shingles: I was diagnosed with PMR 3 years ago and... - PMRGCAuk

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shingles

Oldfogie profile image
6 Replies

I was diagnosed with PMR 3 years ago and after a fairly bumpy ride I have now been off Prednisone for two and a half months. I have been called for a Shingles vaccination. I reacted badly to the Covid jabs each time. I have had Shingles twice! Once about 35 years ago and then for the second time 9 years ago. Then it took about 2 years for the post herpatic pain to go. Should I have the vaccine? My gut feeling is to avoid it, especially as I am finally returning to some form of normal life after 3 years of hell! Many thanks. This website has been such a help and support.

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Oldfogie
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123-go profile image
123-go

I sympathise with your dilemma.

Read this updated advice from the NHS:

nhs.uk/conditions/vaccinati...

I hope the information helps you to make up your mind. Perhaps a conversation with your GP or advanced nurse practitioner at the practice would be useful.

Oldfogie profile image
Oldfogie in reply to123-go

Many thanks for your reply, best wishes

PMRpro profile image
PMRproAmbassador

I also see your dilemma - but the advantages of the Shingrix vaccine are great. And you have first hand experience of post-herpetic neuralgia which is really the main reason for having the vaccine.

Oldfogie profile image
Oldfogie

I think I’m going to have to bite the bullet. Thank you for your help.

Koalajane profile image
Koalajane

I had the vaccination on Wednesday, felt rough the following day and fine after that

gingerraspiller profile image
gingerraspiller

I felt rough after the 1st shot - flu-like symptoms for a couple days. The 2nd shot is given 3 to 6 months later. I didn't think much of it and got the 2nd shot after 3 months. I was very sick - in bed for 3 days, felt awful, ached all over. Called the dr and asked if this was "normal" and when would I feel better? I got through it but if I had it to do over again, I would wait at least 5 months before getting the 2nd shot.

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