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Sjögren’s syndrome?
Just wondering if anyone has any experience of Sjögren’s syndrome? I was diagnosed ( due to symptoms, high CRP and rapid response to steroids) with GCA in January of this year. I have been tapering for the last 2 months or so. During this time I’ve also been diagnosed with glaucoma - I went to the optician
Just wondering if anyone has any experience of Sjögren’s syndrome? I was diagnosed ( due to symptoms, high CRP and rapid response to steroids) with GCA in January of this year. I have been tapering for the last 2 months or so. During this time I’ve also been diagnosed with glaucoma - I went to the optician
Phoenix51
in
PMRGCAuk
4 years ago
Positive hospital experience.
I just wanted to write a POSITIVE comment. I live in a rural area where there are not many cases of Covid 19 I know but last night I had to go to NHS 24 at the local hospital because of a sore eye and sore jaw and I was very aware that having polymyalgia it could be GCA. The place was empty- the staff
I just wanted to write a POSITIVE comment. I live in a rural area where there are not many cases of Covid 19 I know but last night I had to go to NHS 24 at the local hospital because of a sore eye and sore jaw and I was very aware that having polymyalgia it could be GCA. The place was empty- the staff
Bubble56
in
PMRGCAuk
4 years ago
COVID-19 and Immune System Disorders
I had my quarterly visit with my neurologist as "telemedicine" last Friday. It was a bit challenging as the technology was quite buggy on both sides, but we were finally able to do it with her seeing me and me just hearing her. I told her that my husband and I both had the virus and were amongst the
I had my quarterly visit with my neurologist as "telemedicine" last Friday. It was a bit challenging as the technology was quite buggy on both sides, but we were finally able to do it with her seeing me and me just hearing her. I told her that my husband and I both had the virus and were amongst the
elaineinqueens
in
My MSAA Community
4 years ago
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Blurred vision.
Hiya everybody. Last week (Sunday) I was playing on my PlayStation which I haven’t done for a few years as when I did play on a game concentration was difficult and fatigue would take over in the early years of my recovery.. anyway.. I was playing for a couple of hours in my bedroom and decided to
Hiya everybody. Last week (Sunday) I was playing on my PlayStation which I haven’t done for a few years as when I did play on a game concentration was difficult and fatigue would take over in the early years of my recovery.. anyway.. I was playing for a couple of hours in my bedroom and decided to
Wazza84
in
Headway
4 years ago
Blepharitis
Hi I'm new to the site but have had SLE for 35 years. Recently been diagnosed with blepharitis which my lovely optician thought might be linked to my SLE. Has anyone else got this irritating (in so many ways) condition which is aggravated at the moment by the tree pollen. I am using Hycosan Extra eye
Hi I'm new to the site but have had SLE for 35 years. Recently been diagnosed with blepharitis which my lovely optician thought might be linked to my SLE. Has anyone else got this irritating (in so many ways) condition which is aggravated at the moment by the tree pollen. I am using Hycosan Extra eye
Larks0ng
in
LUPUS UK
4 years ago
Not mine but thought provoking.
I talked to a man today I talked with a man today, an 80+-year-old man. I asked him if there was anything I can get him while this Coronavirus scare was gripping America. He simply smiled, looked away and said: "Let me tell you what I need! I need to believe in, at some point, this country my generation
I talked to a man today I talked with a man today, an 80+-year-old man. I asked him if there was anything I can get him while this Coronavirus scare was gripping America. He simply smiled, looked away and said: "Let me tell you what I need! I need to believe in, at some point, this country my generation
TexasLawman
in
My MSAA Community
4 years ago
Wrinkly and " Jagged looking lips"
Hello all, trust you're all keeping well and staying safe☺️! Is there anyone out there who could give me advise on what i could do to my lips. Got both Scleroderma and Raynauds, It all began in 2016. My lips amongst other issues became thinner and wrinkly. Now they are looking so "jagged", and i feel
Hello all, trust you're all keeping well and staying safe☺️! Is there anyone out there who could give me advise on what i could do to my lips. Got both Scleroderma and Raynauds, It all began in 2016. My lips amongst other issues became thinner and wrinkly. Now they are looking so "jagged", and i feel
eembee1
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Double Vision
Aaacckkk! My double vision is driving me crazy. I can see close up but about 1 foot and everything doubles. Had a biopsy done Thurs to verify GCA. The blood test came back inconclusive. Any of you get rid of the double vision?
Aaacckkk! My double vision is driving me crazy. I can see close up but about 1 foot and everything doubles. Had a biopsy done Thurs to verify GCA. The blood test came back inconclusive. Any of you get rid of the double vision?
Hidden
in
PMRGCAuk
4 years ago
Sweet oil
Does anyone know if “sweet oil” dries in your ears or do you have to syringe it out 😭 mines mostly gone but i press a part of my ear and i can feel and hear the stickiness almost like a suction type of noise . And I don’t know if I should just wait it out or just use the hydrogen peroxide and then syringe
Does anyone know if “sweet oil” dries in your ears or do you have to syringe it out 😭 mines mostly gone but i press a part of my ear and i can feel and hear the stickiness almost like a suction type of noise . And I don’t know if I should just wait it out or just use the hydrogen peroxide and then syringe
nicky602279
in
Anxiety Support
4 years ago
More issues going on with mom :/ I understand if you guys are sick of me posting. I just have no one now. And I DO need support.
So, there was an incident I guess... My moms wife has Amazon Prime. She’s always let me use it. I ordered some speakers, along with a 2 year warranty but on my own credit card. I mean, I always use my own credit card because I’m buying stuff for me? Why would I use someone else’s credit card?? Anyway
So, there was an incident I guess... My moms wife has Amazon Prime. She’s always let me use it. I ordered some speakers, along with a 2 year warranty but on my own credit card. I mean, I always use my own credit card because I’m buying stuff for me? Why would I use someone else’s credit card?? Anyway
Ubud2021
in
Anxiety and Depression Support
4 years ago
Just visiting
The saying goes that if March comes in like a lion it goes out like a lamb and that has been certainly true this year . After a shockingly depressing wet winter and early spring ,down in Devon we are now bathed in glorious sunshine with warm winds from the south which I hope will bring the industrious
The saying goes that if March comes in like a lion it goes out like a lamb and that has been certainly true this year . After a shockingly depressing wet winter and early spring ,down in Devon we are now bathed in glorious sunshine with warm winds from the south which I hope will bring the industrious
Georgepa
in
PSP Association
4 years ago
Community Eyecare Cataract and Surgical Centre - Watford
I have just been referred to this NHS service provider for my next Eylea injection (now that my private insurance will no longer fund treatment). It looks like this is a relatively new clinic and only very recently started providing wAMD treatment services. Please can anyone share their experiences with
I have just been referred to this NHS service provider for my next Eylea injection (now that my private insurance will no longer fund treatment). It looks like this is a relatively new clinic and only very recently started providing wAMD treatment services. Please can anyone share their experiences with
Mpatz
in
Macular Society
4 years ago
‘Fighting’ for an injection
On Wednesday my eye clinic phoned me, at first I thought it was to confirm my eye injection appointment the next day but instead it was a lady saying my consultant says I don’t need an injection for 4 months. So I made my case. I am in my very early 50’s I have DMO not AMD I only have 1 useable eye now
On Wednesday my eye clinic phoned me, at first I thought it was to confirm my eye injection appointment the next day but instead it was a lady saying my consultant says I don’t need an injection for 4 months. So I made my case. I am in my very early 50’s I have DMO not AMD I only have 1 useable eye now
tallyho
in
Macular Society
4 years ago
Saliva gland
Anyone had experience of blocked saliva glands? My husband drools and dribbles a lot. He now has pain below his jaw line. Hoping antibiotics will kick in soon.
Anyone had experience of blocked saliva glands? My husband drools and dribbles a lot. He now has pain below his jaw line. Hoping antibiotics will kick in soon.
Christine5252
in
PSP Association
4 years ago
Eylea - silicone
Hi, My husband has his second injection today and now has a black blob in his field of vision. He is worried that it is silicone oil from the syringe. Does anyone have any experience of this?
Hi, My husband has his second injection today and now has a black blob in his field of vision. He is worried that it is silicone oil from the syringe. Does anyone have any experience of this?
smallpurplecat
in
Macular Society
4 years ago
Steroids and eyes
Hi everyone. Well, I've spoken privately with a couple of ladies from the forum to get their advice. However, throwing it out there more broadly to everyone I may get to find out more. I remember reading a few posts recently about the effects that steroids can do to our eyes, but at the time I wan't
Hi everyone. Well, I've spoken privately with a couple of ladies from the forum to get their advice. However, throwing it out there more broadly to everyone I may get to find out more. I remember reading a few posts recently about the effects that steroids can do to our eyes, but at the time I wan't
Hidden
in
PMRGCAuk
4 years ago
Parallels
If I look daily at the sorry saga of dealing with coronavirus in the UK (protective gear, tests [lack of], dilatory responses to viral progress earlier I'm struck by the similarity of responses to the virus and to smaller but important issues like considering thyroid therapy change. The Times reported
If I look daily at the sorry saga of dealing with coronavirus in the UK (protective gear, tests [lack of], dilatory responses to viral progress earlier I'm struck by the similarity of responses to the virus and to smaller but important issues like considering thyroid therapy change. The Times reported
diogenes
in
Thyroid UK
4 years ago
EMDR
Can someone tell me anything abut EMDR
Can someone tell me anything abut EMDR
TheCoalMiner
in
Heal My PTSD
4 years ago
IS COLLAGEN SUPPLEMENT SAFE?
Hi all - Does anybody know anything about marine collagen/hyalauronic acid supplement? I’ve been taking this for years (Promotes good skin/hair). When I was diagnosed with limited systemic scleroderma, I asked my rheumatologist if I should stop taking the collagen, and he said it makes no difference.if
Hi all - Does anybody know anything about marine collagen/hyalauronic acid supplement? I’ve been taking this for years (Promotes good skin/hair). When I was diagnosed with limited systemic scleroderma, I asked my rheumatologist if I should stop taking the collagen, and he said it makes no difference.if
DaisyLA
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Prontogest injection site bleeding
Hey, Hoping someone has experience with this. So I’m leading up to my second frozen embryo transfer and this time we are taking prontogest from the beginning rather than after the transfer has already taken place. So my partner administered the injection today and there was loads of blood afterwards
Hey, Hoping someone has experience with this. So I’m leading up to my second frozen embryo transfer and this time we are taking prontogest from the beginning rather than after the transfer has already taken place. So my partner administered the injection today and there was loads of blood afterwards
Danniss
in
Fertility Network UK
4 years ago
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