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Xtandi
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PSA down but mets increasing?
I've been on ADT +
Xtandi
for about a year (see my Bio for details) and my PSA has been slowly and steadily reducing over that time - now down to 0.05.
I've been on ADT +
Xtandi
for about a year (see my Bio for details) and my PSA has been slowly and steadily reducing over that time - now down to 0.05.
Benkaymel
in
Advanced Prostate Cancer
1 year ago
After Zofigo, what next?
My husband just finished 6 sessions of Zofigo (Ra223), which his doctor (MO) recommended after he failed Lupron in 12/21, and then
Xtandi
in 11/22. He weathered it great, with only mild digestive issues and he continues to be asymptomatic.
My husband just finished 6 sessions of Zofigo (Ra223), which his doctor (MO) recommended after he failed Lupron in 12/21, and then
Xtandi
in 11/22. He weathered it great, with only mild digestive issues and he continues to be asymptomatic.
Tinuriel
in
Advanced Prostate Cancer
1 year ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
Xtandi
• astellaspharmasupportsoluti... • xtandi.com/financial-support 6. Nubeqa nubeqa-us.com/support#:~:te... 7. Darolutamide nubeqa-us.com/support 8. Erleada janssencarepath.com/patient... 9. Lupron lupronprostatecancer.com/hc... 10.
Xtandi
• astellaspharmasupportsoluti... • xtandi.com/financial-support 6. Nubeqa nubeqa-us.com/support#:~:te... 7. Darolutamide nubeqa-us.com/support 8. Erleada janssencarepath.com/patient... 9. Lupron lupronprostatecancer.com/hc... 10.
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
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PSMA PET scans
I would like to know how long I should wait before getting a PSMA PET scan I stopped taking
Xtandi
2 weeks before treatment and will not start taking it again until 2 weeks after treatment Treatment consists of radiation to the mets for 5 consecutive days.
I would like to know how long I should wait before getting a PSMA PET scan I stopped taking
Xtandi
2 weeks before treatment and will not start taking it again until 2 weeks after treatment Treatment consists of radiation to the mets for 5 consecutive days.
Ian996
in
Advanced Prostate Cancer
1 year ago
Advice for next steps for 82 year old dad
In 2020 the medicine began to fail and he had provenge and started on
Xtandi
. Now his
Xtandi
is failing. His PSA is presently 2.54, up from 1.17 three months ago.. which was about half of that the months prior.
In 2020 the medicine began to fail and he had provenge and started on
Xtandi
. Now his
Xtandi
is failing. His PSA is presently 2.54, up from 1.17 three months ago.. which was about half of that the months prior.
Lynsi13
in
Advanced Prostate Cancer
1 year ago
Breast tenderness and pain
At the same time I was still taking
Xtandi
120 mg every day. My PSA dropped from 117 to 5. The side effects were hair loss, and general fatigue. Right now I am on Lupron every 4 months, Xgiva every 4 months,
Xtandi
120 mg every day. My PSA has come down to 0.09.
At the same time I was still taking
Xtandi
120 mg every day. My PSA dropped from 117 to 5. The side effects were hair loss, and general fatigue. Right now I am on Lupron every 4 months, Xgiva every 4 months,
Xtandi
120 mg every day. My PSA has come down to 0.09.
kcareer
in
Advanced Prostate Cancer
1 year ago
Oncologist and prostate surgeon conflicting treatment
In September last year Oncologist prescribed
xtandi
and lucrin for 2 years and radiation to the pelvic area.
In September last year Oncologist prescribed
xtandi
and lucrin for 2 years and radiation to the pelvic area.
Jbooopin
in
Advanced Prostate Cancer
1 year ago
Question treatment
I have mpc stage 4 and am on Lupron and
Xtandi
. My OC wants to start me on prolia. Should I have a bone density test first? If bone density is good, should I start prolia anyway.
I have mpc stage 4 and am on Lupron and
Xtandi
. My OC wants to start me on prolia. Should I have a bone density test first? If bone density is good, should I start prolia anyway.
Carplake
in
SHARE Metastatic Breast Cancer
1 year ago
Joint pain.
My husband has had prostate removed 2017, on
Xtandi
for 15 months, then Chemo, now on his 2nd cycle out of 6 of Radium 223. He has about once a week, severe joint pain in his knee. Any suggestions would be appreciated. Tall Allen, look forward to hearing from you. Concerned wife.
My husband has had prostate removed 2017, on
Xtandi
for 15 months, then Chemo, now on his 2nd cycle out of 6 of Radium 223. He has about once a week, severe joint pain in his knee. Any suggestions would be appreciated. Tall Allen, look forward to hearing from you. Concerned wife.
Docker53
in
Advanced Prostate Cancer
1 year ago
Our Pluvicto story
My husband didn't have success with
Xtandi
or Zytiga. MO feels that cabitaxel is our next best step. Genetic testing has been done with no actionable findings. I know that many are not able to complete all 6 Pluvicto treatments and many aren't able to have any success at all.
My husband didn't have success with
Xtandi
or Zytiga. MO feels that cabitaxel is our next best step. Genetic testing has been done with no actionable findings. I know that many are not able to complete all 6 Pluvicto treatments and many aren't able to have any success at all.
Yadifan
in
Advanced Prostate Cancer
1 year ago
Pluvicto works but at what cost
Previously on Firmagon,
Xtandi
worked for awhile, nothing with Xofigo and a few rounds of Jevtana didn’t help and caused problems, also had localized XRT - but had to have chemo to qualify for Pluvicto which is a great advanced treatment for many of us After multiple delays getting Pluvicto with PSA
Previously on Firmagon,
Xtandi
worked for awhile, nothing with Xofigo and a few rounds of Jevtana didn’t help and caused problems, also had localized XRT - but had to have chemo to qualify for Pluvicto which is a great advanced treatment for many of us After multiple delays getting Pluvicto with PSA
Beach18
in
Advanced Prostate Cancer
1 year ago
5/25 update on Zytiga failed
Is
Xtandi
the next step ? Am I overreacting and should wait a couple of months for the next blood test. I would appreciate any thoughts from all of you.
Is
Xtandi
the next step ? Am I overreacting and should wait a couple of months for the next blood test. I would appreciate any thoughts from all of you.
alperk
in
Advanced Prostate Cancer
1 year ago
Xtandi.....(enzalutamide tablets)
I have received my medication, and it is
Xtandi
, not Erleada which I thought it would be from the brochure I received from the physician.....Anyone using this stuff.....and if you will.....what's the "scoop" on this stuff..........thanks......I will start this in early May
I have received my medication, and it is
Xtandi
, not Erleada which I thought it would be from the brochure I received from the physician.....Anyone using this stuff.....and if you will.....what's the "scoop" on this stuff..........thanks......I will start this in early May
eddieboy52
in
Advanced Prostate Cancer
1 year ago
Update on failing Enzalutamide
Brief recent history: a couple of years ago PSA started to rise on the treatment that had worked well (bicalutamide and 3 monthly Prostap injections) So I switched to
Xtandi
just over a year ago. The side effects were horrendous, so I reduced dosage to one-quarter of usual dose.
Brief recent history: a couple of years ago PSA started to rise on the treatment that had worked well (bicalutamide and 3 monthly Prostap injections) So I switched to
Xtandi
just over a year ago. The side effects were horrendous, so I reduced dosage to one-quarter of usual dose.
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
Chemotherapy- to do or not at 82 years ?
Have been put on orgovyx and been told soon will be put on an ARPI - either zytiga or
xtandi
. Chemo was not mentioned. Reading some posts here I wonder if chemo would be an important option for me? I do 45 minutes of walking and some light exercises daily.
Have been put on orgovyx and been told soon will be put on an ARPI - either zytiga or
xtandi
. Chemo was not mentioned. Reading some posts here I wonder if chemo would be an important option for me? I do 45 minutes of walking and some light exercises daily.
Simpson80
in
Advanced Prostate Cancer
5 days ago
Help! - Anyone in Las Vegas area can help me with spare Xtandi
I am on
Xtandi
and grabbed the packet when I left the house. But of course we are away for more than a week so I am going to run out of tablets on Tuesday!! I am an idiot. We are arriving in Las Vegas on Monday afternoon and leaving on Tuesday.
I am on
Xtandi
and grabbed the packet when I left the house. But of course we are away for more than a week so I am going to run out of tablets on Tuesday!! I am an idiot. We are arriving in Las Vegas on Monday afternoon and leaving on Tuesday.
Secretary_Bird
in
Advanced Prostate Cancer
1 year ago
What after docetaxel?
My NHS oncologist told me today that the
Xtandi
I am currently being prescribed might last for the remainder of this year and possibly next.
My NHS oncologist told me today that the
Xtandi
I am currently being prescribed might last for the remainder of this year and possibly next.
BrentW
in
Advanced Prostate Cancer
1 year ago
Xofigo Update
When it started to fail a year ago they added
Xtandi
. Now that is no longer working and have completed 5 of 6 treatments of Xofigo - which he is tolerating well (blood counts are holding up, with only minor indigestion/diarrhea.
When it started to fail a year ago they added
Xtandi
. Now that is no longer working and have completed 5 of 6 treatments of Xofigo - which he is tolerating well (blood counts are holding up, with only minor indigestion/diarrhea.
Tinuriel
in
Advanced Prostate Cancer
1 year ago
Erratic PSA and broken bone
I'm resuming chemo this Friday due to PSA spike and staying on
Xtandi
. Any thoughts as to why my PSA was so erratic lately with the sudden drop to 0.023 and then spike to 6.9? Could it be stress related to the broken bone? Thanks.
I'm resuming chemo this Friday due to PSA spike and staying on
Xtandi
. Any thoughts as to why my PSA was so erratic lately with the sudden drop to 0.023 and then spike to 6.9? Could it be stress related to the broken bone? Thanks.
MechD
in
Advanced Prostate Cancer
1 year ago
xtandi users
We have
xtandi
that husband can't use, he had terrible reaction to it. Any users in us that need this, I will ship to you rather than waste it.
We have
xtandi
that husband can't use, he had terrible reaction to it. Any users in us that need this, I will ship to you rather than waste it.
Spring15-3
in
Advanced Prostate Cancer
1 year ago
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