Had a classic ‘normal’ from the ENT specialist today.
MRI scan of nodules and adenomas in thyroid and close to parathyroid.
ENT: Scan is normal, PTH is normal. Tells me what parathyroids are and what they do.
Me: yeah I’ve watched the videos of the clinic in Florida, they say you can’t tell if they are malignant from a scan, should my calcium be tested? Does it say what is inside the nodules/adenomas we were concerned about from the Ultrasound?
ENT: yes it’s normal
Me: my calcium has never been tested, the ultrasound said adenomas and nodules and masses.
ENT: (squinting at records) no doesn’t look like Calcium has been tested. Your TSH has though, that’s normal.
Me: I’m hypothyroid I test TSH, T4 and T3 every 8 weeks
ENT: I don’t see how, the labs won’t test T3.
Me: explains private testing via NHS labs. Ask about calcium again.
ENT: if you are worried I can book you in for another MRI scan in 6 months to monitor
Me: you said everything was normal
ENT: it is
Me: isn’t that a waste of resources?
ENT: not if it reassures you
Me: let’s leave it there, is there anything on the report about the nodules and what’s in them?
ENT: Squinting again, says you have signs of thyroiditis,
me: Yes I have Hashimoto’s had it all my life diagnosed in 2021.
ENT: Are you hyper?
Me: not anymore that was in my teens and 20s, hypo now.
ENT: ah that explains it
Me: explains what?
ENT: why the report says your thyroid is so small.
Me: Small - as in atrophied?
ENT: Yes well like I said nothing to worry about, everything as we’d expect it, I’ll write this up for your GP. Sorry I know it’s not ideal as your symptoms of pain, swelling and soreness can’t be explained, but hopefully your T4 treatment will help.
Me: what’s with this clavicle pit swelling? It’s grown in the last few weeks.
ENT: yes totally normal, just fatty tissue, shows black patches on MRI, a bit like a lipoma,
Me: But my weight is coming down and these are growing,
ENT: Just ignore it, I know it can be uncomfortable and give you a ‘full’ and tender feeling but we don’t do anything about it.
Hubby came in with, it seems to stop the hypochondriac malingerer vibes. He said the guy was slightly more professional but sounded rather like the doc off The Simpsons.
Have requested the report from the hospital as he wasn’t able to print.
Watching and waiting I guess. 🤷🏽♀️
Trying really hard not to feel like I’ve wasted 000’s of precious NHS resources but also feel like I don’t trust what I’ve been told today. 😟
Any thoughts?