Our Pluvicto story

[Yadifan]

I need to begin by saying how grateful we are to have received Pluvicto at a time when so many could not. I'm grateful for our medical team that fought so hard to get approval for Pluvicto at a time when no one was able to get it. My husband was able to complete all 6 treatments with little side effects. It bought us 8 months of successful and hopeful months. Treatment #6 was 3/23/23.

PSA at the beginning of treatment was 108.5. At treatment #6 was 1.98. It's been climbing back up at subsequent appointments and was 8.45 at our June appointment. Scans have been done which looked promising except for new activity in the jaw/eye socket area. MRI was done on this area last week confirming this. We had a telehealth appointment with our MO yesterday. He wants to start cabitaxel in 2 weeks. We have a telehealth appointment with a radiologist next week but will most likely wait on this treatment while beginning chemotherapy.

We haven't tried xofigo yet. Our MO feels that my husband needs to recover from Pluvicto before trying xofigo. Darolutamide and apalutamide were discussed but insurance denied both. My husband didn't have success with Xtandi or Zytiga. MO feels that cabitaxel is our next best step. Genetic testing has been done with no actionable findings.

I know that many are not able to complete all 6 Pluvicto treatments and many aren't able to have any success at all. We were able to have a wonderful run at it. Wishing it would have a longer effect and hopefully it does for some. But grateful just the same. Please let me know if you've gone through something similar and what your treatment plan is.

Fighting hard. I know you are too.

[dockam]

Hi, I'm elated that he got the Pluvicto, endured all 6, and had such a wonderful response esp with that crazy PSA @ 3300 in 2019!!!

My best to you both on this PCa rollercoaster ride.

Give him a big hug from me, your Crazy AZN uncle💙

Fight on, and here's to many more years with him

Randy

[Yadifan in reply to dockam]

Thank you Randy! Forever grateful for your optimism and your kind spirit. Hugs will be happily given!

Fight on!

[dockam in reply to Yadifan]

💙💙💙

Me ke Aloha Pumehana - with warm Love

youtu.be/SXJmEA0LEoE(Not working as expected?)

[j-o-h-n]

youtube.com/watch?v=R_d9GkE...(Not working as expected?)

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 07/14/2023 1:09 PM DST

[Yadifan in reply to j-o-h-n]

Thank you j-o-h-n!

[Yank66]

DH just completed #5 infusion. He’s had a successful reaction so far. We’re hopeful for a long duration. It has given us more hope than any other treatment and feel so much gratitude just like you expressed. We have no idea what might be next. Blessings for you both.

[Yadifan in reply to Yank66]

Hoping for a long duration for you both. There are some that have amazing results. I hope you're one of them. Keep us posted on your results. Blessing to you also!