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Dr. Jones' Knowledge
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Pneumonia recovery / Bronchiectasis - what is what? Questions! Thank you
Hello everyone ! Background: I am five weeks post-pneumonia diagnosis. Mild bronchiectasis was diagnosed in both lower lobes (but only partially) one week post-infection. Had pneumonia also 11 months prior - many chest infections in previous years. Questions: Could the mil bronchiectasis be pseudo-bronchiectasis
Hello everyone ! Background: I am five weeks post-pneumonia diagnosis. Mild bronchiectasis was diagnosed in both lower lobes (but only partially) one week post-infection. Had pneumonia also 11 months prior - many chest infections in previous years. Questions: Could the mil bronchiectasis be pseudo-bronchiectasis
PETeacherSGblue
in
Lung Conditions Community Forum
1 year ago
Cap & kPa
Hi do anybody know anything about cap score? What shouldn't it be above & also for kPa. Can having moving gallstones cause stiffness in liver?? Gallstones are causing no pain ATM. Thanks
Hi do anybody know anything about cap score? What shouldn't it be above & also for kPa. Can having moving gallstones cause stiffness in liver?? Gallstones are causing no pain ATM. Thanks
Belleben
in
British Liver Trust
4 months ago
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Shingles and MTX
I'm due to go visit family but brother-in-law has shingles. Normally I wouldn't worry as I have had chicken pox but the NHS in advice on taking MTX says to contact the doctor if you've been exposed to shingles (which suggests we should avoid contact with shingles patients). Has anyone been advised to
I'm due to go visit family but brother-in-law has shingles. Normally I wouldn't worry as I have had chicken pox but the NHS in advice on taking MTX says to contact the doctor if you've been exposed to shingles (which suggests we should avoid contact with shingles patients). Has anyone been advised to
Gottarelax
in
NRAS
1 year ago
Colpermin
what’s your opinion on Peppermint Oil Capsules against Buscopan Undecided on Buscopan, got a recent flare up after a break of a couple of month Sure it’s stress related
what’s your opinion on Peppermint Oil Capsules against Buscopan Undecided on Buscopan, got a recent flare up after a break of a couple of month Sure it’s stress related
Almostthere12
in
IBS Network
4 months ago
for our 'newest' members....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
GCA flare
Diagnosed April 2018 with PMR. Three months later GCA. I am currently on 3mgs prednisolone. Over the last two days have scalp pain on right side only … no jaw pain. It feels a bit like I am getting a cold sore but no cold sore showing up. Could it be a GCA flare? Thank you to everyone who replies.
Diagnosed April 2018 with PMR. Three months later GCA. I am currently on 3mgs prednisolone. Over the last two days have scalp pain on right side only … no jaw pain. It feels a bit like I am getting a cold sore but no cold sore showing up. Could it be a GCA flare? Thank you to everyone who replies.
Reddev
in
PMRGCAuk
1 year ago
Disability information
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Urso and gallstones
A recent ultrasound revealed possible gallstone blocking a bile duct. An MRCP was recommended and carried out a couple of weeks ago although more like an MRI as no contrast was administered. I now have an appointment in June but I'm not sure what for. My concern is from reading the Urso leaflet it
A recent ultrasound revealed possible gallstone blocking a bile duct. An MRCP was recommended and carried out a couple of weeks ago although more like an MRI as no contrast was administered. I now have an appointment in June but I'm not sure what for. My concern is from reading the Urso leaflet it
Cressy
in
PBC Foundation
5 months ago
Pneumonia vaccine
Hi all I have Lupus SLE, and numerous other thing, just wondering how often do we need the pneumonia vaccine TIA
Hi all I have Lupus SLE, and numerous other thing, just wondering how often do we need the pneumonia vaccine TIA
MrGrey1234
in
LUPUS UK
1 year ago
Vaccines – at what point do they become a disbenefit?
I need to state out front that I’m not anti vaccination, I believe in the benefits having had several as a kid and now 6 anti COVID doses. But I’m now being bombarded with NHS offers of several different vaccines, COVID, Flu and shingles among them, and it has made me think of possible issues before
I need to state out front that I’m not anti vaccination, I believe in the benefits having had several as a kid and now 6 anti COVID doses. But I’m now being bombarded with NHS offers of several different vaccines, COVID, Flu and shingles among them, and it has made me think of possible issues before
IWVC
in
CLL Support
1 year ago
Wednesday's Word
[u][i]
MRCP -
[/i][/u] This is a type of body scan that examines the bile ducts in great detail. It uses magnetic resonance imaging (MRI). Prior to this test, the examination of the bile ducts for gallstones or some type of blockage was done with the placement of a scope called ERCP. This was
[u][i]
MRCP -
[/i][/u] This is a type of body scan that examines the bile ducts in great detail. It uses magnetic resonance imaging (MRI). Prior to this test, the examination of the bile ducts for gallstones or some type of blockage was done with the placement of a scope called ERCP. This was
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Beta blockers
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
Robert1220
in
British Liver Trust
5 months ago
Surgery to remove FNH
Hi all, I have been here before but it was quite a while ago. (10 months) Over the last two years, I have been in pain on my upper right quadrant, had lots of scans, tests which included an unpleasant ERCP being done as one thought was that the sphincter of oddi could have been the culprit. For a
Hi all, I have been here before but it was quite a while ago. (10 months) Over the last two years, I have been in pain on my upper right quadrant, had lots of scans, tests which included an unpleasant ERCP being done as one thought was that the sphincter of oddi could have been the culprit. For a
Elverra30
in
British Liver Trust
5 months ago
Cold and MTX
Hello everyone I've had a cold, bunged up nose, sore throat and slight chesty cough since Tuesday. I'm scheduled to take my weekly MTX on Sunday. Should I take it? I seem to remember reading that I could safely miss a dose and it was actually advised that you should temporary stop the medication if unwell
Hello everyone I've had a cold, bunged up nose, sore throat and slight chesty cough since Tuesday. I'm scheduled to take my weekly MTX on Sunday. Should I take it? I seem to remember reading that I could safely miss a dose and it was actually advised that you should temporary stop the medication if unwell
tina-shelley
in
NRAS
1 year ago
Cold in September
Hi all didn't take long for me to pick up a cold I work with kids. Yesterday I woke up with a cold and my asthma flaring up. Struggled through work with salamol. Took my rescue steriods last evening and this morning. No work today and resting at home. Salamol at regular intervals. Feel wiped out, no
Hi all didn't take long for me to pick up a cold I work with kids. Yesterday I woke up with a cold and my asthma flaring up. Struggled through work with salamol. Took my rescue steriods last evening and this morning. No work today and resting at home. Salamol at regular intervals. Feel wiped out, no
elanaoali
in
Asthma Community Forum
1 year ago
Shingles vaccine
Has anyone on methotrexate and infliximab had the shingles vaccine ? Do you have to get it every year ?
Has anyone on methotrexate and infliximab had the shingles vaccine ? Do you have to get it every year ?
Grounsel
in
NRAS
1 year ago
new members
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Liver detox after chemo?
I am starting Taxotere next week and received some advice from a friend fighting serious colon cancer. He told me how he detoxed his liver after each cycle. He used TUDCA Bile salts and PectaSol from ECONugenics Company. https://econugenics.com/collections/pectasol?Wickedsource=Microsoft&Wickedid
I am starting Taxotere next week and received some advice from a friend fighting serious colon cancer. He told me how he detoxed his liver after each cycle. He used TUDCA Bile salts and PectaSol from ECONugenics Company. https://econugenics.com/collections/pectasol?Wickedsource=Microsoft&Wickedid
V10fanatic
in
Advanced Prostate Cancer
11 months ago
shingles
I was diagnosed with PMR 3 years ago and after a fairly bumpy ride I have now been off Prednisone for two and a half months. I have been called for a Shingles vaccination. I reacted badly to the Covid jabs each time. I have had Shingles twice! Once about 35 years ago and then for the second time
I was diagnosed with PMR 3 years ago and after a fairly bumpy ride I have now been off Prednisone for two and a half months. I have been called for a Shingles vaccination. I reacted badly to the Covid jabs each time. I have had Shingles twice! Once about 35 years ago and then for the second time
Oldfogie
in
PMRGCAuk
1 year ago
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