Help! Unwell on T3: I have done a silly thing I... - Thyroid UK

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Help! Unwell on T3

feethead profile image
76 Replies

I have done a silly thing I think and gone against the good advice of the experts (at my peril!) on here simply out of desperation from feeling so awful for so long and seeing my numbers go down despite increasing Levothyroxine.

I have been taking T3 - a 25mcgs tablet cut up into a sixth so 1/6th of a 25mcgs Tiromel tablet every morning around 8.30am since last Wednesday, so six days now. I also take 100mcgs of Levothyroxine at midnight.

I have had some heart palpitations but nothing major. Last night I took another 1/6th of Tiromel at 9pm and when I got up again this morning another 1/6th.

However about an hour after this my heart started pounding and I got very dizzy and faint and have felt like that most of the day, only starting to ease a bit now.

I was advised by admins to not take T3 and instead slowly increase my levothyroxine some more so now I dont know if I should stop the T3 and do that or continue on and see if terrible side effects ease. Hope I can get this sorted as feel I have made myself worse. Thank you

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GlowCoach profile image
GlowCoachAdministrator

If this were me I would stop the T3 and wait until all key vitamins are at optimal levels. Its really the only way to introduce T3 and not be set back.

Hope you feel better soon.

feethead profile image
feethead in reply toGlowCoach

Thank you so much for your reply - I will stop the T3 - feel 10 times worse than I did before!

Katherine1234 profile image
Katherine1234 in reply tofeethead

Have you tried adding copper to your supplements. Having adequate copper is necessary to make iron work properly. Copper helps the body absorb iron from the gut. Copper deficiency can lead to iron deficiency anaemia. Copper was a game changer for me. I started with 6 mgs a day and went up to 9mgs a day after a week. After 6 weeks I added in zinc. I took 15mgs of zinc at night, as zinc helps with sleep.

Copied and pasted - Copper helps maintain optimal thyroid gland function.

Linked to T3 and T4 thyroid hormone levels.

Deficiency in copper can affect thyroid health and lead to other health issues.

Copper is needed for thyroid hormone synthesis.

You said taking iron was not working. It did not work for me either. I added in desiccated liver capsules (2 a day after my main meal). As I don't like eating liver or taking iron supplements.

andyjs2 profile image
andyjs2 in reply toKatherine1234

I see there has been a LOT of great advice regarding this post! I would also like to say that getting all vit/min in good shape before (or at least during) T4/T3 treatment is key to success.

I was helping a friend with her hypo symptoms but before recommending she ask her doctor for thyroid hormone treatment, I had her check her vit and min first.

Turns out she had VERY low but in range copper, and when she started taking a 15mg zinc with 2mg copper supplement her FT3 rose dramatically to the point she felt well without the need for thyroid meds.

So definitely get vit/mi in good shape as soon as you can. This won’t be everyone’s experience, but I bet it’s more than just a few.

However, as others have said on this forum, make sure to take a balanced zinc/copper supplement. If take too much copper in relation to zinc, as I think you’re taking (15mg zinc to 9mg copper), I suspect your massive amount of copper will eventually tank your zinc over time! Ratio of zinc to copper should be around 10 to 1 or so I read and they say on this forum so make sure you’re taking them close to this ratio. Also, I would cut my copper to maybe 3-4mg copper max with 30mg zinc and check copper blood level again and increase both zinc and copper if still low.

Just my thoughts but I think you’re going to run into trouble with so much copper you’re taking in relationship to zinc.

feethead profile image
feethead in reply toandyjs2

My goodness doesnt it complicated! 😕 Havent started a copper supplement yet but will have to look into it. What kind of copper supplement do you take?

andyjs2 profile image
andyjs2 in reply tofeethead

I’m in the US and take this one. 15mg zinc with 2mg copper.

My zinc w/copper supplement.
Buddy195 profile image
Buddy195Administrator

I’m a little confused as you only posted 4 days ago asking for advice…. yet it appears you were adding Liothyronine at this point?

Did you reduce your daily Levo dosage before adding the T3 or keep at same dosage?

One thing I’ve learned through experience is that making changes too quickly in a bid to ‘restore health’ can have detrimental results. That’s why I’m now a fan of making small, steady changes over time.

Personally, I would stop the Liothyronine if you are having adverse symptoms and return to your usual Levo dosage. Focus on improving key thyroid vitamins (as per last post) and look to add 12.5mcg Levo as a next step. It is definitely worth optimising Levo dosage before considering combination treatment.

Whatever you decide, remember to retest levels 6-8 weeks after being on a consistent dose.

feethead profile image
feethead in reply toBuddy195

didnt change my Levothyroxine - have been taking 100mcgs 7 days a week. I am working on vitamins and will add 12.5mcgs Levothyroxine this week and go slowly.. I think I became really disheartened when I seen my T3 and T4 had gone down in my latest bloods depsite the increase of Levo and thought T3 could help.

Buddy195 profile image
Buddy195Administrator in reply tofeethead

Fully understand how you can get disheartened feethead. Many of us here can testify to having a ‘bumpy journey’ to recovering our health. Hang in there and keep posting if you require further support!

feethead profile image
feethead in reply toBuddy195

Thank you so much! Feel better now Ive shared :-)

feethead profile image
feethead

Thank you. Wish there was bullet train! Bio is up to date. have been trying to get ferritin/iron levels up for last year and a half and isnt working. I dont like meat but make myself eat black pudding a few times a week. I also take spatone sachets along with Iron spray.

I tried the Three Arrows Heme as advise on here and it made my gastritis really bad, stopped it and tried again and the same thing happened. I take aspirin for pain and think this has a lot to do with low iron.

SlowDragon profile image
SlowDragonAdministrator

As explained in last post you need to increase dose Levo as next step

healthunlocked.com/thyroidu...

You said in previous post

Ive found some spare Vencamil 100 tablets I had and the way my prescriptions fall I should have a spare 100mcgs each month so will be able to add in 25mcgs a week

Suggest you add 12.5mcg levo twice a week initially

Retest in 6-8 weeks

Buddy195 was meaning (I think) add 12.5mcg per day

You probably don’t have enough spare Levo to do that?

Buddy195 profile image
Buddy195Administrator in reply toSlowDragon

Yes, as per advice in last post, I suggested feethead add 12.5mcg per day. However, I personally like to add 12.5mcg alternate days at first, as my body seems to react adversely to bigger increases. I’m definitely a tortoise and not a hare when it comes to adjusting!

feethead profile image
feethead in reply toSlowDragon

SlowDragon if I add 12.5mcgs twice weekly can you then give me an idea of how/when to increase? maybe add 12.5mcgs the next week and another 12.5mcgs the next week and so on until ive added 12.5mcgs every day and then retest 6 weeks after this? or is that too long drawn out/

SlowDragon profile image
SlowDragonAdministrator in reply tofeethead

Too quick

Add 12.5mcg twice a week…..say Tuesday and Friday

Wait 6-8 weeks and then retest

Then depending on results……you might be ready to increase again

feethead profile image
feethead in reply toSlowDragon

Thank you 👍

feethead profile image
feethead

I wouldnt say I like it - i dont even chew it just swallow it very quickly 🤢Youre the first person on here who has said Three Arrows caused you gastritis - it seems to be really good for everyone but not us! I havent had endoscopy for years - I suppose I should look into getting one.

I suffer with chronic pain and alternate between aspirin and coccodamol - have tried everything else going and side effects too bad to stick. I also have to take Omeprazole but try to limit it to when gastritis is very bad.

My iron spray is 5mgs (havent been able to get the 10mg one lately) so I have three sprays of that along with a spatone and vitamin c. I hate vegetables! I have looked online to see if iron infusions available where I am but cant find anything.

Last had bloods done middle of January - ahve to pay privately for them so was thinking middle of April - give me achance to make some inroad to deficiencies instead of wasting money! Thank you for your reply 😀

Elle137 profile image
Elle137 in reply tofeethead

Hi, I'm sorry you've been so poorly 😔 I don't absorb iron very well & had a private transfusion, if you want to PM me I'll give you the details 😊

Katherine1234 profile image
Katherine1234 in reply tofeethead

I would suggest here that it is link to your stomach feethead. You are taking aspirin co-codamol and Omeprazole. This would be very bad news for my stomach. Aspirin destroys the stomach lining. co-codamol bad news for the liver and takes down your glutathione. Will leave you very anxious and depressed. Omeprazole stops you absorbing essential vitamins and minerals, especially B12. I would have your B12 and folate checked too.

I am the queen of stomach problems and am on the way of curing it so I can get optimum vitamin, mineral iron, and thyroid absorption.

I did this by taking HCL betaine with pepsin 650mgs with a light meal up to 4 of these for a main or heavy meal. Along side 2 digestive enzymes and malic acid capsules. I take ox bile 3/4 of an hour after my largest main meal. I also took a probiotic twice a day. Do not take probiotics if you have SIBO.

Stomach and digestion is the key to good health.

feethead profile image
feethead in reply toKatherine1234

I hate taking aspirin and cocodamol but have no other options for pain relief. I read about HCL betaine and see that it shouldnt be taken with anti-inflammatory drugs so unless I can stop aspirin then that isnt an option for me.

I do have an appointment with a new pain specialist soon so hoping I can find another painkeiller then I can stop aspirin and start to heal my stomach . Im glad youre on the path to healing with your stomach.

Katherine1234 profile image
Katherine1234 in reply tofeethead

What pain are you taking them for feethead?

feethead profile image
feethead in reply toKatherine1234

have had fibromyalgia for years and lumbar bulging discs - more recently have cervical bulging discs. Took tramadol for a few years which helped but came of it due to severe hair loss - a few months after I stopped I became hyperthyroid then hypothyroid and thats how my eventual diagnosis of Hashimotos came about.

The pain specialist Im going to see offers lidocaine infusions so will see if this is something I can do.

Katherine1234 profile image
Katherine1234 in reply tofeethead

Oh no, how awful :( I would definitely get your B12 and folate checked, especially as you have bulging discs. My son had to have B12 injections in thigh to heal his bulging disc, it was causing him severe sciatic pain as well. It is interesting about fibromyalgia as there is a link with underactive thyroid, especially low T3. Have you tried MSM natural sulphur for your back pain and magnets on the back, it helped my son so much? I also upped his amino acids uptake for healing.

feethead profile image
feethead in reply toKatherine1234

My last B12 test in November 2024 was VITAMIN B12 - Active - 99.5 (>37.5). Take a B12 spray and separate B complex. My folate is low so taking supplement for that.

Thats interesting about the MSM - have never heard of it before. I have a back brace that has magnets inside it and it does help. What kind of amino acids do you use? yes, ive read about the link with fibro and underactive thyroid - can go hand in hand.

Katherine1234 profile image
Katherine1234 in reply tofeethead

It is a multi amino acid capsule (2) and then supplemented on top of that with extra glycine and carnitine, a body builders dose. When we have stomach problems it means our stomach acid is low and we cannot assimilate our protein properly. Our protein is supposed to be broken down into amino acids, it is the amino acids our body uses for healing. Our bodies especially our bones, joints, teeth, cartlidge, discs in back all need masses amounts of protein and amino acids for healing. Did you have your protein checked. Mine was very low as I also have ME/CFS, my sons was low too. We had to up stack our meat, eggs and dairy and lower carbs and sugar. He was a sugar junkie and getting no nutrients from that.

MSM is quite a game changer for pain. We are all fairly short now. Another thing I would recommend is copper and a mineral mix for healing. We are so low on minerals. I had to up my sons magnesium and boron for his healing too. He is good now, he had 6 months of being in awful pain. The MRI showed his disc. Hospital just wanted him on all the strong pain killers and an antidepressant. He likes his beer so that was a no, no. So we went the natural healing root. He loved the magnets too.

Good health and repair always starts with the stomach.

feethead profile image
feethead in reply toKatherine1234

Thats really interesting - ive never had my protein checked. What kind of copper and minerals do you use if you dont mind me asking? I take far too much suger in my coffee - will need to wean myself off ☹️

Katherine1234 profile image
Katherine1234 in reply tofeethead

I know how you feel I use to be 2 heaped teaspoons in my tea and don't get me on chocolate :/ Sugar robs the body of copper and zinc. Carbs rob the body of vitamin C. That is why we have to take so much C for healing. I was shoving down 2000 mgs - 3 times a day for my son. If you go on Dr Sarah Myhill's website and put in about your disc's and fibro plenty will come up. She is a star. I am not sure if I am able to say what brands I take on here. You can message me and I will send the names over.

feethead profile image
feethead in reply toKatherine1234

Thank you so much for all your helpful info 😀

Hectorsmum2 profile image
Hectorsmum2 in reply tofeethead

What is the cause of your pain feethead, if you dont mind me asking. I used to be on painkillers like you all the time and they didnt even work very well but now loads better and only take paracetamol one a week or so now. My pain was arthritic.

feethead profile image
feethead in reply toHectorsmum2

I have fibromyalgia and lumbar and cervical bulging discs - I only get very short lived relief from aspirin or cocodamol. How did you stop all the painkillers?

Hectorsmum2 profile image
Hectorsmum2 in reply tofeethead

I have found a steriod injection in my knee very helpful and gentle exercise but the game changer for me has been some hyaluronic acid supplements. It has something to do with fluid and joints but my issue was arthritis, You could try it to see if it helps. I use the brand vegavera. I would imagine your fibro would improve or even resolve with good thyroid care. You can get Vit d sprays that absorb in the mouth I think and you might need vitamain B12 injections for a while ( see Pernicious anemia forum) and an iron transfusion. Gut wise I have found golden linseed very helpful but they might upset you. Very good for constipation. Wish I could wave a magic wand for you.

feethead profile image
feethead in reply toHectorsmum2

Aww thank you Hectorsmum2. I have been offered steroid injections before but have been told by pain specialist that it could actually make my pain worse because of the tender points associated with fibromyalgia.

I reckon your right about my pain improving once thyroid care improves - my pain is severe today and think its because of my latest dabbling in T3, body doesnt know whats going on at the moment 🙃

Enuffisenuf profile image
Enuffisenuf in reply tofeethead

Have you had your B12 checked? Hypo thyroid, gastritis, omezaprole...you are a prime candidate for B12d.There is a lot of symptom crossover between B12d & hypothyroid.

feethead profile image
feethead

Thanks SlowDragon - I might have enough to do that. Initially I will do as you said and add 12.5mcgs twice a week - should I do this for 6-8 weeks and then retest or can I add in say another 12.5mcgs twice a week after say 3 weeks?

SlowDragon profile image
SlowDragonAdministrator in reply tofeethead

Wait at least 6-8 weeks and then retest

feethead profile image
feethead

have been taking that iron mixture for a long time now - over a year and a half and not doing anything so perhaps there is an underlying reason such as stomach damage or something - may have to investigate this. Good luck with your tests.

Buddy195 profile image
Buddy195Administrator

I would retest 6-8 weeks of being on a CONSISTENT dose. Personally I like to wait full 8 weeks as it takes my body this long to ‘feel the full benefit’ of the change.

Lilylui profile image
Lilylui

levo if you read the leaflet with it, also can cause palpitations.

I take T3, I have palpitations as I have AFib

But increased all my vitamins as advised on here.

Insomania profile image
Insomania

If you cannot tolerate iron tablets, ask GP for a referral to NHS haemotology for iron infusion. Thats what I did with advice here. I also did a private iron infusion at local Nuffield while I waited for nhs referral because I felt so poorly. Instant uplift! Have a read of my profile.

Good iron is necessary to convert T4 to T3. So much so, I had a blip last summer where my iron got low (following Covid) and my FT3 went from 70% of range to 40% in weeks. I had an iron infusion in October and a small increase on thyroid meds and FT3 went up to 100%+ by December. (Then had a tiny decrease to get me back within range.)

feethead profile image
feethead in reply toInsomania

Unfortunately it is impossible to speak to a GP or get an appointment with one since covid really - even when my GP did see my low iron a long time ago they said it was fine! Does not seem to be any provision for iron transfusions in my area, either NHS or private. 🤔

Insomania profile image
Insomania in reply tofeethead

It'll be your nearest hospital's providing cancer care. Not that you need to do this, the GP will know where to refer you.

Email your surgery, that's what I do, and ask if you need to make an appt with a GP to refer to haematology. That's how I get in the queue. A 'routine' appt is a 3-5wk wait at my surgery.

It shouldn't be this way but unfortunately we do need to be pushy patients to get the help we need.

GPs have poor understanding of iron issues but it can be a marker for serious diseases, and as I said, you need good iron to support your thyroid. The letter the GP wrote to hospital was not nice to read (basically patient has pushed for a review) but the haematology Dr takes it super seriously and I'm under her longterm (3y so far). She referred me to gastro to get my digestive system checked.

arTistapple profile image
arTistapple

I have tried a number of times to introduce T3. I have always encountered problems. For some people it’s a ‘slam dunk’. Magic bullet. No apparent problems. Not for me. I have found I need to know what I am doing and why I am doing it, to avoid and or prepare for what invariably happens (for/to me).

In an ideal world we would have one to one support but as you can see from the Forum, many of us do have issues to overcome. Going through the same stuff. I have learned from each attempt but it’s certainly been tough going.

Unfortunately this ‘service’ is utterly missing in the UK medical system, hence our great need for the Forum.

Learn everything you can from this attempt.

feethead profile image
feethead in reply toarTistapple

Its so hard "going it alone" without tailored one to one medical support and the worse you feel the more you want to try whatever you can in order to feel better, making us guinea pigs really.

Especially when you see that T3 has been a real game changer for some people but everyones thyroid journey is unique and its a long road filled with mistakes and tweaks until finally, hopefully one day you feel better. 🙂

arTistapple profile image
arTistapple in reply tofeethead

You would not treat anyone with the callousness our medics ‘treat’ us. It’s downright awful. I find their ‘listening skills’ so utterly false (at best) and patronising.

Luckily none of that here on the Forum!

GreekHolidays profile image
GreekHolidays

All I can offer is my own experiences.

T4 Levo, my Dr kept increasing my T4 as nothing seemed to work and then at 200mcg a day I almost had a heart attack as so overdosed.

Under the guidance of Dr Peatfield - no longer with us I came off T4 for a 4 weeks to clear the reverse T4. Yes it was hell but better than the symptoms of overdosing T4.

I then very slowly introduced T3

1/4 tab AM

Next day 1/4 tab AM and Lunch

Next day 1/4 tab AM/ Lunch/PM

I held for a few days then slowly increased again till I got to 50mcg a day. Literally that slowly and I could feel the difference

I felt I was missing a base lins so then slowly introduced T4 till I got to 25mcg morning dose.

10 years later I am still on the same dose and live a very normal and happy life.

I do also take vit B12, D3, Vit C, Adrenal supplements, DHEA, fish oil with evening primrose.

As I say, only my experience and each of us is totally different.

Good luck in finding your path.

feethead profile image
feethead in reply toGreekHolidays

Thats a big dose of Levothyroxine. You must have felt awful for the 4 weeks you stopped it. Interesting that youre now on higher T3 and low T4 - just shows how people need various amounts of different things. Im so glad you got to a place thats working for you. Out of interest what dose of DHEA do you take?

GreekHolidays profile image
GreekHolidays in reply tofeethead

50mg daily. I am thinking of reducing it and will listen very carefully to my body.

Good luck

arTistapple profile image
arTistapple in reply toGreekHolidays

This is along the lines I am trying too. Goodness knows how many attempts I have tried now. I could not get past 100mcg Levo but at last seem to be getting somewhere with dropping my Levo and introducing T3. Got a ways to go I think but some signs are good.

GreekHolidays profile image
GreekHolidays in reply toarTistapple

It really helped me to get T3 right firat and then add a bit of T4. Only advice is to listen to your body and vitals such as heart rate and temperature. They were my guidlines.

feethead profile image
feethead in reply toarTistapple

arTistapple, what happened when you tried to get past 100mcg Levo?

arTistapple profile image
arTistapple in reply tofeethead

So ill! I was like someone with cerebral palsy. Could not control arms, legs or head. Could not get off the couch or get to bed/out of bed unaided. Awful.

Katherine1234 profile image
Katherine1234

I am sorry Northernlights I forgot to mention if you have gastritis do not take HCL until you have healed it :( I too had gastritis, I healed mine by cutting out all sugar and processed carbs and my meals were lettuce salad based. It was boring but it did the trick 6 weeks later. Breakfast was a bed of lettuce, chopped raw organic cabbage and other weeds, organic grapes, chopped up crispy bacon and chopped boiled eggs. Lunch was virtually ditto weed based but added tinned tuna or Alaskan salmon. I also made my own homemade mayo and added a weeny splash of organic apple cider vinegar with mother as my gastritis could not stand much. Dinner ditto but with steak or lamb and added roasted sweet potato or cauliflower. I also made homemade chicken bone broth, had 2 mugs a day. I was a real social eating out piranha :/

humanbean profile image
humanbean

A lot of people panic at the thought of taking thyroid hormones. Doctors seem to be scared of them too, particularly T3. And yet, thyroid hormones are extremely safe. Please read this :

healthunlocked.com/thyroidu...

.

From reading your other posts I found that you are taking a PPI for gastritis. You are also taking aspirin and co-codamol. Co-codamol is a combination product containing paracetamol and codeine.

The aspirin will most likely be causing your gastritis. It is one of the NSAIDs (Non-steroidal Anti-Inflammatory Drugs) and it is well known that NSAIDs cause damage to the stomach lining.

en.wikipedia.org/wiki/Nonst...

I took a lot of ibuprofen (another NSAID) when they were first made available in the UK without a prescription (approx 40 years ago). I had the period pains from hell and had no means of controlling the pain because doctors just decided I was drug-seeking. I found that ibuprofen helped me a little bit, but I always tried to delay taking the pills because I was trying to keep my intake to a minimum. I have since discovered that NSAIDs like ibuprofen should be taken before the pain starts, not once the pain is going at full blast. I took so many ibuprofen to try and stop the pain that I developed gastritis too.

Nowadays I am actually prescribed Naproxen (another NSAID) and I find that taking it before the pain starts keeps me much more comfortable than taking it only when the pain is really bad. Naproxen is allegedly a more effective pain killer than ibuprofen and my experience of them both would back that up.

I would suggest that you ask your doctor if you can switch from taking aspirin to naproxen for a trial period as an experiment, unless there is a specific reason for taking the aspirin rather than another pain killer. People should not take multiple NSAIDs because that is dangerous and increases the risk of gastric bleeding.

Personally, I find naproxen is less irritating to my stomach than ibuprofen or aspirin.

I also take a PPI, in my case one called Lansoprazole. If you have problems with gastritis then PPIs are useful. I found that taking a lower dose of PPI twice a day was more successful than taking a higher dose once a day. (Too much at once made me feel sick.) It might be worth trying different PPIs/different doses/different frequency of taking the drugs to see if that helps. I've tried coming off PPIs quite often, but never succeeded. If you want to try betaine and pepsin you need to read these links to find out how to take them safely.

healthygut.com/hypochlorhyd...

healthygut.com/3-tests-for-...

healthygut.com/how-to-suppl...

healthygut.com/4-common-bet...

.

Looking at the nutrient results on your profile ...

Folate level - aim for 20 micrograms/L using methylfolate. Avoid folic acid.

Vitamin B12 - aim for 150 pmol/L using methylcobalamin. Avoid cyanocobalamin.

Take a B Complex containing Active B Vitamins. Avoid products containing Inactive B Vitamins. When Folate and B12 are optimal drop the individual supplements and just take the B Complex. See this link :

jigsawhealth.com/blogs/news...

Vitamin D - aim for 125 nmol/L. Help with deciding dosage here :

grassrootshealth.net/projec...

Zinc - The range you've given is very different to the only one I have which is 11 - 24 umol/L

I don't know the optimal level for zinc (or any other nutrient I don't have an optimal range for), and in that situation I would normally aim for mid-range or the upper half of the range.

Copper - The range I have for copper is 11 - 20 umol/L and I would use the same optimal levels as described above for zinc i.e. mid-range or upper half of the range.

People who are hypothyroid usually have high copper and low zinc. Read this link which mentions zinc.

thyroiduk.org/role-of-vitam...

If people take zinc it will reduce their copper levels. And if people take copper it will reduce their zinc levels. Since people with thyroid disease normally have high copper and low zinc, we usually need to take zinc supplements. But obviously, if you can get zinc and copper measured it will make things easier to treat with confidence. I've been a member of this forum since 2013, and I've only come across one person with high zinc and low copper.

.

Regarding your iron/ferritin, some people have high iron and low ferritin, some have low iron and high ferritin, and some have low levels of both. It is very rare on this forum for people to have high levels of iron and ferritin unless they have haemochromatosis.

I had very low iron and ferritin some years ago. And since I have gastritis I could only tolerate iron supplements with food. It obviously makes it harder to absorb iron but I had no other choice because taking iron supplements without food was impossible for me. I found that my levels of serum iron didn't budge, but my ferritin would rise very, very slowly. I aimed to get my ferritin to mid-range as a first step, and that took me almost two years, but my serum iron was still very low. I then just took a low dose of iron that would maintain my ferritin at mid-range. Eventually my serum iron started to rise as well and once it had risen high enough I stopped taking iron altogether, although I still take a single iron pill when I get cramp.

The iron supplements I was taking were ferrous fumarate 210mg. They are available from UK pharmacies without prescription. They came in boxes of 84 when I was buying them and they weren't hugely expensive. Please note brand doesn't matter.

expresschemist.co.uk/pics/p...

If I had my time over again I would pay for an iron infusion to speed the whole process up rather than relying on just iron tablets..

feethead profile image
feethead in reply tohumanbean

Thank you for all the great info humanbean. I'm not prescribed aspirin, I actually take Beechams Powders which have also contains caffeine. I have decided to stop and got rid of what I have. Its the only way I can heal my stomach. I only take ppi when really bad.

I tried Naproxen some years ago and found it really irritated my stomach.

I had copper tested last year and it was 14umol/l (13-23) so it is at low end. Do you know what kind of copper supplements are available? My zinc was 8.9 (<10.7 low) so have been taking zinc.

humanbean profile image
humanbean in reply tofeethead

I tried Naproxen some years ago and found it really irritated my stomach.

I only take the PPI I'm prescribed because I was told I needed it to protect my stomach from the Naproxen. It took me a while to find the timing of doses of both the PPI and the Naproxen that worked for me and didn't cause pain. Perhaps you could experiment to see if you can find out how to minimise or eliminate the pain.

I've found that missing doses actually increases the risk my gut will be in terrible pain.

.

Wow - you're a rarity with that low in range copper level, at least for this forum. It isn't something that I've ever researched. You aren't copper deficient at the moment but you really aren't far off.

Have you been taking high dose vitamin B12? It can induce potassium and copper deficiency apparently :

healthunlocked.com/pasoc/po...

The following link with the asterisks is possibly very pertinent to you.

*** drlaurendeville.com/iron-de...

lpi.oregonstate.edu/mic/min...

webmd.com/a-to-z-guides/wha...

my.clevelandclinic.org/heal...

Please note the following link is very old - you might want to look for newer links on the same subject :

gastrojournal.org/article/0...

This one is just a case report, but might be useful :

pmc.ncbi.nlm.nih.gov/articl...

pmc.ncbi.nlm.nih.gov/articl...

buoyhealth.com/learn/copper...

pmc.ncbi.nlm.nih.gov/articl...

draxe.com/nutrition/copper-...

feethead profile image
feethead in reply tohumanbean

Thank you for all the info! I wonder why mine is low - it says this on your first link: "copper can be evidenced to be lowered by both iron b12 and vitamin c supplementation too." I have been supplementing with all three of these for last year and a half so that would make sense. I have only been taking zinc seldomly.

And also "Copper deficiency lowers ceruloplasmin which is needed for iron uptake in the gut." - so could be why my iron levels are not rising. Ive ordered a copper supplement so will start on it.

Enuffisenuf profile image
Enuffisenuf in reply tohumanbean

Why do you say 'Avoid cyanocobalamin?'I swap between hydroxo & cyano and don't feel any difference between the two, apart from cost.

humanbean profile image
humanbean in reply toEnuffisenuf

This link will explain it far better than I could :

perniciousanemia.org/b12/fo...

Enuffisenuf profile image
Enuffisenuf in reply tohumanbean

Thanks for that. As their business is selling Methyl B12, I feel that they have a vested interest in advising against cyano. Maybe I missed them but I didn't spot any study references to back up their claims.I use both cyano & hydroxo types interchangeably and there is no difference in efficacy for me. This may not be the case for everyone, it's just my experience.

humanbean profile image
humanbean in reply toEnuffisenuf

The website the link is from is, as far as I'm aware, one of the main PA websites. The references are scattered as links throughout the article.

Enuffisenuf profile image
Enuffisenuf in reply tohumanbean

I've looked a bit more carefully and see the links. Apologies.

It does still look like a company selling injectable B12, rather than a source of PA information to me. Every page seems to end in a 'buy B12' button.There is a useful organisation for PA that many of us B12d folk use for information. pernicious-anaemia-society....

Hectorsmum2 profile image
Hectorsmum2

I would think you are wasting your money on iron supplements while taking PPIs as you need stomach acid to digest minerals. You need an iron transfusion and your gastritis sorted so you dont need the PPIs anymore. They are not good long term as they stop digestion of so many vits and minerals.

Europe profile image
Europe

I feel your pain and I did a similar thing out of desperation. You've been given good advice and I hope you get better soon. 😊

feethead profile image
feethead in reply toEurope

Thank you so much Europe 👍

silverbelle51 profile image
silverbelle51

Stop T3 if not ordered for you! Got to know any hormone replacement is in fact a chemical reproduction of a naturally occurring HORMONE and that it is potent. T4 which Levothyroxine is a chemical reproduction of the naturally occurring T4 which your body makes when your thyroid is healthy. Some times your thyroid is producing T4 , but because of a nutritional imbalance your body is not converting it to T3 which is how your body uses T4 and that is when you need a nutritional profile to determine where your deficiency lies . Generally that is the issue when they keep increasing Levothyroxine and you are still feeling crappy. TSH which is used to measure function of your thyroid is a darn poor tool, but many doctors get hooked on that means sadly . It is a cheap short cut. Don't know if T3 supplements are even well controlled. Some people use nutritional supplements to help their bodies convert T4 to T3 , but not the same thing as aT3 replacement. Hope this helps you better understand that you can't play with hormone replacements of any kind . Not the same as nutritional supplements . Wish you well !

feethead profile image
feethead in reply tosilverbelle51

Thank you silverbelle51. I did learn the hard way - feel shockingly bad today and wonder when I'll go back to just feeling awful again 😬

Lucy___ profile image
Lucy___

I had to stop levothyroxine as I have a heart condition and I felt it was contributing to the runs of NSVT I was experiencing. I know that my cardiologists have advised me not to touch T3 due to concerns over implications for my heart.

This is only my own experience and if you are getting heart palpitations and dizziness on T3 I would honestly ask a cardiologist for advice.

Lucy___ profile image
Lucy___

Ah I've also seen from human bean thread that you also take co codamol. Co codamol makes my heart much much more irritable. Substantially.

So it may be a number of things here that are causing your heart irritation.

I was NOT good on levothyroxine and co codamol as a combination.

feethead profile image
feethead in reply toLucy___

Have been taking levothyroxine for about year and a half and didnt have heart palps with it, also taking cocodamols for years. It was when i added in T3, especially on day 6 that I had the worst heart palpitations ever and a feeling that I was going to faint/ collapse 🤕

Lucy___ profile image
Lucy___ in reply tofeethead

Well yes because you're adding in something that causes heart palpitations into two other medications both well known to cause heart palpitations so you're now taking 3 meds that are all contraindicated in people with heart problems. My doctor would NOT ever put me on that combination as I have known heart problems.

People forget that some medications can be very dangerous to some people which is why people shouldn't just freestyle without advice.

My advice personally would be to stop the T3 immediately and possibly get medical advice going forward.

feethead profile image
feethead in reply toLucy___

Yes I have stopped the T3! terrible experience, scary stuff! Going to slowly increase levo and work on vitamin levels then get retested.

YannickWolfe profile image
YannickWolfe

If more T4 makes you feel better, then that's what needs to be explored. If you feel bad on T4 and your hypo symptoms arent improving at all, then there might be a conversion issue. If you are super hypo and add T3 the heart palps might also be your body reacting to stronger blood flow because you've been in a state of hibernation for so long.

feethead profile image
feethead

xNorthernLightsx what copper supplement do you take?

feethead profile image
feethead

yes, have a lot of these symptoms. Just thinking, I only drink filtered water and wonder if Im missing not on copper by not drinking some tap water? 🤔

Katherine1234 profile image
Katherine1234

Yes you are right iron and copper are close companions. MSM is good for the gut and gastritis, raw cabbage green and red are full of MSM sulphur. That why I ate a lot of raw greens and other raw for the enzymes to heal my gastritis.

I have other issues with gut now as I was on 4 lots of strong antibiotics, took my gut and my microbiome down :( I am half way through healing, might be as much as 70%, it has taken time. :/

VizslaLover13 profile image
VizslaLover13

I would suggest increasing your dose MUCH slower. Perhaps with 30-60 days in a dose before adding a tiny increase (1/6) and stay there for 30-60 days before another tiny increase.

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