I have felt that I had a hypothyroid issue for many years. My TSH finally went out of range in 2010 and armed with copious research and BMA book by Anthony Toft (and info re low T4 high normal TSH) I was given Thyroxine 50mg and struck lucky with an Endo who a bit later added some T3.
I have been battling a chronic bladder pain condition, iBS, SIBO, Gastroparesis ,Fibro, CFS and various other things since 2008 - presumably some of this is thyroid related. I found my relief at being given meds was short lived as the Thyroxine and T3 aggravated my already severe pain and I had to stop them. I have been working on various gut healing protocols and herbal regimes since then and have seen slow improvements in my bladder condition and gut problems.
My endo is ok with me trying thyroxine at various doses to see if I can tolerate it again which I have done over the last couple of years but always have had to stop it due to increase in bladder pain and symptoms.
So I have some new blood results as I wanted to see what was happening:
TSH 4.9 - range 0.35 -5
Free T4 10.5 range 9-24
Free T3 4.8 range 3.5-6.6
Ferritin 40 range 15-250
Vit D 102 range 75- 200
Folate - normal - no numbers or range given
B12 - 253 - range 200 - 900
Platelets also raised at 470 range 150 - 450 - These have been high on previous tests too but never followed up
Liver ALT 63 0-50 Mild transaminits, ok - again has shown up on previous results but never followed up
I also have thyroid nodules which were biopsied in 2011 but not followed up since then. I am not clear if they could be contributing or are connected to anything.
I know I need thyroid treatment and I think my results confirm that?
I wonder if anyone could offer me any thoughts about where to go next re thryoid treatment? I have a doc who will try me on T3 only which I thought would be worth a try ? Or maybe I should be looking to try NDT next?
I have put on 4 stones in weight and eat very little and try to walk every day but am totally exhausted all the time to the point where I cannot work currently. I felt much better when I was taking thyroxine so I know I need it regardless of bloods.
Could the raised platelets and raised liver enzymes be connect with thyroid? I am not sure whether there is a direct link to the weight gain as looking back through my past results I see the ALT has been up and down a lot even when I was lighter although I think one doc told me it was due to my weight but if that is correct , surely it would stay elevated all the time.?
Can anyone advise about iron supplements as again I have been unable to tolerate in the past due to gut issues.
Sorry this is so long - I tried to keep it brief but didnt do so well! Thank you very much for reading and for any help or suggestions you can make regarding my questions or anyone who is treating with T3 alone.
I havent found much help thorugh NHS for any of my health problems ( which actually began after some surgery and contracting an infection from the hospital) and feel very alone in trying to unravel all this so any suggestions welcome for moving forward as my weight and exhaustion are just so depressing, terrrifying and debilitating.