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Xtandi
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Xtandi break for 4 wks
Hi all, Well my pa mo as now decided to take him off the
xtandi
for 4 wks to really know if this treatment is what coursing my pa to be able to not barely walk, I was wondering if any of you have had a break from this treatment and noticed a difference in your health and mobility?
Hi all, Well my pa mo as now decided to take him off the
xtandi
for 4 wks to really know if this treatment is what coursing my pa to be able to not barely walk, I was wondering if any of you have had a break from this treatment and noticed a difference in your health and mobility?
Jack02
in
Advanced Prostate Cancer
3 years ago
Any thoughts on treatments?
In May I stopped
Xtandi
to do immunotherapy when my PSA had rising to over 2.0 (as recommended by my original oncologist in Florida).
In May I stopped
Xtandi
to do immunotherapy when my PSA had rising to over 2.0 (as recommended by my original oncologist in Florida).
Miccoman
in
Prostate Cancer And Gay Men
3 years ago
I am new here
Started taking
Xtandi
8/2/2021
Started taking
Xtandi
8/2/2021
jbskiatook
in
Advanced Prostate Cancer
3 years ago
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Sleep problems on Xtandi
Hi all, I'm wondering has anyone experienced sleep problems on
Xtandi
? My Father takes it at 10am, he does have fatigue during the day which is increasing and is experiencing some weakness in his right leg. But awake almost every hour at night.
Hi all, I'm wondering has anyone experienced sleep problems on
Xtandi
? My Father takes it at 10am, he does have fatigue during the day which is increasing and is experiencing some weakness in his right leg. But awake almost every hour at night.
Nickhmcg
in
Advanced Prostate Cancer
3 years ago
Update on Xtandi and me
Just had latest PSA while on
Xtandi
for 21 months now. PSA value now at .21. Started at 8.5 in Nov 2019 when Casodex failed. Been 5 years on this journey at Stage 4 with 3 bone mets. Currently using Lupron, Zometa and
Xtandi
. When first diagnosed, never thought I would make it this far.
Just had latest PSA while on
Xtandi
for 21 months now. PSA value now at .21. Started at 8.5 in Nov 2019 when Casodex failed. Been 5 years on this journey at Stage 4 with 3 bone mets. Currently using Lupron, Zometa and
Xtandi
. When first diagnosed, never thought I would make it this far.
ppulatie
in
Advanced Prostate Cancer
3 years ago
PSA quickly rising while waiting for trial to start
Will start trial with a triple therapy of 225Ac-J591 + Keytruda +
Xtandi
all on day one. Going forward I will continue with daily 160mg dosage of
Xtandi
and 6 week infusions of Keytruda, with weekly blood work for the next 6 weeks. Hoping for the best!
Will start trial with a triple therapy of 225Ac-J591 + Keytruda +
Xtandi
all on day one. Going forward I will continue with daily 160mg dosage of
Xtandi
and 6 week infusions of Keytruda, with weekly blood work for the next 6 weeks. Hoping for the best!
HopingForTheBest1
in
Advanced Prostate Cancer
3 years ago
Slow increase in PSA while on xtandi
Went to second round hormone therapy last April with
Xtandi
. Thanks so much!
Went to second round hormone therapy last April with
Xtandi
. Thanks so much!
Lynsi13
in
Advanced Prostate Cancer
3 years ago
Tingling and Numbness in fingers and toes
I have been on Lupron and
Xtandi
for about 4 years. I take the lupron shots every 3 months; and the
xtandi
4 pills every day. The side effects that I am having with both drugs are fatigue, numbness & tingling of my fingers and toes. I told my oncologist about these side effects.
I have been on Lupron and
Xtandi
for about 4 years. I take the lupron shots every 3 months; and the
xtandi
4 pills every day. The side effects that I am having with both drugs are fatigue, numbness & tingling of my fingers and toes. I told my oncologist about these side effects.
kcareer
in
Advanced Prostate Cancer
3 years ago
Onto Docetaxel
He’s already been through Xytiga and
Xtandi
and so he’s late to the chemo game and not happy about it. I know a lot has been posted on this but I’m having a hard time accessing all of the data. If you have any advice for him , it would be greatly appreciated .
He’s already been through Xytiga and
Xtandi
and so he’s late to the chemo game and not happy about it. I know a lot has been posted on this but I’m having a hard time accessing all of the data. If you have any advice for him , it would be greatly appreciated .
Stumpgirl
in
Advanced Prostate Cancer
3 years ago
Any New Therapy for MHRPC?? Rookies to the Group
Chemotherapy, Lutetium 177 Treatment in Germany (4) cycles and is now on
Xtandi
. His oncologist does not hold hope that the
Xtandi
will bring down is PSA. His Prostate Cancer is primarily in his bones at this time.
Chemotherapy, Lutetium 177 Treatment in Germany (4) cycles and is now on
Xtandi
. His oncologist does not hold hope that the
Xtandi
will bring down is PSA. His Prostate Cancer is primarily in his bones at this time.
poppymom0211
in
Advanced Prostate Cancer
3 years ago
Well...on the Day After my first Chemo with Cabazitaxel...1/2 dosage every 3 weeks. I felt GREAT yesterday after it...
I was advised to go another route by someone I really respect on here...it was to do the massive testosterone shots for 2 months and then 1 month of
Xtandi
and no testosterone....repeat...and hope for a miracle. My doctor was totally against it.
I was advised to go another route by someone I really respect on here...it was to do the massive testosterone shots for 2 months and then 1 month of
Xtandi
and no testosterone....repeat...and hope for a miracle. My doctor was totally against it.
greatjohn
in
Advanced Prostate Cancer
3 years ago
Stage 4 metastatic
Just starting the journey…stage 4 with Mets just finished 20 rounds of radiation to prostate… lupron every three months…
xtandi
…so far no real complaints… hot flashes and muscle loss are my only two side effects…diagnosis January 2021…MO says I should live a minimum of 5 years… we shall see…have been
Just starting the journey…stage 4 with Mets just finished 20 rounds of radiation to prostate… lupron every three months…
xtandi
…so far no real complaints… hot flashes and muscle loss are my only two side effects…diagnosis January 2021…MO says I should live a minimum of 5 years… we shall see…have been
rogerandme
in
Advanced Prostate Cancer
3 years ago
Fluid retention and xtandi
My husband just started taking
Xtandi
(about a week in) and has put on about 7 pounds in just a few days and is wheezing. Also, he suffers from congestive heart failure. With it being the weekend, prob can’t get in touch with the doctor. I may suggest to him to not take the
Xtandi
for a day.
My husband just started taking
Xtandi
(about a week in) and has put on about 7 pounds in just a few days and is wheezing. Also, he suffers from congestive heart failure. With it being the weekend, prob can’t get in touch with the doctor. I may suggest to him to not take the
Xtandi
for a day.
Madbeach
in
Advanced Prostate Cancer
3 years ago
Spiraling Advice
I have failed most all Standards Of Care including Zytiga + pred, a rechallenge of zytiga with Dex, LU-177,
xtandi
, Docetaxel (Taxotere), Cabazitaxel, and Taxal. It seems now I have liver metastasis which were noted on a CT Scan and reflected in my blood work. So no more Taxotere.
I have failed most all Standards Of Care including Zytiga + pred, a rechallenge of zytiga with Dex, LU-177,
xtandi
, Docetaxel (Taxotere), Cabazitaxel, and Taxal. It seems now I have liver metastasis which were noted on a CT Scan and reflected in my blood work. So no more Taxotere.
noirhole
in
Advanced Prostate Cancer
3 years ago
Zytiga or Xtandi?
We are currently on commercial insurance, and Zytiga would have a copay of $50 a month and
Xtandi
would be free. After we go on Medicare next year, we would have a 20% copay for Zytiga, with an annual out of pocket cap of $3960.
Xtandi
would be free.
We are currently on commercial insurance, and Zytiga would have a copay of $50 a month and
Xtandi
would be free. After we go on Medicare next year, we would have a 20% copay for Zytiga, with an annual out of pocket cap of $3960.
Xtandi
would be free.
leebeth
in
Advanced Prostate Cancer
3 years ago
Peripheral neuropathy and Zytiga
I am switching to
Xtandi
. For At least four months I have had paraesthesias on the balls of my feet. The paraesthesias are most notable when I get out of bed and touch the tile floor at night.
I am switching to
Xtandi
. For At least four months I have had paraesthesias on the balls of my feet. The paraesthesias are most notable when I get out of bed and touch the tile floor at night.
Frigataflyer
in
Advanced Prostate Cancer
3 years ago
Provenge experience
First I had to stop my existing treatment,
Xtandi
. Then I had to go to the Red Cross for the Leukapheresis -- separating the T cells from my blood -- because University of Rochester Medical Center (URMC) immunotherapy department won't do it due to a "conflict of interest."
First I had to stop my existing treatment,
Xtandi
. Then I had to go to the Red Cross for the Leukapheresis -- separating the T cells from my blood -- because University of Rochester Medical Center (URMC) immunotherapy department won't do it due to a "conflict of interest."
Miccoman
in
Prostate Cancer And Gay Men
3 years ago
What causes PCa cells to mutate?
Hormone resistance (as well as resistance to antiandrogens such as
Xtandi
and Zytiga) occurs because prostate cancer cells mutate. For some, hormone resistance develops in only a short time (months to a year), for others, it occurs after a much longer time or never(?).
Hormone resistance (as well as resistance to antiandrogens such as
Xtandi
and Zytiga) occurs because prostate cancer cells mutate. For some, hormone resistance develops in only a short time (months to a year), for others, it occurs after a much longer time or never(?).
mandrake248
in
Advanced Prostate Cancer
3 years ago
Starting an Immunotherapy trial
I’m 3 years in and I have tried Zytiga and Docetaxel both have failed, I was planning on going on
Xtandi
, but got into an immunotherapy trial at Northwestern Medical Center. It’s called ARC-6. I am in an arm that will be receiving etrumadenant, zimberelimab, and AB680.
I’m 3 years in and I have tried Zytiga and Docetaxel both have failed, I was planning on going on
Xtandi
, but got into an immunotherapy trial at Northwestern Medical Center. It’s called ARC-6. I am in an arm that will be receiving etrumadenant, zimberelimab, and AB680.
LBD3
in
Advanced Prostate Cancer
3 years ago
Xtandi questions,yet again
We finally received the first bottle of
Xtandi
yesterday but my husband is still hesitant about taking it. He has a lot of other health issues beside the dreaded recurrent prostate cancer, such as 3a kidney disease, Diabetes, high blood pressure and is really worried about the effects of
Xtandi
.
We finally received the first bottle of
Xtandi
yesterday but my husband is still hesitant about taking it. He has a lot of other health issues beside the dreaded recurrent prostate cancer, such as 3a kidney disease, Diabetes, high blood pressure and is really worried about the effects of
Xtandi
.
Madbeach
in
Advanced Prostate Cancer
3 years ago
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