Help with recent result and t3 dose/ hormone is... - Thyroid UK

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Help with recent result and t3 dose/ hormone issues.

Cheekycharlie1981 profile image

So after a long journey not managing the brands of t3 I am waiting for my nhs script to come in for Thybon 20 Henning. I’ve thought that battle. :)

I’ve been taking 175mcg Levo Teva for 2 months now as it’s taking ages to get the script. I’ve my current bloods taken and I’d appreciate what dose people would recommend I take of the t3 and if to keep my 175mcg of Levo.

Now I’ve only managed up to 5mcg of t3 as it’s like rocket fuel to me, it made me spaced out, but high and also sick on and off, assumed it’s the fillers, hence waiting for another brand.

So at the minute I’m 37, having Anxiety attacks at night, night sweats and not feeling myself.

I requested a cortisol, short synachen test, it was started at 10am.

536 nmo/l

30 mins after 789

60mins after 826

Serum folate 9.1 (3.4-15.8)

Ferritin 59 (22-322)

B12 663 (221-912)

Iron 11 (9-30)

Transferrin 2.60 (2.0-3.2)

TIBC 65 (45-81)

TSH 1.36 (0.38-5.50)

T3 4.9 (3.5-6.5)

T4 16.2 (10.0-18.7)

Also any advise on Activis Levo as I’m not coping on Teva as constantly feeling sick. But I can’t have dairy really but wonder if it’s better side effects than I’m having.

I know my iron is low it was 8, 2 months ago.

Any help, guidance would be appreciated as I’m fed up of all the hormones, feel menopausal at 37. I’ve seen a gp but not much help.

I take lots of vits, iron, selenium, b12, b complex, magnesium, zinc, vit d/k2, quercetin and recently Q10.

I’ve a new complex containing black cohosh, red clover, sage, Angus castus. Is this safe with Levo etc? It’s for menopausal and pms symptoms. For my night sweats.

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Cheekycharlie1981 profile image
Cheekycharlie1981
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7 Replies
Hibs1 profile image
Hibs1

I'm only replying 're the teva and activis, as no expert. The first levo I had was 50 of teva and the side effects were awful. I then found out others had problems and why, and filled in the yellow card form.

I'm also dairy intolerant but took the activis and not as bad as teva. However I did get the lactose/dairy intolerant symptoms.

Cheekycharlie1981 profile image
Cheekycharlie1981 in reply toHibs1

Thank you for your response. It’s difficult to know what will happen, but the mannitol filler in the Teva I think is the cause of my headaches and sickness. I wish like the french we could get Teva to remove it.

I used to have Teva years ago and great and they had to change things, the oral solution caused my tummy to burn and levels not consistent at all.

I found a Levo brand in America, 3 fillers, water, talc and glycerin, I wish. The uk use so much lactose as fillers in tablets it’s difficult with many drugs.

Hibs1 profile image
Hibs1 in reply toCheekycharlie1981

Yes the mannitol with me too. I tried the lactose free liquid but the glycerol in it was as bad as mannitol. It really is ridiculous using lactose for so many meds when it's such a common intolerance

helvella profile image
helvellaAdministrator in reply toHibs1

It is possible for microbes to convert glyerol into mannitol.

sciencedirect.com/science/a...

Mannitol is almost two glycerol molecules stuck together.

Quite a number of people cannot tolerate glycerol in the quantities you get from liquid levothyroxine.

Hibs1 profile image
Hibs1 in reply tohelvella

Thanks for that info. It makes sense now and was not just me

Cheekycharlie1981 profile image
Cheekycharlie1981 in reply tohelvella

I felt so ill on the liquids and never realised this. The E numbers alone are nasty.

cbraffe profile image
cbraffe in reply toCheekycharlie1981

I am Teva and really struggling. The hot flushes are part of the side effects. I am diary intolerant too. I really do not know what is the alternative

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