Opinions please: Hello, this is my first time... - Thyroid UK

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Opinions please

Cstutt profile image
20 Replies

Hello, this is my first time posting. I have been looking on this board for the last few days and you all seem impressively informed so was hoping i might be able to get some advice..

I am 37 and for the few years been having what i thought may be perimenopausal symptoms. it occurred to me that there is a cross over with hypo symptoms of which i have many. After may trips to the GP and not much help i was finally offered a blood test for what they called the 'tired all the time' tests. They are all normal by NHS standards but i am wondering if any of you clever people have any further thoughts on the results below. Am i barking up the wrong tree thinking it could be a thyroid issue? Is it worth getting further private tests? Any feed back gratefully received.

I am so fed up feeling so unwell and not making any progress in getting better.

HbA1c - 31 umol/L (30.00-41.00)

Folate - >24.0 ug/l (>4.10ugl)

Ferritin - 18 ug/L (10.00-291.00)

B12 - 721 ng/L (160.00 - 820.00ng/L)

Free T4 15.9 pmol/L (9.00-22.00 pmol/L)

TSH 3 mU/L (0.10 - 4.00 U/L)

I take B12, Folic acid and spatone liquid Iron.

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Cstutt
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20 Replies
Nanaedake profile image
Nanaedake

Have you had a full iron panel? I presume you are not taking levothyroxine in which case your thyroid hormone is normal. You need a vitamin D test as low vit D can cause fatigue.

Cstutt profile image
Cstutt in reply toNanaedake

Thank you so much for your reply.

Yes sorry Hemoglobin was 141 g/l (115.00 - 165.00)

I do take 1000 dose of vit D also and no not diagnosed so no Levothyroxine.

Nanaedake profile image
Nanaedake in reply toCstutt

Haemoglobin is not the same as a full iron panel, have you no TiBC level? If not then go back to doc and ask for it to be done. Looks like you might have a problem holding onto iron so you need to find out. Fatigue likely connected to low iron. You need a vit D test if you are supplementing and have not had one since supplementing.

Cstutt profile image
Cstutt in reply toNanaedake

Ok thank you I shall go back and ask, it has been a big learning curve for me in realising how GP’s have such limited resources.

Nanaedake profile image
Nanaedake in reply toCstutt

Well, you can only ask. It might be some other problem underlying but if you're feeling so tired something could be wrong. Have you ruled out sleep disorders?

Lora7again profile image
Lora7again

Your TSH should be 1 or lower and your Ferritin is much too low so I think you might be hypothyroid. Some other members who are much more knowledgeable than me will be along to comment shortly.

Cstutt profile image
Cstutt in reply toLora7again

Thank you for replying. It is low especially considering I take spatone iron everyday!

I do have extremely heavy periods so assume that is the reason!

Lora7again profile image
Lora7again in reply toCstutt

Yes it could be the reason but if you are hypothyroid that causes heavy periods.

Cstutt profile image
Cstutt in reply toLora7again

I saw that on the symptom list! I just want to get to the bottom of why I feel horrible. I have a good starting point now thank you

Marz profile image
Marz in reply toCstutt

Are you taking VitC to help iron absorption ?

humanbean profile image
humanbean

Your ferritin is less than 3% through the range. No wonder you're tired!

I would suggest getting a full iron panel done. You could be suffering from iron deficiency or even iron deficiency anaemia.

An iron panel can be done privately with Medichecks - no doctor required and only a finger-prick sample of blood required :

medichecks.com/iron-tests/i...

You can get 10% off the price most days using the discount code THYROIDUK. For today only (until midnight) you can get 15% off the price with discount code CHEERUP15. They often have special offers on Thursdays. You can't combine discounts.

Even if you aren't officially anaemic, or iron-deficient, you would feel much better with a ferritin around mid-range i.e. about 150 - 160 with the range you've given. But before thinking of supplementing iron I would suggest getting further tests done.

Have you had a Full Blood Count done? That can give further info on iron and anaemia.

Once you have further information for us write another thread giving the results and reference ranges and ask for feedback.

Cstutt profile image
Cstutt in reply tohumanbean

Hello humanbean thank you for replying.

I did have a full count done and all was normal, Hemoglobin was 141 g/l (115.00-165.00) So assuming I am not anemic? I can see the ferritin was low but not sure how to interpret that when the Hemoglobin was normal.

humanbean profile image
humanbean in reply toCstutt

You would still feel better with greater iron reserves - which is what ferritin is.

Just for comparison...

The Spatone you are taking contains 5mg iron per sachet.

When my iron and ferritin were very low I was prescribed ferrous fumarate 210mg, one to be taken three times a day. This dose supplied me with 207mg of iron per day.

It is a good idea when taking therapeutic levels of iron to get iron and ferritin levels tested every 6 - 8 weeks. (Your spatone definitely doesn't classify as a therapeutic dose.)

You might find this paper of interest :

ncbi.nlm.nih.gov/pmc/articl...

Some other links that could be of interest :

restartmed.com/hypothyroidi...

Cstutt profile image
Cstutt in reply tohumanbean

Thank you, If the GP says it’s all normal how can I go about getting treated? I have been going for 3 years with these symptoms and this is the first time I’ve even been tested. This is where I come unstuck as they just don’t want to help.

humanbean profile image
humanbean in reply toCstutt

In the end I had to test and treat my own iron deficiency.

Iron supplements - even those which are prescribed - can be bought in pharmacies (in the UK) without a prescription these days. I buy my own from Tesco Pharmacy. I test myself when I think it is appropriate using tests from various companies such as Blue Horizon or Medichecks.

humanbean profile image
humanbean in reply toCstutt

If you want feedback on blood test results we can often help with thyroid-related results - and low nutrients are definitely part of having thyroid disease. So post them when you have any and ask for feedback.

humanbean profile image
humanbean in reply toCstutt

I've been a bit unclear in saying how I got my low iron treated. I got a prescription from my doctor for two months worth of iron supplements. I'd had to practically beg for them because my ferritin result was just over the bottom of the range.

I learned, purely by accident as a result of something the pharmacist said, that I didn't actually need a prescription for the iron supplements, I could just buy them.

Knowing that my chances of getting another prescription from the doctor were slim I started buying my own rather than beg for another prescription.

I learned a couple of years later, after buying a complete copy of my GP records, that my serum iron was under the range and had been for at least three years before I started supplementing.

It took me 21 months of supplementing at maximum dose to raise my ferritin to mid-range. I still supplement, but I take a maintenance dose now. If I stop then my ferritin drops like a stone.

I do testing privately roughly every 9 - 12 months now, although when I was actively trying to raise my ferritin I tested more frequently.

SeasideSusie profile image
SeasideSusieRemembering

Cstutt

The reference to TSH being 1 or lower is for when someone is already diagnosed hypothyroid and on levothyroxine.

A normal healthy person would have a TSH no more than 2-ish with FT4 around mid-range-ish. Your TSH is on the high side and you would be diagnosed hypothyroid in some countries whose cut off level is 3. Here in the UK, unfortunately, it is 10 unless raised antibodies are also present along with an over range TSH and then an enlightened doctor should prescribe Levo.

Your Ferritin level is extremely low. Low Ferritin can suggest iron deficiency anaemia so you should ask your GP to do an iron panel and full blood count. Low Ferritin causes many symptoms, see

healthline.com/health/ferritin

Spatone is unlikely to help.

As you are taking B12 and folic acid, presumably you have had very low levels/deficiency when tested? If so, low levels/deficiencies can be caused by autoimmune thyroid disease, aka Hashimoto's, which is where the immune system attacks the thyroid and gradually destroys it. So it would be a good idea to get Thyroid antibodies tested. Your GP can only do Thyroid Peroxidase (TPO) antibodies tested and if this comes back negative he will say everything is fine. There is another antibody test - Thyroglobulin (TG) that can also suggest Hashi's but this can only be done when an endocrinologist requests it. You an have negative TPO antibodies but positive TG antibodies so it's important not to rely on a negative TPO result. It's also possible to have Hashi's without raised antibodies.

You also need to test Vit D.

Cstutt profile image
Cstutt in reply toSeasideSusie

Thank you that is super helpful. I wasn’t tested prior to taking b12 and folic acid but I felt awful and getting no help from my GP so was trying to help myself. Taking the folic acid made a startling difference to how I felt so I must have been deficient. I shall go back to the GP a bit better informed. Thank you

SlowDragon profile image
SlowDragonAdministrator

Getting TSH, FT3 and FT4 tested as early as possible in morning before eating or drinking anything other than water will give highest TSH

Important to test TPO and TG thyroid antibodies

20% of Hashimoto's patients never have raised antibodies

healthunlocked.com/thyroidu...

The fact all your vitamins were low is suggestive of being hypothyroid

Have you had cholesterol levels tested?

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