Hi this is my first post. I was diagnosed with Hyperthroidism in October and after seeing an Endo was put on 20mg Cabrimazole. In 4 weeks FT3/FT4 were both in range, TSH still fully suppressed. Dose was then increased to 30mg. After another 6 weeks FT4/FT3 both now on lower end of range FT4 11.2 (9.0-19.0), FT3 4.0 (2.6-5.7) TSH 1.04 (0.4-5.0). I expected the dose to be reduced but was told I would need to stay on 30mg for the next 12 months which contradicts everything I’ve read. I’ve questioned the Endo 3 times regarding my concern over the dose because taking it makes me feel so terrible. So 2 weeks ago I decided to drop the dose to 10mg and see what happens. I've just had a Blue Horizon blood test done and FT4 is now 13.0 (12-22) FT3 is 4.63 (3.1-6.8) TSH now 2.57 (0.27-4.2) so T3/T4 getting even lower, TSH on the rise. T4 Total 81.4 (66-181).
I’m thinking I need to stop taking the Cabrimazole altogether until my FT3/FT4 levels are back to normal (I've read on here that FT4 should be around 70% of range) - it’s pushing me right to the bottom end of the range and I’ve had lots of the symptoms of being underactive.
I’ve been told I have Graves due to:
Thyroidperoxidase a/b 69.1 (<34)
Thyroglobulin a/b 483 (<115)
TRAB 2.7 (<0.4).
I’ve also just had vitamins tested for:
hs-CRP 0.57 (<5.0)
Ferritin 173.0 (30-400)
Vitamin D (25 OH) 41 (insufficient 25-50)
Vitamin B12 253 (insufficient 145-250)
Serum Folate 31.6 (8.83-60.8)
After a few weeks of starting on the Cabrimazole I started to feel much better but now I am very low in energy levels all the time.
Any help/guidance would be really appreciated. I don’t feel like the Endo has a clue what he’s doing!!