Just had an appointment with my Endo and I basically told her I was self medicating with T3 added to my T4 as I'm not converting T4 into T3. She then said that many research studies carried out by the British Thyroid Foundation have shown that the T4/T3 combo works for about 3-4 months for patients and then most patients go back to their original state of being unwell. It only works for a small minority of patients. I then asked her if I could access these research papers and she replied she was not prepared to go through the internet looking for them and that I should look under "pubmed". My son who was with me then asked her has there been a synthesis of these papers and she replied "No... I don't know". (I've since looked on the internet and cannot find any). I then asked her does the same stand for those on T3 only and she replied there hasn't been any research carried out on those on T3 only. However, she has given me a trial of T3 to add to my T3 for two months and that after that I would need to get it prescribed by my GP and she would inform my GP that she has prescribed it for a short term. I said if what she says is correct then I need to know why I'm not converting and she replied irritatingly, that more or less and in so many words, we would cross that bridge when we get to it.
I would really like any comment on the above and in particular is there any validity in what she has told me.
She also said my cortisol was good and I replied yes, but that is only a blood test that shows total cortisol and not free cortisol. It doesn't show unbound cortisol and her blood test would only pick up Addisons or Cushings and nothing in between - she looked at me blankly. I said I had a Saliva Test Graph showing that I had low free cortisol and she said that it was wrong.
Could someone also comment on my blood test results:
THS: 0.67 (0.27 - 4.20)
T4: 17.3 (12.0 - 22.0)
T3: 3.9 (4.0 - 6.8) L
There was also another comment made re: Vit D.
25- hydroxy Vit D2 <7
25- hydroxy Vit D3 97
25- hydroxy Vit D 97 (25 - 120)
Comments: Assay does not detect Alfacalcidol or Calcitriol
Deficient: <25 nmol/L
Insufficient: 25 - 50 nmol/L
Consider reducing dose >200 nmol/L
Total 25- hydroxy vitamin D is the sum of D2 and D3
B12 471 (191 - 663)
Folate 17.7 (4.6 - 18.7)