7th April 2021...)T3...5.9.....range.. 3.10...6.80
T4...2....range.... 11.00...22.00 ( please note I'm on T3 so this will be low)
TSH... 0.05...range... 0.30...4.50
Bloods taken on March 29th) please note these bloods were taken late afternoon I'd taken my T3 medication at 8am and 2pm as the gp did not say he was doing a full thyroid panel,
T3.. 16.5...range.. 3.10...6.80
T4...2.5...range... 11.00...22.00
TSH... 0.1..range... 0.30..4.50...results after taking T3 meds!!
The surgery called me to speak to the gp who obviously jumped on the above results as why I was feeling so ill... As I explained you never said you were doing a full thyroid blood test so I took my medication as normal, he then said taking you medication will make no difference to your TSH results!! Is he correct?..
My calcium on 1st march.. Was 2.68...range 2.10...2.60..which is over range.. My PTH... Was 4.4....) June 2020...calcium adjusted.. 2.60....PTH...8.1)....( Aug 2020...PTH...9.5...it states in the letter I had a raised PTH with a raised calcium but does not say what the calcium was...) gp is not bothered about the calcium being 2.68) as some on here will know I've been trying to get the endocrinologist and gp to admit I have primary hyperparathyroidism, my gp keeps going back to my thyroid results, he now says T3 is not working for me... I had an appointment with my thyroid surgeon yesterday who as said "if I need surgery for primary hyperparathyroidism he will not do it as I've had a thyroidectomy, I find this unbelievable as I know surgeons can go back in to perform other surgerys on people's necks... I know this is tricky but some surgeons do... My thyroid surgeon is going by the letter my endocrinologist wrote saying.. "The decision about whether treatment should be offered will not be easy having had a previous total thyroidectomy, further surgery to the neck will be more difficult and the possibility of recurrent laryngeal nerve damage is significant, potential benefits in terms of symptoms of end organ damage will be doubtful".. 😠 This so called endo is awear of my many trips to hospital after passing kidney stones, I now have gal stones, ostiopeania, calcification in knees, ankles, shoulder joints.. Stomach /bowle problems ect.... Now my surgeon as put me back to this endo..I've lost all hope 😠😠😠😠😠
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he then said taking you medication will make no difference to your TSH results!! Is he correct?..
Yes, that's correct. Taking T3 before your test will affect your FT3 result, it wont have any effect on TSH. It's the time of day and whether or not you've eaten or drunk anything that affects TSH that makes a difference with that test result.
he now says T3 is not working for me...
Well, you can easily refute that statement by showing the two FT3 results you've posted here. The March FT3 is way over range and you took your T3 before the test, the April one is well within range and you took your test with the correct time gap since last dose of T3. If T3 didn't work you wouldn't have the raised result in March. (Obviously it's showing in the blood but that, of course, doesn't prove it gets into your cells.)
Sorry I can't help with calcium or hyperparathyroidism
Sorry for the late reply, not to good at the moment, obviously as you say the T3 is working for me.. The gp is latching on to the under range TSH.. and low T4.. Do these GPS do any homework on thyroid conditions 🤷♀️.. We on here who take T3 only know our TSH and T4 will be low.. This is not causing me to be urinating constantly drinking like I'm in a desert, have server headaches.. (every morning).. Server bone pain, insomnia, exhaustion, shaking, palpitations ect.. I know shaking and palpitations can come with being hyper but my bloods for T3 are in range.. And my palpitations eased a bit as did my shaking after my thyroidectomy, but came back with a vengeance last year (April) along with the urinating, thirst. Bloods seem to show primary hyperparathiyroidism but I'm having trouble getting a diagnosis, what's new!!! .. Do you think I should request another round of thyroid bloods seeing as my gp botched the last lot in June.. ❤️❤️
Do these GPS do any homework on thyroid conditions 🤷♀️..
No, I doubt it very much, just the few hours one day during med school and they're told it's such an easy condition to treat so of course anyone who isn't presenting with joie de vivre when on thyroid hormone replacement must be a hypochondriac. I've never understood why doctors are so disinterested in helping hypothyroid patients who don't do well on their meds.
Do you think I should request another round of thyroid bloods seeing as my gp botched the last lot in June..
Thank you.. Yes I'm going to ask for another thyroid blood pannle.. Its so frustrating how we are treated 😤.. I asked the surgeon on Thursday why he thought my parathyroid hormones and calcium had gone over range.. He just shrugged his shoulders and said " I don't know"... Thanks for nothing mate.. 😤😤😤
He just shrugged his shoulders and said " I don't know"...
I had that with Dr Drip at my surgery. I went with daily short, very sharp, intermittent pains on one side of my head. Painful and worrying. His considered opinion
"I don't know what it is, come back if it doesn't get any better"
I went every month for 4 months and got the same response every time.
The 5th time I went I asked my son to accompany me into the consulting room. He didn't say a word, just sat there, lo and behold Dr Drip said
"Would you like some investigation, I can send you for an MRI scan."
That's disgusting, but believable, yeah I reckon if it's a male gp or endo, surgeon they treat you as if your a hypochondriac 😠.. Actually on Thursday I wanted to turn round to the nurse who was sitting in on my appointment because the surgeons eyes kept rolling up and he looked like he was half asleep, he had actually just come out of an emergency surgery, OK cudos to him but that's no good to me.. Don't think he was fully awake to be honest, probably looked at me and thought ho it's only a woman I'll pretend I'm listening, discussing for both of us seasidesusie 😠😠
I believe you are right. I recently read the book by Danish thyroid patient and advocate Helle Sydendal (English translation: "From hypothyroid to healthy") who got her health back when she switched from levo to T4+ T3. However, no doctor would listen to her complaints. When her husband accompanied her on one of those visits, and described how many symptoms his wife had on levo only, the doctor finally took her seriously. It´s like women´s complaints need to be "validated" by men in order to be considered by many doctors.
That sounds familiar. Way back in 1973 when I first went to my GP with symptoms, again and again and again, I was told I could expect to be tired because I had two young children (a 3 year old and a baby). No investigation or tests. It didn't matter when told that my hubby was dragging me out of bed and leaving me on the floor every morning when he went off to work, or that I was asleep on the sofa when he came home.
It was only when in 1975, my hubby accompanied me and said "Do something with her, I've had enough" (in my dire physical and mental state I actually threw a heavy wooden coat hanger at him one day, it just missed his head and took a chunk out of the architrave) that the GP said he wondered if it was my thyroid and tested. Went back after testing and he said "Oh, you are ill".
Seems like nothing has changed in all these years 🙄
No, I don´t think it has I sometimes wonder if the reason so few endos specialise in thyroid disorder is because it´s consdered low status since most patients are women...many of whom are treated condescendingly by doctors. If in their 30s, they are told they are tired because they have children, in their 40s it´s pre-menopause and in their 50s menopause...it has always amazed me that many doctors fail to order a simple (and probably rather cheap) test to check for thyroid disease...
Parathyroid op is definitely more complicated when it comes after previous thyroid surgery and it takes a brave experienced surgeon to take it on ! My surgeon predicted problems and he was right, the scar tissue from my partial thyroid op caused major difficulties and my parathyroid op took over 4 hours.
Cinicalcet is a med used to treat hpth when surgery isn't recommended or possible.
Hi bantam12 ❤️..That's interesting, of course their are some surgeons who will take the op on.. But yes it would be more complicated after thyroidectomy, but on the other hand is it ok to leave a patient with the complications that come with primary hyperparathiyroidism, I have developed kidney stones, gal stones, ostiopein in my spine, calcification in knees, ankles, shoulders, bad bone pain in server pain everyday just 7 wk ago I passed another kidney stone,, even after thyroidectomy I feel no better and I was assured all my symptoms would disappear after my op..they have not 🤷♀️
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I sometimes wonder if the reason so few endos specialise in thyroid disorder is because it´s consdered low status since most patients are women...many of whom are treated condescendingly by doctors. If in their 30s, they are told they are tired because they have children, in their 40s it´s pre-menopause and in their 50s menopause...it has always amazed me that many doctors fail to order a simple (and probably rather cheap) test to check for thyroid disease...
