been seeing the doctor for months and it was only when I went wearing no makeup that she could see how exhausted I was, so I thought I would try it again and it worked - a tip for you perhaps?
He said he's going to review my whole case in case they've missed something and I might have to have the TRH test done again and perhaps a Synacthen test for adrenal insufficiency.
He insisted that his preferred treatment for me is levothyroxine. He's written me a script or 75mgs (I was on 100mcgs before I stopped it). I only agreed to it to get the tests done.
He said I can phone him and he will speak to me if I have any problems - gave me his secretary's extension number (not much use really since she never responds), but it was a gesture. I think he's embarrassed that I've been hypothyroid 4 and a half years and it's never been stable despite being under their care for 2 and a half years. He said he'll see me in 3 months.
This is the same endo who told me that because I had an auto-immune disease doesn't mean I'll get others!!! He said if that was the case, his waiting room would be full of people with auto-immune diseases.
I've got Hashi's, Graves, Hypopituitarism. I'm having a 24 blood pressure monitor next week because my BP is now raised (it's always been low) and now I'm pre-diabetic. He's a diabetes doctor and couldn't see it on the blood results that I gave him - it was top of the page!!!!
I gave him the Dr's pack on LDN and he said he'd never heard of it, but would read the info - don't know whether he will.
I really don't know how to feel after today's appointment.