Bloods - any advice?

[ollymummy]

So I have had updated bloods, I am currently taking 100mcg T3 and 50mcg T4 - constantly feel undermedicated; tiredness brain fog cold etc

Being investigated but fobbed off for PA/anaemia despite being told I looked anaemic and had the symptoms...

Hba1c 24mmol no range

Free T4 9.6 (12-22)

Free T3 19.2 (3.2-6.8)

TSH. <.01 (.27-4.2)

Ferritin 99 (15-300)

Crp 1 (0-4)

Serum b12 413 (180-700)

Serum folate 12.6 (4.6-18.7)

MCV 80 (76-98)

MCH 27.4 (27-32)

MCHC 343 (300-360)

Any suggestions, thoughts or idea?

I am a coeliac (with vitiligo) and a vegan - but I eat eggs - I supplement Vit D, spatone and b12 (although have had trouble remembering for a while)

[SeasideSusie Remembering]

ollymummy

Free T4 9.6 (12-22)

Free T3 19.2 (3.2-6.8)

Those results suggest that you are overmedicated with T3 and undermedicated with Levo. I would consider reducing T3 to get FT3 back into range, and increasing Levo to get FT4 back into range.

As for remembering your supplements, why not make a spreadsheet, keep it out in the kitchen where you can see it, tick off when you take your supplement.

[ollymummy in reply to SeasideSusie]

I find Levo has no impact on my symptoms which is why i phased it out for the T3 - even now my temperature is low, heart rate low, bp low but I am less lethargic than T4 😕 I have no idea and have yet to find a useful gp and the Endo is unavailable until June.

Oh I can walk past a large sign reminding me to give my child lunch money ... I can forget to tick a box 😕 Hashi menopause brain!

[SeasideSusie Remembering in reply to ollymummy]

Have you tried NDT, it suits some people better.

Also, it would be better if B12 was higher so you might consider increasing your B12 supplement, have you tested adrenals?

[ollymummy in reply to SeasideSusie]

I have an appt on Saturday and would like to request a trial of b12 as I am symptomatic. I already double the dose of b12.

I know that I will be asked to lower my dose and likely to have T4 script reduced.

No matter how much I read and look into it I cannot retain the information I find.

I haven’t tried ndt - I did debate it a while ago and can’t remember why I swayed to T3 with T4. I don’t think anyone has ever gotten to the bottom of it all and feel like i need to start from scratch again

[ollymummy]

Oh I had adrenal testing - I’ve had no call back to suggest there was anything wrong and my appt to discuss that is June

[SlowDragon Administrator]

Do you really mean 100mcg T3 and 50mcg T4 or is it the other way around? 100mcg T4 and 50mcg T3?

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Last dose of Levothyroxine 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

If/when also on T3, make sure to take last dose 8-12 hours prior to test

Is this how you do your tests?

How do you take your T3? As split dose every 8 hours? Or as single dose?

Your results suggest you are very over medicated

[ollymummy in reply to SlowDragon]

Yes 100 T3 and 50 T4 - when I started transition from T4 I was on 250/275mcg T4 and still unwell.

11am but fasted and no dose since evening before.

I split T3 into 2 doses 12 hours apart.

Results may suggest that however symptoms of which I can tick most boxes on the thyroid uk symptom sheet say I am not medicated enough.

Which is where my issues lay.

[SlowDragon Administrator in reply to ollymummy]

But over medicated often gives remarkably similar results to under medicated

[ollymummy in reply to SlowDragon]

I’ve always gone by temp and pulse - both of which are low my temp is around 36 usually below and my pulse at rest is 50 (I am not fit anymore either as I damaged my hip and can no longer run or swim) surely if overmedicated these would be higher?

[SlowDragon Administrator]

See on your profile you are waiting for a hip op

An anesthetis is extremely unlikely to agree to any operation with high over range FT3 and suppressed TSH

[ollymummy in reply to SlowDragon]

I have pulled out of surgery as I cannot cope with the worsening of symptoms afterwards and I have allergies to morphine and some anaesthetics which makes everything a pain in the bum