I first posted six months ago and since then have been trying to take all the advice on here (thank you). Here are my latest results - I did have a short period of feeling good where my TSH was 2.1 but am not feeling so great again. Here are my latest results - would be great to know if you think I should be going on meds or keep on with supplements and gluten free which I've not been consistent with. GP refused last time but may go private.
I'm taking the following supplements: vit D, Thorne vit B, selenium, zinc, magnesium citrate and omegas. Have also have figured out I'm lactose intolerant so have reduced dairy to practically nothing too.
FT3 5.21 pmol/L (3.1-6.8)
TSH 3.92 (1-4.3) has been as high as 6 previously
FT4 12.6 (12-17)
TgAB 194 (0-115) has been as high as 945 in the past!
TPOAb 12.3 (0-38)
Total B12 348 (300-569)
Ferritin 326 (13-150)
Vit D 74.1 (50-150) has been as low as 23
I have previously done the Blue Horizons vitamin test and was in range for everything but low in some areas have since then been trying to get to top of ranges. Can't afford to retest at the moment but will in the new year. I also have PCOS which I'm trying to get under control - not very successfully.
Thanks in advance!
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Arlie123
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GP should have prescribed Levo 6 months ago when TSH was 6.36 and below range FT4 along with raised antibodies.
Your B12 is lower than last time despite taking Thorne Basic B. I would add sublingual methylcobalamin 1000mcg (still take the Thorne Basic B), use one bottle which should raise your B12 then follow with just the Basic B. That should boost your B12 level.
How much D3 are you taking, your level hasn't risen very much at all. And what form - oral spray, softgel, tablet, capsule? Do you also take D3's important cofactors - magnesium and Vit K2-MK7?
Thanks SeasideSusie - the problem was when I went to the GP she made me redo the tests on the NHS and they came back 'in range' - 2.3 I think - she barely glimpsed at the private ones. She said she would only put me on meds if I was trying for a baby (I'm not but at 37 am running out of time and would like to be in a position to be well/optimal beforehand if it happens!).
D3 - was taking 2,500mcg tabs per day, have now upped it to 20,000mcg softgels twice per week. When I've finished that in about six weeks I've got the 3000 K2/D3 spray to use. I take magnesium but not K2 - will look into that and sub lingual B12.
I haven't been back to the doctor since last time re ferritin - I also need to go back for a physio referral and a lactose intolerance test but have been putting it off as felt like an idiot last time and don't want her to think I'ma hypochondriac with all my 'issues' - silly I know.
Any recommendations for brands for K2/MK7 and sub-lingual B12?
Do you always do your thyroid tests early morning when TSH is highest? No later than 9am, drink water only before the test as eating can lower TSH and coffee affects TSH.
If you can get your TSH over range, with a low FT4 and high antibodies, then an enlightened doctor should start you on Levo.
Thanks for the recommendations. The GP test wasn't done in the morning as I hadn't read the advice here yet. Will try and get them done again and see where I get to! Thanks for all the advice - hadn't actually spotted the b12 being lower and have realised it's probably because I've been eating less meat.
It has been mentioned on here recently that for menstruating women TSH is much higher mid cycle, so also best to get yours tested at that time if you can.
Here’s the original post, it was in jimh111's reply:
healthunlocked.com/thyroidu...
"See the bottom two graphs in this ncbi.nlm.nih.gov/pmc/articl... ."
My Ferritin is 300 and my CRP is over 9 and has been for a while. I have Graves' Disease and my thyroid is under attack but I actually feel ok at the moment except I don't sleep much but I can put up with that because I have felt so ill in the past that I could not get out of bed and my hair was falling out and my nails were dropping off ... I am in my second remission.
Hi everyone, I just wanted to say thank you for all the support. I went to the GP today and have to admit that I told a bit of a stretched truth in that I'm trying for a baby - not strictly true but not a million miles away.
Was a different GP to last time who seemed a bit more up on thyroid issues. She is going to speak to the endocrinologist and depending on what they say either put me on levo, refer or nothing until I'm pregnant and levo at that point. She has also arranged for an ultrasound to check for a goitre which she possibly felt after examining me. She was ok about ferritin and said may be related to thyroid but I have to repeat all bloods (though she didn't immediately discard the private ones like the previous GP).
So feeling positive and that I might be able to make some progress in the new year! This forum really is a lifeline! And wishing you all a Merry Christmas!
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