OK. I presented in 2014 with PC metastasized to the bone. PSA was 65.
Went on ADT without any treatment on my prostate and things have been under control until this year. My PSA has been very slowly rising for years.
In May I stopped Xtandi to do immunotherapy when my PSA had rising to over 2.0 (as recommended by my original oncologist in Florida).
Between 7/1 and 8/17 my PSA went from 3.23 to 8.0 and my urine stream has gotten worse (I had a TURP in April and was pissing like a horse, literally at first -- bladder would just dump out in a huge stream).
My oncologist allowed me to restart Xtandi since I have it on hand but he doesn't think it will do anything about my PSA (side effects have been more intense hot flashes -- still short duration, though -- and return of cold flashes).
So, urine stream faltering and PSA rising. Seems to me to indicate my prostate is growing. You don't have to be a rocket scientist, or even a doctor, to know what my urologist is going to recommend.
Surgery is the last thing I want right now (see my post on my orchiectomy) what other options are there?
Since most men with metastatic disease don't live as long as I have and since most men at my stage of the disease do not have prostates we're off in the weeds, so to speak.
All suggestions welcome.