Hi, I just thought I'd post an update on my endo visit of this week.
It went almost as badly as it could!! I saw an endo that I saw about 9 years ago at a different hospital. He caused me a lot of trouble with various GPs back then because he told me I had to stop taking T3 completely. He had not changed his opinion since.
He was not interested in listening to any of my symptoms or health issues. He told me that his advice is to stop taking T3 completely. I told him that was not going to happen. He then told me if I would not take his advice then he could not help me. He told me that it is not possible to have both hypo and hyper symptoms. ( As I definitely do! )
I persisted that I could not continue feeling so unwell all of the time and that it was time that my symptoms were investigated. He asked me what I wanted investigated. I said I thought I might have a cortisol imbalance. He answered, "You do not look like a person with a cortisol imbalance." I asked what such a person looks like. He said they have " patches on their skin." I said I have patches of dry skin. He replied, " You don't have a cortisol problem."
I then asked if I could have low stomach acid. Reply was, " You need to stop T3." He did elaborate and state, " 99.95% of people do not need T3." Whilst I would argue the figure is nearer 80% from what I have read, I do not understand how he can state I am one of them when my health after taking T3 improved tremendously.
I realized I was not achieving anything, but I persisted that I wanted something done. He then said I could have some blood tests done - which were a " fishing expedition and nothing would show up. " He also insisted I have a thyroid test. I said I would see my GP and arrange it. He said that it had to be done now otherwise he would not get to see the results.
I told him that I had taken my T3 only three hours ago and my levo late last night. He said it does not matter. I said thyroid bloods should be taken at least 24 hours after last meds. He told me he had never heard that before and no reason for doing so.
He would not tell me what is being tested - not necessary for me to know?
It is hospital policy to allow patients on T3 to remain on it whilst refusing it to new patients. So he can't actually make me stop T3.
I had no choice but to have the bloods taken immediately. I feel conned. If I'd refused to have the thyroid test, I could not have the other bloods done. Having had the thyroid test done so soon after taking meds, I know the results are going to be very high. This means my GP will tell me to reduce meds again. Once again I'm put under unnecessary pressure.
The consultant I saw in August told me I definitely am hypo and hyper and that it would be extremely dangerous for me to reduce meds whilst I still have so many hypo symptoms. My symptoms are worse now than then. I am very worried again.
I would not have seen this endo if I had known he was the same endo I'd seen before. How can these people be so unhelpful and uncaring?
I'm going to wait until I get the blood results. If they don't show up anything, I will arrange for some private testing to be done. I can't continue as I am. My life is slipping by.