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Critical illness Insurance & ET
I’m very stressed... I’ve had to refer my critical illness claim to the Financial Ombudsman as my insurers are still refusing to pay. My Haematologist has written several times to them explaining my condition but their complaints department are still refusing to pay. Has anyone else had the same
I’m very stressed... I’ve had to refer my critical illness claim to the Financial Ombudsman as my insurers are still refusing to pay. My Haematologist has written several times to them explaining my condition but their complaints department are still refusing to pay. Has anyone else had the same
Fizzydog
in
MPN Voice
4 years ago
Blood pressure and DRY AMD
I have just had to go on blood pressure tablets.i have dry AMD..research information says basically that this will speed up the deterioration of AMD..I'm scared about losing my eyesight..but have to take the pills..anybody got more information or first hand experience with is problem.im feeling cornered
I have just had to go on blood pressure tablets.i have dry AMD..research information says basically that this will speed up the deterioration of AMD..I'm scared about losing my eyesight..but have to take the pills..anybody got more information or first hand experience with is problem.im feeling cornered
horseaddict
in
Macular Society
4 years ago
B12 injections
Hi just phoned my doctors surgery - on hold for 31 minutes and when i tried to make appointment was told i have to email nurse who will check my records and see if I am eligible !!! I have been having them for many many years and now they are casting doubt on whether that was necessary !!! I had a lung
Hi just phoned my doctors surgery - on hold for 31 minutes and when i tried to make appointment was told i have to email nurse who will check my records and see if I am eligible !!! I have been having them for many many years and now they are casting doubt on whether that was necessary !!! I had a lung
Whitch
in
Pernicious Anaemia Society
4 years ago
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B12 injection
Hi just phoned my doctors surgery - on hold for 31 minutes and when i tried to make appointment was told i have to email nurse who will check my records and see if I am eligible !!! I have been having them for many many years and now they are casting doubt on whether that was necessary !!! I had a
Hi just phoned my doctors surgery - on hold for 31 minutes and when i tried to make appointment was told i have to email nurse who will check my records and see if I am eligible !!! I have been having them for many many years and now they are casting doubt on whether that was necessary !!! I had a
Whitch
in
Thyroid UK
4 years ago
Hi everyone
Was just wondering if you can take pregnenolone as this is supposed to help with arthritis or DHEA whilst on thyroxine. I am menopausal at the moment and read that these are the natural way and can help instead of HRT
Was just wondering if you can take pregnenolone as this is supposed to help with arthritis or DHEA whilst on thyroxine. I am menopausal at the moment and read that these are the natural way and can help instead of HRT
Wilky21
in
Thyroid UK
4 years ago
Trabeculectomy circumstances
Hello, for those of you who have had a trabeculectomy suggested or performed, what are some of the circumstances you have experienced leading up to that? Currently my IOPs are at 29 and 27 after residing in the teens for many years. I'm 53, I take three sets of eye drops (and have taken different types
Hello, for those of you who have had a trabeculectomy suggested or performed, what are some of the circumstances you have experienced leading up to that? Currently my IOPs are at 29 and 27 after residing in the teens for many years. I'm 53, I take three sets of eye drops (and have taken different types
CTinUS
in
Glaucoma UK
4 years ago
Is it returning, am I paranoid ?
GCA diagnosed about 5 years ago. Biopsy was insufficient so diagnosis on basis of symptoms. I had Ben on pred for 6 week for Pmr by then anyway any the artery they took was too small. Consultant to me well over a year ago that it had run it’s course and was gone. Both the GCA an the PMR. The Pmr has
GCA diagnosed about 5 years ago. Biopsy was insufficient so diagnosis on basis of symptoms. I had Ben on pred for 6 week for Pmr by then anyway any the artery they took was too small. Consultant to me well over a year ago that it had run it’s course and was gone. Both the GCA an the PMR. The Pmr has
doubtfully
in
PMRGCAuk
4 years ago
Bereavement & support
I lost my dad to covid in April. It’s surrounding me and all I hear about all day every day is covid / lockdown / quarantine / deaths and illness etc. It’s overwhelming. I’ve been going through a downward spiral of self destruction, binge drinking until I can’t remember things and even lashing out when
I lost my dad to covid in April. It’s surrounding me and all I hear about all day every day is covid / lockdown / quarantine / deaths and illness etc. It’s overwhelming. I’ve been going through a downward spiral of self destruction, binge drinking until I can’t remember things and even lashing out when
maemae86
in
Mental Health Support
4 years ago
MS diagnosis vs CIS Diagnosis
Hey guys....my neurologist diagnosed me with RRMS a few weeks ago... i have been waiting on my rebif... the doctor put on the paper work CIS... probably because I’ve only had one episode... so lifeline assistance said RRMS is a requirement for them... my doctor never told me he changed my diagnosis.
Hey guys....my neurologist diagnosed me with RRMS a few weeks ago... i have been waiting on my rebif... the doctor put on the paper work CIS... probably because I’ve only had one episode... so lifeline assistance said RRMS is a requirement for them... my doctor never told me he changed my diagnosis.
Newlyfe
in
My MSAA Community
4 years ago
If my wet MD eye "fails," can someone tell me what to expect? How about the effects on my other eye, if any?
My wonderful opthamologist, who has been injecting Avastin for about 18 months in my wet MD eye, told me during a recent visit that "You've really beaten the odds, Mary. Most people fail within the first 4-8 months." When I got home, I thought about the word "fail," which has an ominous sound. I googled
My wonderful opthamologist, who has been injecting Avastin for about 18 months in my wet MD eye, told me during a recent visit that "You've really beaten the odds, Mary. Most people fail within the first 4-8 months." When I got home, I thought about the word "fail," which has an ominous sound. I googled
whiskbroom
in
Macular Society
4 years ago
Lots of black & circular floaters + bloodshot eye after my last Avastin injection. Should I worry?
I have been having regular Avastin shots for 18 months, with no progression of the wet MD. I've had floaters before, but not this many so frequently. I've also had large black circular floaters (from the glycerin used in the packing, from what I've read) which eventually disappeared. Now my floaters
I have been having regular Avastin shots for 18 months, with no progression of the wet MD. I've had floaters before, but not this many so frequently. I've also had large black circular floaters (from the glycerin used in the packing, from what I've read) which eventually disappeared. Now my floaters
whiskbroom
in
Macular Society
4 years ago
Lupus SLE - Dry Mouth
Hi there, I’ve SLE which has been very well managed on hydroxychloroquine and Methotrexate. However, this past four months I’ve had a VERY stressful time. Constant minimal sleep, no appetite and weight loss. Now on anti depressants too. I’m now suffering from a dry mouth in that I can’t get through
Hi there, I’ve SLE which has been very well managed on hydroxychloroquine and Methotrexate. However, this past four months I’ve had a VERY stressful time. Constant minimal sleep, no appetite and weight loss. Now on anti depressants too. I’m now suffering from a dry mouth in that I can’t get through
Sin123
in
LUPUS UK
4 years ago
Eyes burning, bloodshot, blurred eye sight.
I woke up with a shock late last night, with incredibly painful eyes. They appeared very bloodshot and were watering copiously. I was unable to open the worst eye properly and my vision seemed distorted and blurred. I poured eyedrops ( for dry eyes) into them and did an eyebath. Eventually it settled
I woke up with a shock late last night, with incredibly painful eyes. They appeared very bloodshot and were watering copiously. I was unable to open the worst eye properly and my vision seemed distorted and blurred. I poured eyedrops ( for dry eyes) into them and did an eyebath. Eventually it settled
SheffieldJane
in
PMRGCAuk
4 years ago
slight smarting both eyes
Developed slight smarting in both my eyes over the last few weeks. My vision is not impaired . The condition is intermittant and does not seriously me but is worrying. Its what I imagine eye strain to be but for no reason. Could it be the chemistry if the tears I wonder. Can this be checked , perhaps
Developed slight smarting in both my eyes over the last few weeks. My vision is not impaired . The condition is intermittant and does not seriously me but is worrying. Its what I imagine eye strain to be but for no reason. Could it be the chemistry if the tears I wonder. Can this be checked , perhaps
Darkin
in
Pain Concern
4 years ago
Cataracts or AMD ?
Hi everyone. I am new to this site. I have high myopia which has been stable for many years since I had retinal detachment surgery in both eyes at 30 years old. I am now 56 and for the past couple of years I have struggled seeing in low light. Opticians say my vision is good for someone so myopic and
Hi everyone. I am new to this site. I have high myopia which has been stable for many years since I had retinal detachment surgery in both eyes at 30 years old. I am now 56 and for the past couple of years I have struggled seeing in low light. Opticians say my vision is good for someone so myopic and
Hidden
in
Macular Society
4 years ago
Hanging on
cannot sleep mind is racing floaters in eyes have got worse , im walking on egg shells i dont know if i can carry on im having bad thoughts all day every day , and the pain is crippling me , i am drained 😔
cannot sleep mind is racing floaters in eyes have got worse , im walking on egg shells i dont know if i can carry on im having bad thoughts all day every day , and the pain is crippling me , i am drained 😔
paul078
in
Mental Health Support
4 years ago
Diagnosis difficulties
Hi I'm in the UK.. Struggling to get diagnosed... Ibs, dry eye, dry mouth, fatigue, breathless... Mother ra, brother lupus, Aunty sjogren's.. No antibodies.. But gp states not auto immune as all blood tests show fit and well. What can I do next?? Any guidance much appreciated
Hi I'm in the UK.. Struggling to get diagnosed... Ibs, dry eye, dry mouth, fatigue, breathless... Mother ra, brother lupus, Aunty sjogren's.. No antibodies.. But gp states not auto immune as all blood tests show fit and well. What can I do next?? Any guidance much appreciated
ladyjedi
in
The Australian Sjögren's Syndrome Association
4 years ago
Mycosis Fungoides
Hi. I haven’t posted in a while but wanted anyone’s opinion on being tested for mycosis Fungoides and if anyone had CLL plus this disease. It’s a cutaneous T cell lymphoma. I’ve had a rash that was there two years ago and and it goes away and comes back in different areas. No scaling, itchiness
Hi. I haven’t posted in a while but wanted anyone’s opinion on being tested for mycosis Fungoides and if anyone had CLL plus this disease. It’s a cutaneous T cell lymphoma. I’ve had a rash that was there two years ago and and it goes away and comes back in different areas. No scaling, itchiness
Madison1995
in
CLL Support
4 years ago
Fist Pump - The little successes!
I could probably post all the time, because you all understand the journey. I try not to over post here, but I wanted to share this with you all. I have a private Facebook group page for my Mom's family & friends, so I can keep everyone updated on her health, and ultimately educate them (or try) on
I could probably post all the time, because you all understand the journey. I try not to over post here, but I wanted to share this with you all. I have a private Facebook group page for my Mom's family & friends, so I can keep everyone updated on her health, and ultimately educate them (or try) on
bazooka111
in
PSP Association
4 years ago
Central serous chorioretinopathy and PDT
Hi, I have had CSCR episodes in my left eye for a number of years now. They seem to resolve but keep returning,, at least once a year. I had a flare up a few weeks ago and my consultant has suggested Photodynamic Therapy for this Friday. I agreed but now I worry it may end up doing more bad than good
Hi, I have had CSCR episodes in my left eye for a number of years now. They seem to resolve but keep returning,, at least once a year. I had a flare up a few weeks ago and my consultant has suggested Photodynamic Therapy for this Friday. I agreed but now I worry it may end up doing more bad than good
barbiedog
in
Macular Society
4 years ago
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