Looking online it seems I have Graves and hypothyroidism??
I feel best when my TSH is around 0.5. To me the results show I am underreplaced on T4 and T3 but GP says in reference range now. I feel so tired, cold and I have lost so much hair which is continuing to fall out.
I am on 50mcg of levo (Euthyrox) and 10mcg of liothyronine (thybonn). The lio is reduced for the past few months from 12.5 mcg cytomel as no supply of cytomel. And thybon comes in 20mcg so I've been splitting that - half a day.
I am speaking to the endo on 3 March but I think everything is pointing to me taking control of the situation and medicating myself with monitoring via medichecks or the like.
I am having more tests on Friday via GP: cortisol, estradiol, prolactin, GFR, testosterone, ferritin and folate. I was diagnosed with secondary adrenal insufficiency (pituitary) in Thailand in 2015.
Any insights into this would be so appreciated.
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OllyTojo
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There is nothing in your results or previous posts that suggests Graves , and also the test for Graves is overrange TRab , which you have here TSH receptor antibody < 1.5 (0 - 3)
and this is a negative result , so you don't have Graves
It was unclear on the internet re TRab reference ranges.
Don't look on the internet for reference ranges. The ranges are specific to the lab which does your test so you can only use the range that comes with your result
Hello SlowDragon. Thank you so much for this reply. So helpful. Yes T3 and TSH were done first thing before meds and food as per info I had read on here. FT4 was done in the afternoon a few months ago. I am hoping they will repeat the FT4 on Friday morning 8.30am before food and meds. They are saying they don't need to as my results are fine. I have said endo needs them and have my fingers crossed. I am waiting for some T3 from abroad and will up that when it comes back to my original 12.5mcg and will split the doses in 2. Meantime, I will take a bit more thybon in the afternoon. Then increase levo after a few weeks.
This is what I thought but I wanted to wait for all my tests to come back so that they and I can see how I'm doing on the current dosage.
I've been saying for ages I feel cold, my digestion isn't working and my hair's falling out. Their reply: 'it's winter'. I'd laugh if it was funny
That's interesting. I didn't realise. I have had such a struggle to get them done. T4 and TSH were done in A&E in November (at my sneeky request when they were doing other tests. I was expecting them to do all 3 tests). I had acute kidney failure out of the blue (50% loss in function across all markers and off the chart blood pressure and irregular heart beat). Do you know if suddenly stopping T3 would affect the heart and kidneys. I was given old T3 by pharmacy that hadn't been stored properly (needed to be kept in the fridge). My TSH was 3.39 up from 1.5 suddenly. Hair has been falling out since then. They won't do T4 as my TSH is normal. I think I'll just bite the bullet and fund my own thyroid health from now on. I think it's going to be the only way to successfully get my thyroid levels right. Thank you for your replies. It is much appreciated.
That's brilliant SlowDragon. Thank you. I feel much more upbeat and relieved to know I have access to all that I need to be able to sort this for myself. Thank you so much 🙂
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