Help with Blood Results: Hi everyone needing your... - Thyroid UK

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Help with Blood Results

Ahoyyou profile image
5 Replies

Hi everyone needing your help as just had up to date bloods as still having alot of symptoms - sweating, aching joints, weight gain, bloating,low moods,agitation, sometimes I also feel like my face is bloating and get tingling around nose / top of mouth area and fatigue . Just wondering if it could be my thyroid or menopause?

I take 125/ 100 mcg alternate days and D3 cholecalciferol 10,000 iu once a week.

I previously was on block and replace for 2 years then stopped all medication as told by endo.

I have since moved area so now at different surgery and not under endo ( I was rediagnosed march 2020).

TSH 0.59 mu/l (0.30 - 6.00)

T4 14.2 pmol/L (10.4 - 24.5)

T3 4.3 pmol/L (3.0 _ 7.1)

Thyroid peroxide AB >1000 IU/ml (0 - 35)

TSH ReceptorAbs 1.3 IU/l (<1.0)

Folate 3.6 ug/L (3.0-20.0)

Ferritin 37 ug/L (10-291)

B12 249 ng/L (160 - 1000)

Vitamin D 53 nmol/L

Thank You

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5 Replies
SlowDragon profile image
SlowDragonAdministrator

Your results suggest you are under medicated and need dose increase in levothyroxine

All four vitamins need considerable improvement

Are you taking any other vitamin supplements apart from vitamin D?

You do appear to have both Graves and Hashimoto’s

Are you on strictly gluten free diet?

Or tried it

Ahoyyou profile image
Ahoyyou in reply to SlowDragon

I had a build up vitamin d prescription in march then was told to buy over counter ( endo recommended the D3 chol last time I was diagnosed 5 years ago) so been taking once a week.I'm not vegan or vegetarian, my diet is ok just commenced gluten free diet to see if this helps as not been good lately and now really fed up of feeling like this.

I will make appointment with gp to discuss but as you say drs dont deal with the vitamins/minerals.

Thank you for your help

SlowDragon profile image
SlowDragonAdministrator

B12 and folate are very low

GP should test for Pernicious Anaemia before starting any B vitamins

You may need B12 injections

Once you have had testing.....supplementing a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

chriskresser.com/folate-vs-...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Certainly only start on one per day (or even half tablet per day for first couple of weeks)

Or Thorne Basic B is another option that contain folate, but is large capsule

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Low B12 symptoms

b12deficiency.info/signs-an...

With such low B12 result taking a B12 supplement as well as a B Complex (to balance all the B vitamins) initially for first 2-4 months, then once your serum B12 is over 500 (or Active B12 level has reached 70), stop the B12 and just carry on with the B Complex.

B12 sublingual lozenges

amazon.co.uk/Jarrow-Methylc...

cytoplan.co.uk/vitamins/vit...

SlowDragon profile image
SlowDragonAdministrator

Vitamin D

10,000iu once a week is only 1400iu a day

How long have you been taking this dose?

GP will often only prescribe to bring levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Calculator for working out dose you may need to bring level to 40ng/ml = 100nmol

grassrootshealth.net/projec...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Taking too much vitamin D is not a good idea

chriskresser.com/vitamin-d-...

With your Vit D, are you also taking it's important cofactors - magnesium and Vit K2-MK7?

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

SlowDragon profile image
SlowDragonAdministrator

Low ferritin

What’s your diet like, are you vegetarian or vegan?

Low iron and/or low ferritin frequently linked to hair loss

Heavy periods are classic sign of being hypothyroid and will lead to low iron and ferritin ask for full iron panel testing for Anaemia

Never supplement iron without doing full iron panel test for anaemia first

Post discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/Websites/...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

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