I am on thyroxine and T3 have developed inflammation in my body, have had T3 and Tsh tested recently. Could thyroid antibodies be causing my problems. Have been on thyroxine for over 70 years. Latest results
TSH 0.03 mu/L range 0.35-4.9
Serum free triodothyroxine level 3.09 pmolL range 2.4 -6.0
I am under a well known thyroid specialist. Seeing him by zoom privately.
Who has requested various tests which my doctor’s have done on the NHS.
taking half a tablet T3 each day split into 2 doses. Then 50 thyroxine a day
Trying to find out what is causing my raised ESR levels
Symptoms of extreme fatigue, thinning hair, and achy body.
Any advice would be welcome
Thanks
Written by
elwins
To view profiles and participate in discussions please or .
Its more likely that low thyroid hormone levels are causing your symptoms than antibodies.
Your FT4 is only 53% of range and needs to be much higher.
Are you taking any supplements - which ones?
Your B12 level is quite low so you wont be able to convert well and use your thyroid hormone well.
Are you vegan or vegetarian? If not:
B12 - do you have symptoms of B12 deficiency? The reference range for B12 is very wide and cut off point too low. theb12society.com/signs-and...
If you do then you should discuss this with your doctor for further tests for Pernicious Anaemia.
If not, then start with a methyl B12 sublingual spray or lozenge for a week, then add a good B complex. Once you run out of the separate B12 just continue with the B complex.
Hi Jaydee, please can you explain the difference between inactive B6 and B6 as P5P an active form. I would like to take a B complex without B6 if there is one, as I suffer from neuropathy. Many thanks
I believe there might be from my limited knowledge and reading but I'm no expert. That is why I am trying to find a B complex with the right kind and amount of B6.
That's the way it should be done with or without a pacemaker. But it can be too gradual, which is not good either. How long have you been on your present dose,
I only started it on Sunday, my gp practice still haven’t made up their minds whether I should be given it on prescription or not, so while they’re deliberating I ordered some through the private endocrinologist 🙂
Ah, ok, so that blood test was done before you started it! That explains it. lol So, it's too early to tell anything. But pretty sure it's that low FT3 that is causing the symptoms.
Right. So how much T3 are you taking? Waiting six weeks is a bit excessive. If you started on 5 mcg, in theory you could increase that by 5 mcg in two weeks time.
It’s actually 5 weeks I wrongly calculated that. I take 10 mcg a day at the moment split into 2 doses . The endos secretary did say she would contact me in a couple of weeks to see how I’m getting on.
You may very well need that, but it could be too high to start on - especially as he said he was starting you low due to your pace maker! I thought you were going to say 2.5 mcg! lol So, be aware he doesn't know much about dosing. Any future increases should be no more than 5 mcg.
I have emailed his secretary, just in case but he did say to split my tablets into quarters ( they are 20mg) and take one quarter in the morning with my Levo and another quarter in the afternoon
Yes, I'm sure he did. But that doesn't make him right.
If you're ok on that dose, that's fine. But just be aware that in the future, he might want to increase by too much because he doesn't really understand what he's dealing with.
He did say that I may be good on that dose and that I may not need an increase, only the blood tests will determine that, I suppose it’s all trial and error but fingers crossed. I haven’t had any palpitations yet anyway 🤞🏼
My crp has been raised for years and not one gp or consultant bats an eye and just change conversation when I bring it up. It is something to keep an eye on but likely you never find out what causes it.I'm hoping mine will finally be in normal range as I've hopefully reversed my fatty liver and high/ low cholesterols and likely insulin resistance.
I know crp was very high when liver ALT's were sky high so that definitely plays apart in it for me
Usually good and necessary that help deal with and heal cuts, infections, colds, etc. Once resolution is found the inflammation reduces. This is a healthy immune response.
Auto-antibodies created by attacks on self healthy tissue are not a healthy response and these antibody type can linger for many years creating chronic inflammation. Chronic inflammation causes further damage, invites other conditions and becomes self driving.
This is why many members advocate to reduce their thyroid antibodies, so reducing unwanted and damaging inflammation.
sorry to hear about your aches. I was quite similar, frizzy hair, aching was horrible, tired and skin gone to pot. All my levels were fine apart from my TSH, I saw a NHS doctor and he said the TSH will always be high as I have an autoimmune disease. It will never come down. All that aside I started taking wild yam cream from Napiers of Edinburgh and the aches almost went immediately, it’s amazing, look into it and let me know what you think, worth a try. If you don’t mind, Could you let me have your private thyroid consultants No, I could do with seeing one, as I would like to get clarification on my TSH. Thanks.
i have no thyroid and have experienced the same symptoms as you especially inflammation when my FT3 is too low yours is low . Also 50 Levo is small to.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Help my body must be in meltdown
Pins and needles all over my body
Am I insane? Or is my body shutting down? 
Chronic inflammation - any tips?
