Hello again everyone. I recently posted for the first time. Just to recap, I have been diagnosed Hypo 15 months ago after many months feeling ill. Been increasing slowly to 100 levo to get to a tsh of 1 or under. Felt quite bad when I went from 50 to 75 but it seemed to settle a bit but I was still quite symptomatic...... When I went to 100 instead of feeling better I just slowly felt totally poisoned each week with extreme fatique, breathlessness and didn't feel me anymore. .....Looking back I wished I had stopped the 100 dose but it was all unknown territory for me.. Since I haven't responded the way I “should” since my tsh had reached 0.6 my doctor recently suggested it may be a mental issue since I had to deal with a close family member becoming quite ill and my body is shutting down( although he isn't saying I don't need levothyroxine. He more or less said that if the t3 etc was good I have have to be “managed “ differently and we know what this means. He's making this assumption on superficial consultations, and not knowing what Im able to do, when, how long for , what activity I push myself through each day because things still have to be done.
Anyhow, we got the results back and the t3 and t4 are way down in the lowest quarter . I posted them again below. From the advice I got here ( thankyou so much) I spoke to him on the phone and discussed that I wanted to reduce my levo back to 75 and look seriously at my ferritin levels. I again explained why and he reluctantly agreed. So here I am, going back a step and trying to make sure the vitamins are optimal. The thought of increasing levo seriously scares me as I was just a mess. I strangely had a few good days about a week back into 75 levo and a few days on the iron supplement but I have got back to being quite fatiqued again . I guess its early days. My muscles are not as sore and i'm not as breathless.
Could I ask you lovely people some specific questions again?. I need to have good reliable information to fight my case. I had to tell him that the ferritin was too low....i honestly don't think he is skilled enough to manage me and I certainly will not accept its in my mind because he has'nt explored the options with me properly.
I'm now taking ferrous fumarate 305mg one a day...my serum ferritin was 63(13-300) Does anyone know what I should be aiming for and any idea how long it takes to raise ferritin?
Are there any good reliable articles to support the vitamins and minerals having to be optimal to enable levo thyroxine to work.
Are there any good articles supporting T3 in thyroid treatment.Also is it possible to get well just taking T3 alone? If I'm not a good converter do I need levothyroxine at all ?...
Am I entitled to ask for a referral to an endocrinologist if I am not becoming well at the" general practise" and have information to support my case? If things don't change I have run against a wall with this doctor. I could see another but don't know where they stand with knowledge of thyroid issues etc. I suppose at the least I could get her to refer me.
He seemed to think because I had got to tsh 0.6 that we were “there”....that road doesn't obviously work for everyone ...am I right in thinking that the tsh isent always the important value if the ft4 and ft3 are low?
So sorry for all the questions...I obviously wish I didn't have to ask at all....sigh. Thanks again. This forum has become a bit of a lifeline to me. In spite of being ill im also now becoming angry at the way my illness has been handled, and when I think of my doctors answers to my questions along the way its frightening. I think this forum gives people strength, especially when they need it most.
TSH 1.1 (0.27-4.2)
T4 16.6 (12-22)
t3 4.3 ( 3.1-6.8)
SERUM FERRITIN 62 (13-300)
IRON 14.6 (10-30)
TRANSFERRIN 2.7 (2-3.6)
Percentage iron saturation 21.9% (30-40) LOW
B12 was over 900 6 months ago and im still taking a sublingual
I take brazil nuts for selenium
vit D I dont know yet but am taking 4000 iu plus a vit k as advised my members here
Im also taking a probiotic. Started to take betaine hcl briefly as suggested by another member but will introduce it later as starting too many things at the same time can muddy the water.
best wishes to all