Search
Search
About
Log in
Join
Experiences with
Xtandi
Posts
Communities
2,040 public posts
Filter results
xtandi users
We have
xtandi
that husband can't use, he had terrible reaction to it. Any users in us that need this, I will ship to you rather than waste it.
We have
xtandi
that husband can't use, he had terrible reaction to it. Any users in us that need this, I will ship to you rather than waste it.
Spring15-3
in
Advanced Prostate Cancer
1 year ago
Prednisone tapping
Dr suggested to start taking
Xtandi
,but to this day I have not taken it because my PCP found out a dangerous interaction with retroviral meds I take for HIV. Now after reading what SE
XTandi
could do to you, I am so glad I haven't started taking it yet!
Dr suggested to start taking
Xtandi
,but to this day I have not taken it because my PCP found out a dangerous interaction with retroviral meds I take for HIV. Now after reading what SE
XTandi
could do to you, I am so glad I haven't started taking it yet!
Blueribbon63
in
Advanced Prostate Cancer
1 year ago
Good news
But for the second time a 3 month period on only 80mg
Xtandi
has failed to have any adverse affect on my progression - I now consider that 80mg is keeping the beast at bay just as well as 120mg was - but the fatigue is much lighter. Makes me happy --- hope it continues for many years.
But for the second time a 3 month period on only 80mg
Xtandi
has failed to have any adverse affect on my progression - I now consider that 80mg is keeping the beast at bay just as well as 120mg was - but the fatigue is much lighter. Makes me happy --- hope it continues for many years.
Stoneartist
in
Advanced Prostate Cancer
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Lymph node treatments
Note my PSA has risen from 0.27 in November to .49 in April I started
Xtandi
in June 2022 when my PSA was 0.69 and it quickly dropped to 0.40 in July but has slowly but steadly climbed back up Is the rise in PSA a result of this mild progression of disease in the lymph nodes or resistance to
Xtandi
Note my PSA has risen from 0.27 in November to .49 in April I started
Xtandi
in June 2022 when my PSA was 0.69 and it quickly dropped to 0.40 in July but has slowly but steadly climbed back up Is the rise in PSA a result of this mild progression of disease in the lymph nodes or resistance to
Xtandi
Ian996
in
Advanced Prostate Cancer
1 year ago
Xtandi monotherapy is very effective
(Zoom your browser to read the image) At the AUA2023 the results of the EMBARK trial were presented. This phase 3 randomized trial had three arms and compared in patients with high-risk biochemically recurrent prostate cancer: - enzalutamide plus leuprolide - enzalutamide monotherapy - placebo plus
(Zoom your browser to read the image) At the AUA2023 the results of the EMBARK trial were presented. This phase 3 randomized trial had three arms and compared in patients with high-risk biochemically recurrent prostate cancer: - enzalutamide plus leuprolide - enzalutamide monotherapy - placebo plus
GP24
in
Advanced Prostate Cancer
1 year ago
2 Questions
I started
Xtandi
on April 15th. My PSA on May 14th was still .7. My MO said this was likely my nadir. I’m not sure if radiation will be approved with a .7 PSA. I’ve received the results of my 2nd PSMA PET scan yesterday.
I started
Xtandi
on April 15th. My PSA on May 14th was still .7. My MO said this was likely my nadir. I’m not sure if radiation will be approved with a .7 PSA. I’ve received the results of my 2nd PSMA PET scan yesterday.
revchris77
in
Advanced Prostate Cancer
1 year ago
Are there options past Pluvicto?
He was diagnosed last year, and over the last 15 months he has endured ADT, Zytiga, Docetaxel (6 cycles), Cabazitaxel (four cycles before it failed), and now
Xtandi
and Pluvicto (and a bone strenghtener). I have added a more detailed medical history in my bio.
He was diagnosed last year, and over the last 15 months he has endured ADT, Zytiga, Docetaxel (6 cycles), Cabazitaxel (four cycles before it failed), and now
Xtandi
and Pluvicto (and a bone strenghtener). I have added a more detailed medical history in my bio.
Marit85
in
Advanced Prostate Cancer
1 year ago
EMBARK trial results reported
Pfizer reported results of the EMBARK trial testing
Xtandi
+Lupron or
Xtandi
alone against Lupron+Placebo.
Seems that hormone-sensitive patients may be able to choose
alone and avoid Lupron. This applies to patients who had no metastases on CT/bone scan.
Pfizer reported results of the EMBARK trial testing
Xtandi
+Lupron or
Xtandi
alone against Lupron+Placebo.
Seems that hormone-sensitive patients may be able to choose
alone and avoid Lupron. This applies to patients who had no metastases on CT/bone scan.
GP24
in
Advanced Prostate Cancer
1 year ago
Anyone tried cabazitaxel (Jevtana) monotherapy?
I'm also thinking about taking enzalutamide (
Xtandi
) [u]after[/u] the cabazitaxel if I still have detectable PSA. Thanks in advance.
I'm also thinking about taking enzalutamide (
Xtandi
) [u]after[/u] the cabazitaxel if I still have detectable PSA. Thanks in advance.
ron_bucher
in
Advanced Prostate Cancer
8 months ago
idea?
The loss of testosterone has definitely weakened him and the lupron brain fog is very real, (which really sucks because of his adhd)...shortly after starting the
xtandi
he developed a tremor in his right hand.
Xtandi
was discontinued due to severe side effects and he was started on Nubeqa.
The loss of testosterone has definitely weakened him and the lupron brain fog is very real, (which really sucks because of his adhd)...shortly after starting the
xtandi
he developed a tremor in his right hand.
Xtandi
was discontinued due to severe side effects and he was started on Nubeqa.
Spring15-3
in
Advanced Prostate Cancer
1 year ago
Xtandi failure?
My Onco said that I needed to stop
Xtandi
whatever the PSA resuls, but I'm obviously scared about what happens when I have nothing but the injection. If PSA doubles while on
Xtandi
every 2 months, what will it do when I am not taking anything?
My Onco said that I needed to stop
Xtandi
whatever the PSA resuls, but I'm obviously scared about what happens when I have nothing but the injection. If PSA doubles while on
Xtandi
every 2 months, what will it do when I am not taking anything?
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
PC invasive to bladder
My dad started taking
Xtandi
for about a month and his doctor did not suggest any treatment to reduce the bleeding. Have any of you know or experience this situation? Much appreciate if you can share your view and/or experience. Thank you in advance.
My dad started taking
Xtandi
for about a month and his doctor did not suggest any treatment to reduce the bleeding. Have any of you know or experience this situation? Much appreciate if you can share your view and/or experience. Thank you in advance.
Hidden
in
Advanced Prostate Cancer
1 year ago
Pluvicto Update
I'm also taking
Xtandi
and of course the beloved Lupron. I think it has been better tolerated than Docetaxel but the fatigue may be worse. Not sure if Pluvicto is to blame or the
Xtandi
. I am very weak and tire easily. I did walk a mile the other day but I was wiped out afterwords.
I'm also taking
Xtandi
and of course the beloved Lupron. I think it has been better tolerated than Docetaxel but the fatigue may be worse. Not sure if Pluvicto is to blame or the
Xtandi
. I am very weak and tire easily. I did walk a mile the other day but I was wiped out afterwords.
bglendi53
in
Advanced Prostate Cancer
1 year ago
Xtandi/Kaiser/Socal/Medicare
Im debating moving to
Xtandi
from Zityga. I would appreciate knowing from anyone here on
Xtandi
while on Medicare with Kaiser? What is the Part D copay you are paying?? (Before the donut hole.) Thanks in advance.
Im debating moving to
Xtandi
from Zityga. I would appreciate knowing from anyone here on
Xtandi
while on Medicare with Kaiser? What is the Part D copay you are paying?? (Before the donut hole.) Thanks in advance.
Hidden
in
Advanced Prostate Cancer
1 year ago
Taste Issues and finger neuropathy on Xtandi( enzalutamide) ?
In order to participate in a clinical trial (FOR46 at UCSF) I had to switch from Nubeqa (darolutamide) to enzalutamide. Previously on abiraterone. Did really well on both medications. Now 4 months on enzalutamide and my 5th research infusion, I'm experiencing some side effects. Trying to determine
In order to participate in a clinical trial (FOR46 at UCSF) I had to switch from Nubeqa (darolutamide) to enzalutamide. Previously on abiraterone. Did really well on both medications. Now 4 months on enzalutamide and my 5th research infusion, I'm experiencing some side effects. Trying to determine
bandgeek
in
Advanced Prostate Cancer
6 months ago
Not Tolerating Xtandi
I sent a note to my MO asking if it could be the
Xtandi
but did not hear back. So I took it upon myself and one evening did not take any dose, took one Aleve and went to bed.
I sent a note to my MO asking if it could be the
Xtandi
but did not hear back. So I took it upon myself and one evening did not take any dose, took one Aleve and went to bed.
rick8637
in
Advanced Prostate Cancer
1 year ago
prostate cancer
Used Lynparza and
Xtandi
over 2 years with side effects stopped in 2020 Started lu177 in 8/2021 with PSA 60+_. After 3 treatments PSA went to 5200 !!! With no real options Dr Sartor suggested I might try adding Lynparza and
Xtandi
with pluvicto lu177.
Used Lynparza and
Xtandi
over 2 years with side effects stopped in 2020 Started lu177 in 8/2021 with PSA 60+_. After 3 treatments PSA went to 5200 !!! With no real options Dr Sartor suggested I might try adding Lynparza and
Xtandi
with pluvicto lu177.
Oren1
in
Advanced Prostate Cancer
1 year ago
UPDATE
I have been on
xtandi
since last June, PSA yesterday was 0.08. Three months ago it was 0.16. The PA told me most men on xtandi’s run last between 2 and 3 years. I hope she is wrong in my case. Any one have any thoughts about this. ET
I have been on
xtandi
since last June, PSA yesterday was 0.08. Three months ago it was 0.16. The PA told me most men on xtandi’s run last between 2 and 3 years. I hope she is wrong in my case. Any one have any thoughts about this. ET
Echotango51
in
Advanced Prostate Cancer
1 year ago
trying to decide on a potential new strategy
History: After failure on AS, Dr Myers put me on
Xtandi
monotherapy feb 2016. After immediately dropping to a an undectectable PSA and staying there till 5/31/22. Dr Myers titrated the
Xtandi
down every 4-6 months, till settling at 3 pills per week of monotherapy .
xtandi
.
History: After failure on AS, Dr Myers put me on
Xtandi
monotherapy feb 2016. After immediately dropping to a an undectectable PSA and staying there till 5/31/22. Dr Myers titrated the
Xtandi
down every 4-6 months, till settling at 3 pills per week of monotherapy .
xtandi
.
podsart
in
Advanced Prostate Cancer
1 year ago
Xtandi (enzalutamide) alone is superior to ADT alone at preventing metastases in "high-risk" recurrent men
Xtandi
monotherapy performed significantly better than ADT alone. No comparison yet on
Xtandi
monotherapy vs
Xtandi
+ADT. Also improved time to PSA progression/castration-resistance and time to chemo. No data yet on overall survival.
Xtandi
monotherapy performed significantly better than ADT alone. No comparison yet on
Xtandi
monotherapy vs
Xtandi
+ADT. Also improved time to PSA progression/castration-resistance and time to chemo. No data yet on overall survival.
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
1
...
13
14
15
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
1982 results
Prostate Cancer Network
20 results
Fight Prostate Cancer
17 results
View top 10 communities
Sort by
Most Relevant
Newest