This is a bit long, I can’t decide if I’m in a Pantomime where I am deliberately being sent in the wrong direction, or if the brain fog means I've forgotten where to go.
My GP practice will only discuss 1 issue at a time, so a year ago when I went with a dizzying array of symptoms I was asked which was I most concerned with.
Which would you pick?
-the lack of feeling in your toes
-the tingling you get in your hands that makes you drop what you are holding
-the memory fog, so you can’t remember the pupils names that you have taught daily for 2 years
-The weight gain
-The always feeling cold, but dreadful night sweats
-The fatigue, and 16 hours sleep that you need a day,
-Lump in my neck ......... and the rest of the symptoms which don’t seem as important.
You all get the idea. In the end I said ‘I don’t know I’m not a trained doctor which do you think I should be most concerned with?’.
GP decides to send me to Neurologist, who takes one look at my blood tests (swears under his breath) and asks why I’m not on B12 with such a low result of 248 (lower range 246). Refers me back to my GP saying I need B12 – GP says "Oh no you don’t’ (Pantomime voice),’ you are within range." So I self-medicate.
“Well I still have all these symptoms – what should I do?”
GP packs me off to a throat cancer specialist, who takes one look at the ultrasound, and says I need you to have another blood test. Results back – letter to GP, ‘your patient has 9 small nodules, consistent with Hashimotos disease, and high antibodies to prove it’.
"So GP, what do I do now?"
‘Nothing – your TSH level is normal (1.25) so we won’t do anything, but your Vit D and ferritin is a little low so here is a prescription’ (Vit D was 17 which I now know is more than a little low).
Back after a month when prescription runs out – GP ‘so your levels will be fine now – off you go ‘
"But don’t I need to keep taking supplements?" "NO – bye" So again I self-medicate.
I leave it a few months – back to GP (I should say that it’s never the same one) – I have 2 new lumps on the side of my throat. This GP is young, so a little more flexible, she refers me for an urgent scan and biopsy, I see an ENT Radiographer who refuses to do a biopsy, saying that it’s just an enlarged thyroid – I point out that if he looks at the last ultrasound (6months previously) I had nodules but not an enlarged thyroid. Results go to ENT consultant– who says I need a biopsy – back for another Ultrasound. Radiographer says I don’t – ENT registrar says I do, so I have now been referred for my 3rd ultrasound in 2 months!
So in a final desperate bid, I have booked a double appointment with the young GP on Tuesday, These are my symptoms, please treat me as a whole person. I am going to appeal to her good nature, and beg on my hands and knees (not sure I’ll get up again).
I know my last TSH is 1.25, I know that my fasting glucose is 6.4, but normal afterwards, I know that I have Hashimotos, I know that the lumps are likely to be nodules, I know that the difficulty swallowing is now likely due to an enlarged thyroid, I know this.
I just don’t know what I’m begging for, I don’t know what to ask her to do next, I don’t know what I’m hoping she will do, I think it’s like believing in fairy tales, and hoping the good fairy will come along and save the day. I still need to believe in fairies!