My daughters suffering weakness,fatigue ,mental fog, very emotional, pain in hips lower back, ankles, she can't concentrate has memory problems. Eczema shortness of breath, heavy periods after them stopping altogether. All her tests were so say normal and the ones that were out of range told nothing to worry about. This is the results of her test last Jan15
TSH. 0.05. (0.2-5.5)
T4 18 (10-24.5)
Ferritin 13 (10-300)
Folate 4.2 (4.>u)
B12 395 (180-1000)
Alkaline phosphatase 95 ( 130- 340) should be 3 times adult ranges in children.
Saw endroconologist may 15 as I have graves and she said all the blood tests were ok
When I questioned ferritin folate and phosphorus she said that her iron was a little low and recomended GP to prescribe some iron tablets . She also said if she didn't improve to go back to Gp and get refferal to Bath hospital for ME as this would help if she had a diagnosis for school . She has app at Dr tomorrow with new blood test results , I'm at a loss as she she so poorly my other daughter was diagnosed with ME at 14 SHES 19 and still poorly I have had total thyroid removed due to graves and still battling to make myself feel well after 14 years ago. Please advise on what we should say tomorrow Inorder to get some help. Many thanks
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Kellogs
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Members who are good at with bloods will respond. What struck me that her ferritin level is at the bottom of the range. Her B12 is too low and should be tested for pernicious anaemia before supplementing with methylcobalamin b12 sublingual tablets. They dissolve under the tongue.
They haven't checked her Free T3 and it is T3 which drives our metabolism. T4 is a prohormone. The Endo said her iron 'was a little low' - words fail me.
It's a pity they only go by the TSH these days as previously with her clinical symptoms she would have been given NDT on a trial basis at the very least.
Ask GP for a Free T3 test and this is the reason.
FT3 = FREE T3
T4 converts to T3 and is the only thyroid hormone actually used by the body's cells.
The approx. reference range for Free T3 is 4 to 8.3
We at Thyroid UK believe that you need to know your Free T3 level too because this will often show low if you are not converting, and high if you have blocked receptor cells. Even if you are converting, the body needs the extra T3 that a normal thyroid produces. There has been some research to show that people feel better on a mixture of Thyroxine (T4) and Triiodothyronine (T3). Effects of Thyroxine as Compared with Thyroxine plus Triiodothyronine in patients with hypothyroidism – The New England Journal of Medicine Feb.11, 99 Vol. 340. (Click here for this article).
With all of these tests, your results could be anywhere within the range and you would be classed as "normal". If you are at the very edge of the range, either at the bottom or at the top, you could be classed as "borderline". Neither you nor your doctor truly knows what your normal is, if you did not have a blood test done before you became ill. There are also particular reasons why the blood tests remain in the normal range. If you are not converting from T4 to T3 or if your cells are not taking up the T3 normally, your T4 levels and your TSH levels will still show as normal.
The Broda Barnes Foundation tell us "Dr Barnes found that the primary reason for the inaccuracy of the blood tests for thyroid function is that the thyroid hormones are not utilized in the blood, but are utilized intracellularly. Therefore a patient can have enough thyroid hormones circulating in the blood to give a "normal" reading, but if the hormones are not getting into the cells, the patient will be hypothyroid.
Before the blood tests were introduced I believe there was no ME, Fibro or CFS diseases so it appears to me that NDT helped patients who had those symptoms.
Shaws Thankyou for your reply my daughter had previous bloods done dec14 after she has been off school for weeks with fatigue /weakness her Tsh was 0.05 ( 0.02-5.5) Lo. T4 18 (10-24) she saw endo at the end of May, she didn't do any new blood tests just said her previous blood test showed normal and her thyroid was fine but to have graves antibodies checked yearly due to me having graves . it was only when I questioned the ferritin, folate, alk phosphase that she said that her iron is a little low but folate was fine at 4.2 (4.>) she said it would be better if she was diagnosed then she would get help at school if there was no improvement ask GP to refere to Bath Hospital for ME. I was just lost for words. Thought it best I just leave at that point.
This is an excerpt from a Virologist, a Doctor who specialised in viruses. A while after the introduction of the blood tests etc for the thyroid gland Consultants in the area sent patients to him as they couldn't identify what was wrong with these patients because they didn't fit any criteria so assumed it must be a virus.
Dr Skinner has died now, unfortunatley through an accident, and is missed by many people who had to go to him privately. He invited every single Endocrinologist to a Conference after a few years as he was extremely concerned that patients were not being diagnosed, were becoming very ill and wanted to discuss openly about the method of detecting diseases of the thyroid gland. He was taught as a medical student how to detect what the patient suffered from through clinical symptoms alone.
Not one Endocrinologist accepted his invitation, the last Endo withdrawing the day before the Conference. They don't want knowledge and let people suffer or be given medication for the symptoms rather than the disease. Dr S was then hounded by the GMC for treating patients the way he was taught which I think eventually brought on his stroke.
When my daughter was around 11 or 12 she complained several times about pain. Took her to GP several times and then I told him that my sister had rheumatoid arthritis. He was so angry with me for putting 'ideas' into her head. So life went on and she had her ups and downs but at 24 was admitted to hospital with a rheumatoid flare-up. Is now severely disabled, 18 ops with practically every joint replaced. So listen to your Mother's instinct. They don't know everything. Some illnesses are inherited.
Baba Thankyou for your reply. She was tested for Grandula fever graves antibodies, they are doing the Epsin Barr and other gut associated diseases. She was born 6wks prem they managed to give me injections to help with development of her lungs 2 was prior coz that's when my waters actually broke she wes in special care unit for 2 weeks as she had jaundice . Both my daughters had eczema as before they were 3 mths and the Drs put them on soya formula. The prem, liver and soya issues worry me but at the time I didn't know any better. It was when she was no more than 6 months old that I was then diagnosed with graves. That also concerns me, if it may have crossed over the placenta , as I hemoridged I should of had blood transfusion but I asked if I could do it by diet instead she was 6 was early. When my first daughter was born I was very poorly and 6wks after I was rushed in to hospital they hadn't removed all the placenta so it must has detached in both pregnancies. I think this is all relevant. My grandma had graves and R/A so I think it was from her that I was given these lovely gifts.
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Blood test results help please :-)
Blood results in. Can anyone help please?
Help with blood results please!
Help with test results please
